Stories

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The Cute Syndrome Foundation – Food Clubs

In June, the Cute Syndrome Foundation received a Rising Tides Grant from the Child Neurology Foundation to lift a social and emotional support program off…

The Cute Syndrome Foundation – Book Club

Here are some highlights of the book club supported by the RISING Tides grant, with details and photographs provided by the Cute Syndrome Foundation.

COVID-19 Stories

A selection of stories from families in our community during the pandemic.

On Transitioning Into Adult Care

Building new relationships can be as challenging as it is rewarding. Many families face uncertainty when connecting with a new neurologist that will help their…

A RARE conversation: RARECast podcast interview with Amy Brin

Just before the holidays, our own Amy Brin was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast…

CNF Transition of Care Video Production

In late July, CNF worked with a director and film crew to shoot videos that would illuminate the complexity of transition of care for young…

Carrie Fisher’s Last Advice, “As Your Bipolar Sister”

Star Wars fans around the world were saddened to hear about the passing of Carrie Fisher. Along with being a great actress, she was also a…

Special Needs Ice Competition

Outside of Chicago a group of special needs athletes were participating in the 2017 Champions Special Needs Skating Competition. For the participants, it’s not just about…

Child With Special Needs Gets New Service Dog

Everyone has had a Christmas wish to wake up on Christmas morning with a new pet. For Cruz Smith, that wish was for a dog.…

Teacher Uses Puppetry and Filmmaking to Engage Students With Neurological Differences

Felt. Googly eyes. Socks. Pipe cleaners. Imagination. Sound familiar yet? Puppets! Patrick Waters, a teacher of special needs students, found that using these fun little…

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