2017 Infantile Spasms Hero & Hope Awards

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  NOMINATIONS NOW ACCEPTED FOR: IS HOPE AND IS HEROES AWARDS The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1 through 7. To recognize those who have made an outstanding contribution to families affected by infantile spasms, nominations are now being accepted for both the…  Read More

Assistance for Children with Infantile Spasms

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Applications for the 2017 Harnett Mini-Grant: Now Being Accepted In January 2014, the Harnett Mini-Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was was diagnosed with infantile spasms and passed away before his first birthday. Each year, CNF is proud…  Read More

What Do You Think CNF Should Tackle in 2018?

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CNF is looking ahead to 2018. We always give our partners a voice in where we should focus our efforts next… so please let us know what you think What is an unmet need in the child neurology community? What disease or condition really needs a champion? What do you…  Read More

Be Brave. Be Fierce. Be Mighty: Pediatric Stroke Warriors

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Child Neurology Foundation is excited to share an exceptional resource, developed for families, by our partners at Pediatric Stroke Warriors.   For some, the very thought of a child having a stroke is new. Most often we associate stroke with adults, so its usually a challenge to understand that a stroke…  Read More

Free Comic Book: Transitions & Epilepsy

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Comic Book, “Understanding Transitional Care in Epilepsy” Now Available “Understanding Transitional Care in Epilepsy” is the 6th comic book in the “Medikidz Explain Epilepsy” series. The peer-reviewed, educational comic book focuses on the transition process from pediatric to adult health care for patients living with epilepsy, and has been endorsed…  Read More

2018 Research Opportunities: Now Available (AAN)

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Scientific and medical communities have called the shortage of investigators a crisis that will impact far more than the 50 million Americans currently affected by a neurologic disease. Our partners at the American Academy of Neurology (AAN) have launched an ambitious research program, furthering their commitment to make a profound…  Read More

CNF Transition of Care Video Production

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Transition of Care is the most diverse and comprehensive program at Child Neurology Foundation.  In late July, CNF worked with a director and film crew to shoot videos that would illuminate the complexity of transition of care for young adults living with neurologic conditions, their families, and the health care providers…  Read More

Help Improve Communication Around Epilepsy

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Child Neurology Foundation is conducting a survey concerning knowledge and communication about epilepsy between medical professionals and families.  Results will be used to improve conversations about epilepsy.  Caregivers of people with epilepsy can complete the brief survey at: https://www.surveymonkey.com/r/CNF-2017  Read More

FDA Approves Eisai’s FYCOMPA® (perampanel) for Use as Monotherapy for the Treatment of Partial-Onset Seizures

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   First antiepileptic drug (AED) to apply FDA’s regulatory pathway of extrapolation for monotherapy use; FDA proposed using this pathway to get monotherapy options to patients sooner    FYCOMPA has now treated more than 100,000 patients worldwide across different indications and formulations    Once-a-day FYCOMPA is the first and only…  Read More

Do You Know a Junior Leader?

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Our partners at the Tuberous Sclerosis Alliance are now offering their 3rd annual TS Alliance Junior Leader Program. If you are a young adult affected by TSC, consider applying for the Junior Leader Program. Applications are due AUGUST 1, 2017. The Junior Leader Program includes a trip to Washington, DC to…  Read More