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Meet the CNF Team!

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If you’re subscribed to CNF’s newsletter, then you already know that in early 2019 we expanded the CNF team. In January, we were pleased to add five incredible team members to work on CNF’s programs, funding, and communications. We’re excited to announce that at the end of April, we’ll also be adding two more team members.

So what does this mean for our community? It means that over the year to come, we’ll have more capacity to convene in the child neurology community, share stories and knowledge, and run programs for caregivers and families, as well as more resources to raise funds to support this community. New team members also bring fresh ideas, energy, and skills to our team to better serve the child neurology community as a whole.

Please join us in welcoming the new CNF team (and also reacquainting yourselves with a few CNF veterans)!

Amy Brin, Executive Director & CEO
Amy has been working on behalf of children with special needs and their families for nearly two decades. Throughout her career, she has enjoyed marrying her clinical and executive experience in working to improve the lives of children and their families. Her success has been built on the strong ability to form trusted and collaborative partnerships, strategic risk-taking, and personal transparency. Brin was named Executive Director of CNF in 2015; under which, it has experienced unprecedented growth in strategic partnerships, programming, and overall operations.

Prior to joining CNF, Brin led the development of and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She has served as a national consultant regarding building systems of care for children and youth living with special healthcare needs, with specific interest in program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. She is a published author, and award-winning speaker. Brin is a Board-certified pediatric advanced practice nurse.

 

Katherine Barnhart, Executive Administration Assistant

Ms. Barnhart is a recent transplant to the Kentucky area. Before making her adventure to Kentucky, Katherine was in the financial field for 9 years where she specialized in retirement portfolios and disability insurance. Katherine also spent two years running a Holistic Medical Center where she found her passion for helping others. One of her greatest passions in life is helping others realize the potential they have inside to achieve their goals. Katherine has a Bachelors in Science with a specialty in Rehabilitative Science and Wellness Counseling.

In her spare time you will find Katherine enjoying time with her son, Evan. One of the best things about being a parent is the ability experience life again through your child’s eyes.

 

Priscilla Burton, CNF FRIENDraiser
Priscilla brings more than 20 years of experience guiding nonprofits to achieve sustainable revenue growth and increased impact. An accomplished, insightful and innovative leader, Burton’s extensive experience in nonprofit leadership and strategy includes serving as CEO of the Epilepsy Therapy Project (ETP), where she led the organization through a pivotal year that culminated in its successful merger with the Epilepsy Foundation of America. Prior to ETP, Burton led fundraising efforts for the high profile, Proposition 71, California’s Stem Cell Research and Cures Initiative and prior to Prop 71 was the founding vice president of development for CaPCURE: The Association for the Cure of Cancer of the Prostate (now the Prostate Cancer Foundation), where she built the new nonprofit’s development strategy from the ground up. Before launching Burton Strategies, she co-founded Evolution Partners, Inc, a full-service boutique firm specializing in strategic development planning and fundraising for nonprofits and select political efforts. Burton’s strong background in political campaign fundraising and management includes an exceptional track record in leading highly successful fundraising initiatives for national senatorial campaigns, including US Senator Dianne Feinstein. Burton holds a bachelor’s degree in Law and Society from the University of California, Santa Barbara. She resides in Santa Monica, California.

 

Paul Cooper, Convening & Facilitating Methodologist
Paul has devoted his 25-year consulting career to helping clients improve collaboration

and internal communication. He helps groups build new awareness and mobilize energy for change as a facilitator, executive coach, organizational development consultant, and qualitative researcher. His book, Change Agent Nation: Create Change in Your Neighborhood…or Across the World was published in 2019 and is available on Amazon.

 

 

Allyson Eyermann, Operations Administrator 
Allyson supports day-to-day operations, the Board of Directors, and all collaborative programs, projects and initiatives at CNF. She has a diverse background in administration in the corporate, education/research and non-profit sectors, joining CNF from the University of Kentucky College of Pharmacy Research Office. Allyson resides in Lexington, Kentucky with her husband, Jason, their son, Leo, and dog, Noble. Allyson firmly believes that the best things in life are not things. Her love for her own family drives her professionally and passionately to serve the patients and families in the child neurology community.

 

Katie Hentges, Manager of Education & Awareness Building

In college, Katie received degrees in communication and psychology and the majority of her career experience is in the clinical quality improvement space. Previously, she worked for the American Academy of Neurology running operations for the Axon Registry, the largest neurologic specific clinical data registry in the world. While working for the AAN she focused on implementation of quality measures, establishing quality improvement projects, vendor management, and EMR related education initiatives. Katie is a firm believer that any food can be improved with chocolate or ranch and her ideal day includes spending time with Wayne (her cat) and Sam (her husband).

 

Altaira Northe, Contract Director of Communications & Storytelling
Altaira is a storytelling expert with a passion for public health. As someone who’s worked with strong research-based pediatric health organizations like the Hospital for Sick Children, and BC Children’s Hospital, as well in the creative sector with groups like CreativeMornings, Altaira looks forward to bringing CNF into the new frontier of health communications. A frontier where personal storytelling, and evidence-based health information live hand-in-hand. She lives in Vancouver, Canada with her partner Mike, and their cats Thomas and Rosemary. In true Pacific Northwest fashion, most weekends you can find her hiking through the mountains, or spending time on the sea.

 

Rebecca Penfold-Murray,
Director, Collaborative Programs & Initiatives
Rebecca has spent her working in nonprofit settings dedicated to youth services, patient advocacy, public affairs, government relations. For the last nine years, Rebecca has worked to improve patient care by integrating patients and patient representatives as members of the research teams in clinical research design, guideline and measure development, and outcomes measurement, ensuring that patients’ voices are not only heard, but are the directors of the research done to improve lives and create new therapies. Rebecca lives in Saint Paul, Minnesota, with her husband, Michael Murray, their four children, Teagan, James, Margaret, and Peter, and two extremely goofy pug mixes, Betty and Stanley.

 

Cyndi Wright, Contract Strategic Initiatives
Cyndi is a passionate advocate for children with neurologic disorders. In addition to consulting for CNF, she works as a special education advocate. Cyndi enjoys positions that capitalize on her ability to convert complex challenges into succinct and effective solutions. Recent positions include managing the CNF SUDEP Education Initiative and the Epilepsy Foundation SUDEP Institute Director.