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CNF Announces 2018 Top 5!

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Happy New Year from Child Neurology Foundation!

Like many of you, we are jumping right into the new year —  a time of excitement, new beginnings, and potential opportunities!

Because it’s easy to caught up in “big plans”, we resolve to purposefully ground ourselves in our mission and continue to listen to the needs of our child neurology community!

CNF Announces our Top 5! 
New and expanded initiatives planned for 2018

Operationalizing Transition of Care

• Conduct research on family experiences
• Examine transitions needs of our population with intellectual disabilities
• Select transitions as the CNF 2018 Annual Educational Initiativewww.childneurologyfoundation.org/transitions

Approaching Care Coordination & Caregiver Education

• Expand and enhance the Family Support & Empowerment Program (FSEP)
• Rebuild our virtual patient‐education librarywww.childneurologyfoundation.org/FSEP
 

Changing the Advocacy Culture: Convening and Promoting Collaborative Advocacy Models

• Build on awareness initiatives of the Infantile Spasms Action Network (ISAN)
• Replicate ISAN model for other disease stateswww.childneurologyfoundation.org/infantilespasms
 

Improving Family‐Professional Communication

• Pilot the use of technology (CHICA: Children’s Health Improvement through Computerized Automation(r)) to improve communication between providers and caregiverswww.childneurologyfoundation.org/SUDEP
 

Offering Grants & Scholarships to the Community

• Opportunities for providers, caregivers, and partner advocacy organizationswww.childneurologyfoundation.org/research-grant-opportunities
 

For an overview of all current CNF programs, initiatives, and resources:
www.childneurologyfoundation.org/programs

ICYMI: CNF’s 2017 Year-in-Review

In this short video, we highlight 2017’s projects and accomplishments and show how they set the stage for 2018. Take a look!

Please share any thoughts or comments about the video and 2018 priorities. If you or your organization would like collaborate or support CNF’s upcoming efforts, contact us.
CNF is privileged to serve as collaborative center for education and support for children and families living with neurologic conditions, and we are excited to continue that service in 2018.