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Rare Neuro Disease: Collection of Reports

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Last month, CNF noted our commitment to children living with rare genetic conditions that have a neurologic component and introduced the RareChildNeuro 75% Factof the over 3,000 genetic conditions affect the neurologic system, 75% affect children. 

Specific to this community, we now share the Rare Neurological Disease Special Report, a compendium of articles and information covering a range of rare neurological diseases from Neurology Reviews – a member of CNF’s 2018 Corporate Advisory Board.


Select articles include:

  • Pediatric Spasticity* [by CNF President, Ann Tilton, MD]
  • Update on the Treatment of Batten Disease
  • CBD’s Long-Term Safety and Efficacy in Treatment-Resistant Epilepsy
  • Refractory Epilepsy Screening Tool for Lennox-Gastaut Syndrome
  • New Therapies and Testing for Rare Neuromuscular Diseases

 *We thank Ipsen, a member of CNF’s 2018 Corporate Advisory Board, for their collaboration on this article.