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A #NeuroHero Story: Gloria & Grace’s Journey with Dravet Syndrome

Gloria Rodriguez has spent nearly 10 years learning how to be the best advocate possible for her daughter Grace, a 9-year-old with Dravet Syndrome. Grace…

2022 Harnett Grant Thanks to the generous support of the Harnett Family, CNF is able to provide one $1,000 grant to a family with a…

Digital Access & Telehealth Provide Hope: The Kimball Family’s Story

Alyssa Kimball’s family of five has a lot on their plate.    Of the three children, ages 6 through 9, the youngest has autism plus a…

2022 Needs Assessment Data: A Snapshot of the CNF Community & Caregiver Data

To continue to serve as a hub for the child neurology community, our organization regularly assesses the needs of our patients, caregivers, and neurologists. That’s why…

Call for CNF Board Nominations

CNF is excited to open a community-wide call for nominations to its Board of Directors! We seek Board members who share CNF’s commitment to serve…

The Child Neurology Foundation (CNF) and the Child Neurology Society (CNS) work on behalf of children and families living with neurologic conditions within the United…

The Impact of School Violence on Children

A Letter from Dr. Anup Patel, President of CNF Board of Directors, and Dr. Bruce Cohen, President of the Child Neurology Society   The end…

CNF advises White House on Digital and Community Health Programs

Last month, CNF had the opportunity to speak with the White House Office of Science & Technology Policy (OSTP) about our Digital Access, Transitions of…

Palliative Care vs. Hospice: Amy Brin on AAP’s New Guidelines

CEO Amy Brin on the difference, new AAP guidelines, and what families and doctors should know about palliative care In my years of experience working…

Breaking Down The New CDC Milestones With Dr. Paul Lipkin

Pediatric development expert on what the new CDC milestones mean for you  In February of 2022, the Centers for Disease Control (CDC) and American Academy…

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