Rare Disease Caregiving Impacts Heart + Finances – See Why
What Does a Portrait of a Rare Caregiver Look Like?
The National Alliance for Caregiving, in partnership with Global Genes, recently released Rare Disease Caregiving in America, a national study of 1,406 unpaid caregivers ages 18+ living in the US who provide care to a child or adult with a rare disease or condition. CNF proudly served on the advisory committee for this important project. Learn more at www.caregiving.org/rare.