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Caring for Our Caregivers: What we heard in the 2021 Needs Assessment

Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…

We’re Here For You On #RareDiseaseDay: A Resource Roundup

Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…

Second Annual Seizure Action Plan Awareness Week: February 14-21, 2022

From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…

Supporting Careers in Child Neurology: Scholarships Now Open

We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…

What it Takes to Become a Peer Support Specialist

When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…

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