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2017 Transition of Care Video Series

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Transitions is a lifespan issue. With the new Transition of Care Video Series, CNF shows the journey of 2 patients and their families as they approach transitioning from a child neurologist to an adult neurologist.

The Transition of Care Video Series also showcases perspectives and experiences of 5 national transitions experts–child and adult providers who care for individuals with neurologic conditions–through in-depth interviews.

 

Overall, Transition of Care Video Series underscores the importance of partnership, communication, and a defined process to ensure successful transition of care.

Patient & Family Stories: Katie & Kobe

Katie is a 23-year-old young woman who lives with cerebral palsy, epilepsy, and other health issues. This is Katie’s story–one of hope and inspiration–as told by her mother, of Katie’s journey transitioning from a child to adult neurologist, with eyes towards Katie’s future.

 

Kobe is an 18-year-old young man who lives with epilepsy. This is Kobe’s story of preparing to transition from a child to adult neurologist, with insights from Kobe’s mother, his child neurologist, and Kobe, himself. Kobe relays his message to other children and young adults who are going through the same journey.

 

 Conversations with Transitions Project Advisory Committee (TPAC) Members
Visit www.childneurologyfoundation.org/transitions for video interviews with:

 

Child neurologist and TPAC Chairperson, Lawrence Brown, discusses:

  • “Why do certain neurologic conditions pose challenges for transition?”
  • “How does transition to adult care offer a new perspective on medical care for the patient?
  • “Why is transition of care one of the CNF’s top advocacy priorities?”

 

Adult neurologist, Cynthia Comella, discusses:

  • “As an adult neurologist, what’s your role in making transition successful?”
  • “Why are some adult neurologists hesitant to receive young adults living with neurologic conditions from childhood?”
  • “How do you prepare for patients who are transitioning?”
  • “What are your thoughts on transition of care as one of the CNF’s top advocacy priorities?”

 

Nurse, Rebecca Schultz, and social worker, Symme Trachtenberg, discuss:

  • “Why is transition such an important time for adolescents?”
  • “What concerns do families typically express?”
  • “What advice do you give to parents?”
  • “What types of support does the CNF offer for transition?”

 

Child neurologist and CNF President, Ann Tilton, discusses:

  • “How do you describe transition?”
  • “Why is transition challenging for patients?”
  • “What do you tell adult neurologists who are hesitant to accept your patients?”
  • “Why is transition important to both child and adult neurologists?”
  • “Why is transition of care one of the CNF’s top advocacy priorities?”
  • “Why did CNF develop a consensus statement on transition?”

 

Visit www.childneurologyfoundation.org/transitions for more information about these videos and additional transitions resources from CNF.