2019 Scholarship Winners

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Part of CNF’s mission to build relationships and support community members who are dedicated to improving the lives of children living with neurological conditions, is supporting the next generation of child neurologists. Every year, the Child Neurology Foundation awards the Pediatric Epilepsy Research Foundation’s Shields (PERF) Shields and PERF Elterman Research Grants,…  Read More

Getting to know the CNF team – Altaira Northe

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Every week, we’re sharing an interview with someone from the CNF team. This week, get to know Altaira Northe, CNF’s Director of Communications and Storytelling. What’s your role at CNF? I’m the Contract Director of Communications and Storytelling. One of my main goals here at CNF is to enable members…  Read More

Getting to know the CNF team – Cyndi Wright

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Each week, we’re sharing a profile from a member of the CNF team. This week, meet Cyndi Wright, who manages CNF’s Strategic Operations.   What’s your role at CNF?  I work as a Contractor on CNF Strategic Operations.  Currently, I’m managing the annual education initiative, which for 2019 is managing Disruptive…  Read More

Global Genes Patient Advocacy Summit Recap

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On September 17, the Child Neurology Foundation Team went to The Global Genes Patient Advocacy Summit in San Diego, California. As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge…  Read More

Getting to know the CNF team – Phillip Pearl, MD

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Every week, we’re sharing an interview with the a member of the CNF community, starting with our staff, Board of Directors. This week, get to know Phillip Pearl, MD, a member of CNF’s Board. Tell us what you do in your day job. Direct the epilepsy program (clinical, research, educational/fellowship,…  Read More

Getting to Know the CNF Team – Katherine Barnhart

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Meet Katherine Barnhart. What’s your role at CNF? Executive Assistant to Amy Brin, Executive Director/CEO of CNF How do you spend your time when you’re not at work? I spend my free time with my 9 1/2 moth old son, Evan. I try to keep us active. So you will…  Read More

Getting to Know the CNF Team – Rebecca Penfold-Murray

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This week on the CNF blog, meet team member Rebecca Penfold-Murray. What’s your role at CNF? I am the Director of Collaborative Programs and Initiatives. My team and I are responsible for keeping CNF’s existing programs and relationships strong, and growing new programs that How do you spend your time…  Read More

2019 Peer Support Best Practices Workshop

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Save the date! On December 5th in Baltimore, Maryland, CNF will be hosting our second annual Peer Support Best Practices Workshop (formerly Peer Support Bootcamp). The workshop’s goal is for attendees to learn how to build, expand and promote peer support programs . We are fortunate to be co-hosting this endeavor…  Read More

Getting to know the CNF Team – Stephen M. Peters

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This week on the blog, we’re getting to know one of the members of our Board of Directors. Meet Stephen Peters. Tell us what you do in your day job I’m a Partner at Brookfield Financial, a large Global Investment Bank.  I am responsible for managing the western U.S. where…  Read More