Children and their families who live with rare conditions often feel isolated. We want to change isolation to empowerment. The CNF/Global Genes RARE Child Neurology…
Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of…
CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.
Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.
CAMBRIDGE, England, April 26, 2017 /PRNewswire/ — Proximagen Limited (Proximagen) today announced that its pivotal Phase 3 trial of intranasal midazolam (USL261) for the rescue treatment…
FDA Approves Expanded Indication for Qudexy® XR (topiramate) Extended-Release Capsules to Include Prophylaxis of Migraine Headache in Adults and Adolescents Molecule Most Prescribed by Neurologists…
Neurology Reviews presents its third annual Rare Neurological Disease Special Report, a compendium of articles and information covering a wide range of rare neurologic diseases. CNF…
MEDIA RELEASE • COMMUNIQUE AUX MEDIAS Novartis International AG Novartis Global Communications CH-4002 Basel Switzerland https://www.novartis.com • MEDIENMITTEILUNG Novartis drug Votubia® receives EU approval to…
Learn important facts about creatine deficiencies by watching this video produced by the Association for Creatine Deficiencies (ACD, creatineinfo.org).
Basel, January 31, 2017 – Novartis today announced that the European Commission has approved Votubia® (everolimus) dispersible tablets* as an adjunctive treatment for patients aged…
The 121st Fort Worth Stock Show offers fun and entertainment for lots of fans. However for more than 200 horseback riders with special needs the…
Star Wars fans around the world were saddened to hear about the passing of Carrie Fisher. Along with being a great actress, she was also a…
Outside of Chicago a group of special needs athletes were participating in the 2017 Champions Special Needs Skating Competition. For the participants, it’s not just about…
Everyone has had a Christmas wish to wake up on Christmas morning with a new pet. For Cruz Smith, that wish was for a dog.…
Felt. Googly eyes. Socks. Pipe cleaners. Imagination. Sound familiar yet? Puppets! Patrick Waters, a teacher of special needs students, found that using these fun little…
Nobody’s perfect. We all have things about ourselves we wish we could change. For activist Jeison Aristizábal, having cerebral palsy, made life more challenging but he…
As soon as you become a mom life is no longer lived before bedtime. Pregnancy is the preparation for sleepless nights. That growing baby and…
When you think of being part of a team, what do you think of? Hard work? Effort? Commitment? Andrew Goodspeed joined a lacrosse team in…
Eisai is pleased to announce the availability of the fifth comic book in the “Medikidz Explain Epilepsy” series, “Medikidz Explain Lennox-Gastaut Syndrome (LGS),” an educational comic…