At Child Neurology Foundation, we are committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.
Getting Extra Support And Help
Palliative care is a system of care that is designed to be an extra layer of support for families of children living with serious, complex medical conditions. It’s an often misunderstood option; it’s not the same as hospice care.
Dr. Sarah Friebert is the Director of Pediatric Palliative Care at Akron Children’s Hospital and Tiffani Goff is the mother of three daughters and author of the book Loving Tiara. Her middle daughter, Tiara, was born with the rare genetic disease tuberous sclerosis complex.
They have a candid, insightful conversation about palliative care and how it can help families in the fourth part of our Healthy Epilepsy Management Series.
Get Neurologic Condition Information
Child Neurologic Disorder Information & Resources
If your child or someone you know has recently been diagnosed with a neurologic condition, we’re here to help you make an informed decision on their care. Search our child neurology disorder directory to learn more about treatment, prognosis and research opportunities.
Are you in search of a diagnosis?
The field of genetic testing is rapidly evolving and may be helpful in getting answers.
Struggling with bad behavior?
Discover techniques and tips to help you get your child’s behavior under control.
Are you having your doctors visits online now?
Learn how to make the most of your next virtual visit to the doctors office.