Introducing the RareChildNeuro 75% Fact

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Children & families who live with rare conditions often feel isolated. We want to change isolation to empowerment! The CNF/Global Genes Rare Child Neurology Workgroup wants to understand the needs of children living with rare genetic conditions that have a neurologic component. Our first priority was determining this population and we are excited…  Read More

Using Technology to Help with Difficult Conversations

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New Pilot Project Improving communication between pediatric neurologists and the families of children living with epilepsy “A majority of families wanted to discuss their child’s risk of SUDEP with their pediatric neurologists, but instead … go to a peer or the internet… providers were less willing to discuss these topics due…  Read More

Parents and Caregivers…Let’s Talk!

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Parents/caregivers of 12 to 30-year olds living with a complex neurologic condition, let’s talk! CNF’s new Caregiver Perspectives on Transitions Project is interested in your experiences with different aspects of transition to adulthood for children/young adults living with complex neurologic conditions. Through online focus groups and surveys we will explore medical transitions and transitions…  Read More

Family Travel Grants Now Available

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Please visit the January 30, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe to our Partners List  Read More

With a Little Help from our Friends… FSEP

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Please visit the January 23, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe to our Partners List  Read More

Scholarship Now Available!

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Please visit the January 18, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe to our Partners List    Read More

CNF Announces 2018 Top 5!

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Happy New Year from Child Neurology Foundation! Like many of you, we are jumping right into the new year —  a time of excitement, new beginnings, and potential opportunities! Because it’s easy to caught up in “big plans”, we resolve to purposefully ground ourselves in our mission and continue to…  Read More

Introducing… Infantile Spasms Mnemonic

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  Tomorrow, December 1st, Kicks Off Infantile Spasms Awareness Week (ISAW) Identifying infantile spasms (IS) is critical for parents, caregivers, and providers. The earlier a child is diagnosed, the greater the chances that the spasms can be treated—helping to minimize the long-term harm to a child’s developing brain. CNF convenes…  Read More

Help Us Support More Families

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  “No journey is the same, but it’s nice to know other people understand.” “I came across your site and I would like for you to help me save my son’s future.” “It’s so hard to see the most precious thing you have suffering.” “This is not an easy road…  Read More

Thankful Tuesday from CNF

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It seems that every day over the next week has a special name: Black Friday, Small Business Saturday, Cyber Monday, so CNF has decided that today is Thankful Tuesday! We have compiled a list of 7 people/things for which we are thankful! Of course, the list is not all-inclusive and somewhat random… but a wonderful list,…  Read More