1 in 5 children will live with a neurologic condition

We are here so they never have to walk alone!

At Child Neurology Foundation, we are committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.

Information Spotlight

Getting Extra Support And Help

Palliative care is a system of care that is designed to be an extra layer of support for families of children living with serious, complex medical conditions. It’s an often misunderstood option; it’s not the same as hospice care.

Dr. Sarah Friebert is the Director of Pediatric Palliative Care at Akron Children’s Hospital and Tiffani Goff is the mother of three daughters and author of the book Loving Tiara. Her middle daughter, Tiara, was born with the rare genetic disease tuberous sclerosis complex.

They have a candid, insightful conversation about palliative care and how it can help families in the fourth part of our Healthy Epilepsy Management Series.

Get Neurologic Condition Information

Child Neurologic Disorder Information & Resources

If your child or someone you know has recently been diagnosed with a neurologic condition, we’re here to help you make an informed decision on their care. Search our child neurology disorder directory to learn more about treatment, prognosis and research opportunities.

One-On-One Support

Not finding what you need? Would you like to talk with someone who has gone through a similar situation as you?

Timely Topics

Are you in search of a diagnosis?

The field of genetic testing is rapidly evolving and may be helpful in getting answers.

Struggling with bad behavior?

Discover techniques and tips to help you get your child’s behavior under control.

Are you having your doctors visits online now?

Learn how to make the most of your next virtual visit to the doctors office.

Thinking about your child’s transition to adulthood?

It is never too early to start planning and preparing for a child’s transition to adulthood.

What’s Happening Now

We Know It Is Difficult—But Let’s Talk Behavioral Therapy

Here is information on behavioral therapy to help you make good decisions for your child…

Addressing kids’ challenging behaviors through a neurobehavioral lens

Changing the lens through which parents view their child’s behavior also changes the way they…

Digital Access Program: Bridging The Divide By Getting Families Online

We’re launching a pilot project to provide digital access to 100 families in our child…

Epilepsy Education Hub

Although epilepsy cannot be cured, many people control seizures with medication, lifestyle changes, devices, and/or…

Our programming and family support services would not be possible without donations. Donate now to help us continue to provide critical support services for children and families in need.

Many Thanks to Our
Corporate Advisory Board Partners

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