September

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COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Quincy

“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”

Wishes For Elliott – Webinars

Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many others in the works.

Elliot

Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from his family. “It’s no secret…

Luke

“Of course, the isolation for COVID-19 was hard on everyone. For us, life changed drastically.”

Quinn

“My daughter was chosen as one of the grant recipients in the first round. I just wanted to say thank you so much.”

The Cute Syndrome Foundation – Food Clubs

In June, the Cute Syndrome Foundation received a Rising Tides Grant from the Child Neurology Foundation to lift a social and emotional support program off…

Guidelines for Ensuring Access to Care and Treatment for Rare Disease Patients

Global Genes and Child Neurology Foundation Outline “Guiding Principles of Rare Disease Care and Patient Access” in Joint Report, Urging Health System Stakeholders to Help…

National Academies of Medicine releases draft of proposed guidelines for COVID-19 vaccine, seeking public feedback

On Tuesday, September 1, the National Academies of Medicine (NAM) released a draft of their proposed guidelines for the distribution of a potential COVID-19 vaccine once it becomes available.  The public has been…

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