Posts Tagged ‘SUDEP’

CHICA’s Next Steps

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In a recent blog post, we talked about the importance of having conversations about SUDEP, and shared some resources to help facilitate this conversation. In 2018, CNF worked with Digital Health Solutions LLC and Greenwich Biosciences Inc. to create a SUDEP module for the Child Health Improvement through Computer Automation (CHICA)…  Read More

Raising SUDEP Awareness – AES Position Statement

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In 2019, we saw an increase in conversations about SUDEP (Sudden Unexpected Death in Epilepsy) on mainstream media channels. Unfortunately, much of this attention was in response to the tragic death of Cameron Boyce, star of Disney Channel shows “Descendants” and “Jessie”. SUDEP, or Sudden Unexpected Death in Epilepsy, takes…  Read More

IT startup launches software to encourage physician-family conversations about epilepsy

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NEWS RELEASE INDIANAPOLIS — Physicians can now be alerted to pediatric patients’ risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care visits by using software developed and commercialized by a researcher-entrepreneur at the Indiana University School of Medicine. Digital Health Solutions LLC, founded by Dr. Stephen…  Read More