Lexie Digby

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Lexie Digby
Dec. 1-7 is Infantile Spasms Awareness Week

Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in…

Public Health Message: Surge of Respiratory Illnesses

Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a month away, they are already…

Amy Brin on the Value of Nonprofit Collaboration

CNF Executive Director and CEO Amy Brin was recently featured on the Successful Nonprofits podcast to talk about CNF’s unique ability to be a convening…

The Value of Family Support When Living with Dravet Syndrome

Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in 2006 when she was nearly…

Taking Our Mission to D.C.: Why and How We Advocate For #NeuroHeros

Did you know 1 in 5 children in the US live with a neurologic condition, many of which require life-long management of physical, cognitive, emotional,…

Staying ahead of a progressing disease: How Jodie and Luke Bolt are Neuro Heroes

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child Neurology…

Finding Courage Through Community: How Ereka Williams is a #NeuroHero

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

What is a #NeuroHero?

Reflections from Executive Director & CEO Amy Brin  As we prepare for Child Neurology Awareness Day on Oct. 29, a day to celebrate the strength…

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