What is the Transitions Project Advisory Committee?

What is the Transitions Project Advisory Committee?

The Transitions Project Advisory Committee is a multi-stakeholder group of adult neurology providers, pediatric neurology providers, social workers and therapists, advocates, and caregivers who lead CNF’s projects in Transitions of Care. For more information on TPAC or if you are interested in supporting these efforts, please contact Jessica Nickrand 

The TPAC was initially charged with developing strategies for dissemination of the consensus statement and projects reflecting the 8 Common Principles identified in the statement. In collaboration with clinicians, patients, families, and advocacy organizations, TPAC works to cultivating necessary changes in practice, policy, and the neurology community culture for successful transition to occur. TPAC believes it is only through true collaborative partnerships—with precise intent—that such meaningful change is possible in the neurology community. 

Below you will find videos of TPAC members explaining the challenges of transitions of care for our community and why it is so important for CNF to meet those challenges. 

Child neurologist and TPAC Chair, Ann Tilton, discusses:
“How do you describe transition?”
“Why is transition challenging for patients?”
“What do you tell adult neurologists who are hesitant to accept your patients?”
“Why is transition important to both child and adult neurologists?”
“Why is transition of care one of the CNF’s top advocacy priorities?”
“Why did CNF develop a consensus statement on transition?”

Child neurologist Lawrence Brown discusses:
“Why do certain neurologic conditions pose challenges for transition?”
“How does transition to adult care offer a new perspective on medical care for the patient?
“Why is transition of care one of the CNF’s top advocacy priorities?”

Adult neurologist, Cynthia Comella, discusses:
“As an adult neurologist, what’s your role in making transition successful?”
“Why are some adult neurologists hesitant to receive young adults living with neurologic conditions from childhood?”
“How do you prepare for patients who are transitioning?”
“What are your thoughts on transition of care as one of the CNF’s top advocacy priorities?”

Nurse, Rebecca Schultz, and social worker, Symme Trachtenberg, discuss:
“Why is transition such an important time for adolescents?”
“What concerns do families typically express?”
“What advice do you give to parents?”
“What types of support does the CNF offer for transition?”