The CNF team has put together a list of easy to access resources to help support specific needs that you and your family might have during this time of physical distancing.
Management of Disruptive or Harmful Behavior at Home
- Behavioral Health Resources for Coronavirus from On Our Sleeves
Podcasts and other resources helping parents with their kids’ routines, managing difficult conversations, and adjusting to the new normal
- Daily Facebook Live Support for Parents during the Coronavirus from the Child Mind Institute
“Like” Child Mind Institute on Facebook to watch these live conversations about managing children’s disruptive or harmful behavior at 10:00am and 4:30pm daily. The conversations are recorded to watch on-demand, too.
- Giving Kids with ADHD Support and Structure during the Coronavirus Crisis from the Child Mind Institute
Short article about managing expectations and supporting children with ADHD during COVID-related isolation
Resilience
- Advice for Caregivers of Children with Disabilities in the Era of COVID-19 from the American Psychological Association
Brief article summarizing researchers’ ideas to help families, caregivers, and children cope during COVID-19
- The Mighty’s Online Events for People Stuck Inside During Coronavirus
Isolated, but not alone! Build community with other families and caregivers stuck a home through fun activities and workshops.
Siblings of Youth with Neurologic Disorders during Self Isolation
- When Siblings Won’t Stop Fighting from the Child Mind Institute
Practical solutions for keeping the peace between siblings at home during self-isolation
- Supporting Teenagers and Young Adults During the Coronavirus Crisis
Strategies for providing developmentally appropriate support for teenagers and young adults during COVID-19
Self-Care for Parents and Caregivers
- Stress & Coping from COVID-19-Related Stress from the CDC
Tools and strategies for reducing COVID-19-related stress in your life
- Care for Your Coronavirus Anxiety Toolkit from Shine
Meditations, mantras, and articles helping you face the pandemic-related crisis holistically
- Feeling Overwhelmed with Parenting Demands? From the American Academy of Pediatrics
Strategies to help you manage expectations and practice self-care while effectively parenting - A Guide for Understanding Screen Addictions and Engaging in Responsible Digital Use
The impact of COVID-19 on screen time use and digital behaviors, with tips and advice for tackling device addiction, managing gadget and internet use, and creating healthier digital habits.
Telehealth
- Virtual Town Hall: Accessibility to Care during COVID-19
Register for this Virtual Town Hall that will help you understand how to continue receiving care through telehealth during COVID-19
- Telehealth Implementation for Providers from the American Academy of Neurology
Guidelines for telehealth implementation for neurologists
Therapy Decisions and Supports
- Shine & Sing Along: Music Therapy Groups for Medically Fragile Children Ages 0-8 from Resounding Joy!
Music therapy via Zoom Monday – Friday at 1:00-1:45pm ET to join other families for a music therapy session for children with special needs. Must request to join this private Facebook Group to receive daily password for online security purposes.
- Recommended Guidance for Preventing Spread of COVID-19 in the Medically Fragile Child from the Illinois Department of Health
Factsheet for preventing the spread of COVID-19 when healthcare providers are in your home
K-12 Education Resources
- Educating Your Children at Home Webinar from the Tuberous Sclerosis Alliance Part I and Part II
Webinar with resources to support your children’s education through these uncertain times
- K-12 Resources from District Administration
List of resources to help you continue to support your children’s education at home - Questions and Answers on Providing Services to Children with Disabilities during the Coronavirus Disease 2019 Outbreak from the Department of Education
Information about receiving early intervention services and special education services during COVID-19
General Information about COVID-19 for Medically Fragile Children and their Caregivers
- COVID-19: Information for Families of Children and Youth with Special Health Care Needs from the American Academy of Pediatrics
Brief article with resources for children with chronic conditions, disabilities, and medically complex conditions related to safety, therapy, and resilience
- A Rare Response: Addressing the COVID-19 Pandemic
Webinar with strategies for coping, staying healthy, and reducing anxiety for patients with rare disorders and their caregivers
- Protecting Medically Complex and/or Immune-Suppressed Children with Epilepsy from COVID-19
Webinar with information for families who have children with Developmental and Epileptic Encephalopathies (DEEs) during COVID-19
- COVID-19 and Epilepsy: Ask the Experts from CURE
Webinar with information for parents and caregivers of children with epilepsy during COVID-19
- Autism and the Coronavirus: Resources for Families from the Child Mind Institute
Resource page with video daily tips, remote consultations, and articles providing strategies for parenting children with Autism Spectrum Disorders during COVID-19