Board of Directors

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Board of Directors

Pediatric neurologists make up at least 51% of our Board Of Directors and join other Directors that include advocacy organization leaders and parents of children with neurologic disorders.

Officers


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Anup Patel, MD, 
President

Anup Patel, MD, is board certified in neurology with special qualifications in child neurology and board certified in epilepsy and clinical neurophysiology. He is a medical director of clinical outcomes, accreditation, and regulatory compliance at Nationwide Children’s Hospital and the director of the complex epilepsy clinic. He is also an associate professor of neurology and pediatrics the Ohio State University College of Medicine.

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Anup Patel, MD is board certified in neurology with special qualifications in child neurology.  In addition, he is board certified in epilepsy and clinical neurophysiology.  He is a medical director of clinical outcomes, accreditation, and regulatory compliance at Nationwide Children’s Hospital and is the director of the complex epilepsy clinic. He is an associate professor for neurology and pediatrics at Nationwide Children’s Hospital and The Ohio State University College of Medicine in Columbus, Ohio.  He has journal publications and clinical research interests in the field of pediatric epilepsy, health care utilization, learning healthcare systems, and quality improvement.

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Stephen Peters
President-Elect

Stephen Peters works as a national commercial real estate broker and is the proud father of three children.  Over the past fifteen years, Stephen has worked to help children since his second daughter became a patient at the Pediatric Epilepsy Program at UCLA. While Kyra was a patient there, Stephen co-founded and served as the Vice-President of the Board of Directors for the Pediatric Epilepsy Project.

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Stephen Peters works as a national commercial real estate broker and is the proud father of three children.  Over the past fifteen years, Stephen has worked to help children since his second daughter became a patient at the Pediatric Epilepsy Program at UCLA.  While Kyra was a patient there, Stephen co-founded and served as the Vice-President of the Board of Directors for the Pediatric Epilepsy Project, which raised monies for children impacted by neurological issues.  Additionally, he serves on the Board of Directors for PCDA, the Professional Child Development Associates, which helps children and families with Autism.

Believing community activity and engagement is crucial to creating happy people, you can find Stephen coaching Little League or YMCA basketball most seasons in South Pasadena CA, and even wagering on a golf match with his buddies when the opportunity arises.

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Scott Pomeroy, MD, PhD,
Past President

Dr. Pomeroy is currently the Chair of the Department of Neurology and Neurologist-in-Chief of Boston Children’s Hospital. He is one of the world’s leading experts on pediatric brain cancer. His group was first to identify genetic markers that predict treatment response of medulloblastomas, the most common malignant brain tumor in children, he was among the first to apply genomic methods to studying childhood cancer.

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Dr. Pomeroy is currently the Chair of the Department of Neurology and Neurologist-in-Chief of Boston Children’s Hospital – the highest ranked child neurology department in the country. He additionally serves as the Bronson Crothers Professor of Neurology at Harvard Medical School, and the Director of the Eunice K. Shriver National Institutes of Child Health and Human Development funded Intellectual and Developmental Disabilities Research Center of Boston Children’s Hospital and Harvard Medical School. Dr. Pomeroy is one of the world’s leading experts on pediatric brain cancer.  His group was first to identify genetic markers that predict treatment response of medulloblastomas, the most common malignant brain tumor in children; he was among the first to apply genomic methods to studying childhood cancer.  The results have been nothing short of revolutionary; brain tumors are now being classified by molecular features which define mechanisms of tumorigenesis and predict clinical outcome with much higher precision than clinical criteria.

Dr. Pomeroy has won numerous awards for his research and clinical care of children with embryonal brain tumors including the Sidney Carter Award and the Daniel Drake Medal, and he was the first recipient of the Compassionate Caregiver Award of the Kenneth Schwartz Center, which honors a Massachusetts caregiver who displays extraordinary compassion in caring for patients and their families. In 2017, Dr. Pomeroy was appointed to the National Academy of Medicine.

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Shaun Hussain, MD, MS,
Secretary

Dr. Hussain is an Assistant Professor of Pediatrics at UCLA and he is the director of the UCLA Infantile Spasms Program. His clinical practice is dedicated to infantile spasms and other forms of epileptic encephalopathy. With the recognition that infantile spasms are under-recognized and frequently misdiagnosed—with often deleterious consequences—Dr. Hussain leads a web-based effort to increase public understanding of infantile spasms.

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Dr. Hussain is an Assistant Professor of Pediatrics at UCLA and he is the director of the UCLA Infantile Spasms Program. His clinical practice is dedicated to infantile spasms and other forms of epileptic encephalopathy. With the recognition that infantile spasms are under-recognized and frequently misdiagnosed—with often deleterious consequences—Dr. Hussain leads a web-based effort (www.InfantileSpasmsProject.org) to increase public understanding of infantile spasms. Although focused on infantile spasms, his research efforts are wide-ranging and include (1) the assessment of novel treatments for infantile spasms, (2) the development of quantitative EEG measures of disease burden to facilitate clinical trials, (3) the evaluation of proposed electrophysiologic and metabolic (PET) biomarkers of epileptogenesis, (4) the critical appraisal of “established” treatments for infantile spasms, and (5) an effort to quantify the magnitude and impact of diagnostic delay in the treatment of infantile spasms. Dr. Hussain received a career development award from the Epilepsy Therapy Project and holds the Elsie and Isaac Fogelman endowed chair in pediatric neurology at UCLA.

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Timothy Engel, CPA,
Treasurer

Timothy has been a leader in financial management of non-profits over the last 35 years. Since 2016, Tim was the CFO for the American Academy of Neurology (AAN) managing a $60 million dollar budget and lead the planning and development of AAN’s corporate office in Minneapolis.   Also, during this period he was the CFO of American Brain Foundation, United Council of Neurologic Subspecialties and provided financial management services to CNF.

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Timothy has been a leader in financial management of non-profits over the last 35 years. Since 2016, Tim was the CFO for the American Academy of Neurology (AAN) managing a $60 million dollar budget and lead the planning and development of AAN’s corporate office in Minneapolis.   Also, during this period he was the CFO of American Brain Foundation, United Council of Neurologic Subspecialties and provided financial management services to CNF. Prior to joining AAN he was the CFO for Public Radio International assisting in the development of various public radio programs including Market Place and The World.  He earned B.A. in accounting from the University of St. Thomas.  Tim retired in 2020 from his active role in managing nonprofits and his position at AAN. He is now residing in northern Minnesota with his spouse and best friend Lori.

Directors


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Sonika Agarwal, MBBS, MD

Initially educated and trained in India, Dr. Agarwal trained in child neurology at Baylor College of Medicine/Texas Children’s Hospital. Dr. Agarwal is currently an Assistant Professor of Neurology at the Perelman School of Medicine at the University of Pennsylvania and Children’s Hospital of Philadelphia (CHOP). Dr. Agarwal has a dual expertise in Maternal Fetal Medicine and Fetal Neonatal Neurology.

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Initially educated and trained in India, Dr. Agarwal trained in child neurology at Baylor College of Medicine/Texas Children’s Hospital. Dr. Agarwal is currently an Assistant Professor of Neurology at the Perelman School of Medicine at the University of Pennsylvania and Children’s Hospital of Philadelphia (CHOP). Dr. Agarwal has a dual expertise in Maternal Fetal Medicine and Fetal Neonatal Neurology.  

She has authored several publications and has a special interest in medical education/mentoring. She has been honored with numerous awards including the Child Neurology Society Outstanding Junior Member Award (2016), Thomas Jefferson Faculty Teaching Award (2018), CHOP Neurology Resident Teaching Award (2020), and the American Academy of Neurology (AAN) 2020 A.B. Baker Teacher Recognition Award. She was an awardee of the AAN Transforming Leaders Program 2021 and is serving on national workgroups.  

As an Associate Editor of JCN/Child Neurology Open, she has developed a series of podcasts in fetal neonatal neurology as a resource for families and medical professionals. Throughout her diverse career path Dr. Agarwal is committed to being an advocate for maternal, fetal, neonatal, and child brain) health and strives to empower parents to partner in the care of their children as they blossom over the years. 

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Julie Gilbert, MBA, CPA

Julie Gilbert is the visionary creator of eight highly successful digital and retail businesses and board director. She is the founder and CEO of PreciouStatus, an award-winning global technology digital mobile communication and marketing company. Julie also founded and leads Wolf Means Business which is recognized globally as the “proven global innovation platform standard” for Fortune 500 companies.

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Julie Gilbert is the visionary creator of eight highly successful digital and retail businesses and board director. She is the founder and CEO of PreciouStatus, an award-winning global technology digital mobile communication and marketing company. Julie also founded and leads Wolf Means Business which is recognized globally as the “proven global innovation platform standard” for Fortune 500 companies. She has engaged consumers in 53 countries innovating new products and services and enabled cultural change management. Formerly, Julie was a senior vice president of enterprise growth and innovation at Best Buy, a Fortune 50 company, where she created, built, and scaled seven companies. Prior to this, Julie was senior manager at Deloitte & Touche, where she developed and implemented nationally two new national businesses as well as led and served many accounts for the firm. Julie serves on the board of Alerus Financial and St. Thomas Richard Schulze School of Entrepreneurship. She has served as a board member of Acupera, the Harvard Kennedy School Women’s Leadership Board, The White House Project, and others. In 2009, she served as a US Ambassador to Egypt for the Susan G. Komen Organization in its historic first entrance into Egypt. Julie’s leadership has been documented in a five year case study by IMD University (Lausanne, Switzerland) and she has been profiled in many media including Harvard Business Review, TIME Magazine, Business Week, Oprah Magazine, and many others. She has received a long list of awards, including: PINK’s “Top 15 Women in Business”; The White House Project’s “Circle of 10 Award”; the Minneapolis/St. Paul Business Journal’s “Minnesota’s Women to Watch” award; the Association for Corporate Growth’s BOLD Entrepreneur award; and the Huffington Post’s “Entrepreneur of the Year” award. Julie earned a B.S. in accounting with high honors and an MBA in strategic management and marketing from the University of Minnesota. Julie is a 2015 Henry Crown Fellow of the Aspen Institute and a member of the Aspen Global Leadership Network.

Carol Macmillan, MD, Department of Pediatrics, Section of Pediatric Neurology, at the University of Chicago Medicine. (Photo by David Christopher)

Carol Macmillan, MD

Dr. Carol Macmillan is a graduate of McMaster University Medical School and completed her residencies in Pediatrics and Pediatric Neurology at the Montreal Children’s Hospital and the Montreal Neurologic Institute. She has been an Associate Professor of Pediatrics at the University of Chicago since 2008 and specializes in the neurologic care of children with epilepsy, developmental delay, autism, and neurogenetic disorders.

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Dr Carol Macmillan is a graduate of McMaster University Medical School and completed her residencies in Pediatrics and Pediatric Neurology at the Montreal Children’s Hospital and the Montreal Neurologic Institute. She has been an Associate Professor of Pediatrics at the University of Chicago since 2008 and specializes in the neurologic care of children with epilepsy, developmental delay, autism, and neurogenetic disorders. She has a particular interest in providing specialty neurologic care to children with complex, lifelong medical conditions, such as those resulting from neurogenetic disorders, abuse, or trauma. Dr. Macmillan’s research interests include autism, epilepsy, and developmental delay.

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John J. Millichap, MD

Dr. Millichap is a private-practice pediatric epileptologist and clinical neurophysiologist at Precision Epilepsy PLLC. His current clinical practice utilizes an innovative telehealth approach to the precision diagnosis and treatment of pediatric epilepsy. Dr. Millichap has over 60 peer-reviewed publications and serves as the Editor of Pediatric Neurology Briefs. Dr. Millichap is an Adjunct Associate Professor of Neurology at Northwestern University.

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Dr. Millichap is a private-practice pediatric epileptologist and clinical neurophysiologist at Precision Epilepsy PLLC. His current clinical practice utilizes an innovative telehealth approach to the precision diagnosis and treatment of pediatric epilepsy. Dr. Millichap has over 60 peer-reviewed publications and serves as the Editor of Pediatric Neurology Briefs. Dr. Millichap is an Adjunct Associate Professor of Neurology at Northwestern University and is involved in the education of trainees and grant-funded clinical research concerning epileptic encephalopathies and epilepsy genetics.  He is involved in multiple clinical trials for novel treatments for rare genetic epilepsies. He advocates for his patients and their families as a member of multiple advisory boards for non-profit foundations for rare genetic epilepsies, as Chair of the Medical Advisory Council for the Epilepsy Foundation of Greater Chicago, and as a member of the Child Neurology Foundation’s Board of Directors.

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Donald Pearl

Mr. Pearl has spent 28 years in the pharmaceutical industry working in positions of increasing responsibility at Allergan, IPSEN Biopharmaceuticals and Deknatel – A Division of Pfizer. His experience has spanned from selling pharmaceuticals, surgical devices and topical skincare, to leading U.S. and international sales and marketing teams, corporate account management, leading reimbursement policy and access teams, and sales operations.

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Donald has spent 28 years in the pharmaceutical industry working in positions of increasing responsibility at Allergan, IPSEN Biopharmaceuticals and Deknatel – A Division of Pfizer. His experience has spanned from selling pharmaceuticals, surgical devices and topical skincare, to leading U.S. and international sales and marketing teams, corporate account management, leading reimbursement policy and access teams, and sales operations. Donald’s has spent approximately 24 years working in Neurology and Physical Rehabilitation medicine and has served on the Corporate Advisory Councils of the Child Neurology Foundation, American Academy of Neurology and American Academy of Physical Medicine and Rehabilitation.

Donald holds a Bachelors degree from Rutgers College and a Certificate in Healthcare Management from New York University.

Donald is a retired military officer.

Donald has served on the Board of the Orange County United Way and is currently on the Foundation Board of the Children’s Specialized Hospital of New Jersey.

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Scott Perry, MD

Dr. Perry (@TheNotoriousEEG) is the Medical Director of Neurology and the Genetic Epilepsy Clinic, as well as co-Director of the Jane and John Justin Neurosciences Center at Cook Children’s Medical Center, Fort Worth, TX. He completed his MD at the University of Mississippi School of Medicine and general pediatrics and child neurology training at Emory University. He completed a Clinical Neurophysiology fellowship at Nicklaus Children’s (formerly Miami Children’s Hospital) before joining Cook Children’s in 2009.

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Dr. Perry (@TheNotoriousEEG) is the Medical Director of Neurology and the Genetic Epilepsy Clinic, as well as co-Director of the Jane and John Justin Neurosciences Center at Cook Children’s Medical Center, Fort Worth, TX. He completed his MD at the University of Mississippi School of Medicine and general pediatrics and child neurology training at Emory University. He completed a Clinical Neurophysiology fellowship at Nicklaus Children’s (formerly Miami Children’s Hospital) before joining Cook Children’s in 2009. His clinical and research interests include the use of epilepsy surgery for the treatment of intractable childhood epilepsy and the evaluation and treatment of genetic epilepsy syndromes. Outside of my clinical and research interests, I serve on a number of local, national, and international committees dedicated to improving the care of childhood onset epilepsy. My free time is often spent with my wife and two daughters- usually at one of their cheer competitions. I enjoy music of all types as well as collecting art, especially pieces related to the blues and my childhood home of the Mississippi Delta.

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Amaris Sánchez-Larragoity, PsyD

Amaris Sánchez-Larragoity, PsyD is a licensed psychologist, specialized in counseling psychology, and oriented towards positive and goal-directed therapeutic approaches. For the last 16 years she has been a strong support professional in the non-profit and community centered industry focusing on managing rare disease, advancing public health in times of crisis, and designing adaptive recreation programs. Dr. Sánchez-Larragoity recently launched AprenSer, an educational resource, directed to action, person-centered, and aimed at the achievement of goals for Spanish speaking families living with rare disease

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Amaris Sánchez-Larragoity, PsyD is a licensed psychologist, specialized in counseling psychology, and oriented towards positive and goal-directed therapeutic approaches. For the last 16 years she has been a strong support professional in the non-profit and community centered industry focusing on managing rare disease, advancing public health in times of crisis, and designing adaptive recreation programs. Dr. Sánchez-Larragoity recently launched AprenSer, an educational resource, directed to action, person-centered, and aimed at the achievement of goals for Spanish speaking families living with rare disease. She is a skilled consultant and experienced bilingual speaker on topics related to self-advocacy, identity development and formation, healthcare transitions, accessible education, and subjective quality of life. She currently works as a school psychologist at Puerto Rico’s Department of Education. Amaris insists she’s solar powered and the sound of beach waves, Pax (a toy poodle), Piola (a shitzu mix), and dark chocolate are all she needs to recharge.  

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Rebecca J. Schultz, Ph.D., APRN, CPNP-PC, FAES

Dr. Schultz is a nurse scientist and pediatric nurse practitioner with over 30 years’ experience providing family-centered care to children with neurologic conditions. She is an Associate Professor at Texas Woman’s University, Nelda C. Stark College of Nursing and Assistant Professor, Section of Pediatric Neurology, Baylor College of Medicine/Texas Children’s Hospital. Dr. Schultz received her PhD in Nursing Science from Texas Woman’s University and Masters in Science and Pediatric Nurse Practitioner from the University of Texas in Galveston.

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Dr. Schultz is a nurse scientist and pediatric nurse practitioner with over 30 years’ experience providing family-centered care to children with neurological conditions. She is an Associate Professor at Texas Woman’s University, Nelda C. Stark College of Nursing in Houston. TX and Assistant Professor, Section of Pediatric Neurology, Baylor College of Medicine/Texas Children’s Hospital. Dr. Schultz received her PhD in Nursing Science from Texas Woman’s University and Masters in Science and Pediatric Nurse Practitioner from the University of Texas in Galveston. Research interests include access to care, acquisition of self-management skills, and transition from pediatric to adult care for youth with neurological disordersShe has lectured widely on issues related to pediatric epilepsy and has authored and co-authored several peer-reviewed articles and book chapters on epilepsy and related topics. She is active in community service and leadership in epilepsy societies on the local and national levels. She served on the National Epilepsy Foundation of America Professional Advisory Board from 2012 to 2020. She is currently an active member of the Epilepsy Foundation-Houston affiliate Professional Advisory Board, the American Academy of Neurology Epilepsy Quality Measure Development Work Group, the Child Neurology Foundation Transition Project Advisory Committee, and the Association of Child Neurology Nurses. Dr. Schultz has won numerous honors and awards for her contributions to the field of epilepsy and clinical care of children with neurological diseases including Fellow in the American Epilepsy Society, Dreifuss Lecturer, Nurse Practitioner Excellence in Child Neurology Nursing Award, and Excellence in Nursing Practice Award. 

Honorary Directors


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W. Donald Shields, MD,
Honorary Director Chair

Donald Shields, MD has devoted three decades to children afflicted with epilepsy. As immediate past Chief of the Division of Pediatric Neurology, David Geffen School of Medicine at the Mattel Children’s Hospital at UCLA, he is one of the world’s foremost experts on pediatric epilepsy. He currently serves as Emeritus Professor of Neurology and Pediatrics at the University of California, Los Angeles. His efforts have established UCLA as one of the world’s leading centers for pediatric epilepsy surgery, treatment and research.

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Donald Shields, MD has devoted three decades to children afflicted with epilepsy. As immediate past Chief of the Division of Pediatric Neurology, David Geffen School of Medicine at the Mattel Children’s Hospital at UCLA, he is one of the world’s foremost experts on pediatric epilepsy. He currently serves as Emeritus Professor of Neurology and Pediatrics at UCLA. As a forceful advocate for the early use of surgery to treat some childhood epilepsy syndromes, his efforts have established UCLA as one of the world’s leading centers for pediatric epilepsy surgery, treatment and research. In 1980, he championed the founding of the UCLA Pediatric Epilepsy Program to fulfill his vision of a comprehensive epilepsy treatment and research center focused on epilepsy in infants and young children.

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Ann Tilton, MD,
Honorary Director of Strategic Partnerships

Dr. Tilton is a Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center in New Orleans, Louisiana.  She is director of the Rehabilitation Center at Children’s Hospital of New Orleans and director of the Comprehensive Spasticity Program.  Special interests include neurorehabilitation, neuromuscular disorders, and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone.

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Dr. Tilton is a Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center in New Orleans, Louisiana.  She is director of the Rehabilitation Center at Children’s Hospital of New Orleans and director of the Comprehensive Spasticity Program.  Special interests include neurorehabilitation, neuromuscular disorders, and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone. Dr. Tilton has served on the executive committee of the Professors of Child Neurology and has been active in the national Child Neurology Society as a councilor, Secretary/Treasurer, and served as President of the organization. She is currently a member of the Board of Directors of the Child Neurology Foundation.  She has been involved in the American Academy of Neurology Board of Directors where she served as the treasurer of the American Academy of Neurology Institute. Residency education is one of her priorities and she served as a member and Vice Chair of the ACGME Neurology Residency Review Committee (RRC). She is currently the Chair of the American Board of Psychiatry and Neurology (ABPN). Her interest in children with disabilities extends to the American Academy of Pediatrics where she served on the national Council for Children with Disabilities. Additionally, she is a certified member of the American Society of Neurorehabilitation and has been active on the executive committee. Dr. Tilton has been board certified by the American Board of Pediatrics, the American Board of Psychiatry and Neurology with Special Qualifications in Child Neurology and the American Board of Psychiatry and Neurology in Clinical Neurophysiology. She has published on numerous topics and has spoken nationally and internationally on child neurology, rehabilitation, and spasticity management.

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Mary Zupanc, MD,
Honorary Director of Philanthropy

Dr. Mary Zupanc is a professor in the Department of Pediatrics and Neurology at the University of California-Irvine.  She is also the Division Chief of Pediatric Neurology UCI/Children’s Hospital of Orange County, the Director of the Pediatric Comprehensive Epilepsy Program, and the Program Director for the UCI Pediatric Neurology Residency Program. Dr. Zupanc is board certified in Pediatrics, Neurology with special competency in Child Neurology, Clinical Neurophysiology, and Epilepsy. She has been a member of the CNS and the AES since the early 1980s.

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Dr. Mary Zupanc is a professor in the Department of Pediatrics and Neurology at the University of California-Irvine (UCI).  She is also the Division Chief of Pediatric Neurology UCI/Children’s Hospital of Orange County, the Director of the Pediatric Comprehensive Epilepsy Program, and the Program Director for the UCI Pediatric Neurology Residency Program.  Dr. Zupanc received her undergraduate degree in Zoology from the University of Wisconsin—Madison in 1974 and her MD degree from UCLA in 1979.  She completed her pediatric residency training at the University of Washington—Seattle/ Harbor –UCLA Medical Center and her pediatric neurology training at the University of Wisconsin-Madison under the mentorship of Dr. Raymond Chun.  Subsequently, her training in epilepsy has been broad, with additional training at the University of Wisconsin, UCLA, and Stanford University.  She was instrumental in the development of comprehensive pediatric epilepsy programs at the Mayo Clinic, Columbia University, the Medical College of Wisconsin, and currently, the University of California-Irvine/Children’s Hospital of Orange County.

Dr. Zupanc is board certified in Pediatrics, Neurology with special competency in Child Neurology, Clinical Neurophysiology, and Epilepsy.  She has published many articles in peer reviewed journals on a variety of topics, including neonatal seizures, infantile spasms, outcomes of pediatric epilepsy surgery, and the efficacy of felbamate in intractable pediatric epilepsy.

Dr. Zupanc has been a member of the Child Neurology Society (CNS) and the American Epilepsy Society (AES) since the early 1980s.  She has had an active role in the CNS and has served on several committees, including Membership, Electronics, and Legislative Committees.  She has also been active in AES, serving as the co-chairperson for the Women with Epilepsy SIG.  She is currently on the Nominating Committee of the AES.  Dr. Zupanc has been a member of the Professors of Child Neurology (PCN) for many years.  In addition, Dr. Zupanc has served on the ABPN Maintenance of Certification Committee and has recently completed her tenure on the United Council of Neurological Subspecialties. Dr. Zupanc has also been a program director for pediatric neurology residency training programs at the University of Wisconsin and the University of California-Irvine.  She is passionate about education and has been given multiple awards for teaching recognition and clinical care.

Ex Officio Directors


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Amy Brin, MSN, MA, PCNS-BC,
Executive Director/CEO,
Child Neurology Foundation

Amy Brin has been working on behalf of children with special needs and their families for nearly two decades. Throughout her career, she has enjoyed marrying her clinical and executive experience. Her success has been built on the strong ability to form trusted and collaborative partnerships, strategic risk-taking, and personal transparency. Brin was named Executive Director of CNF in 2015; under which, it has experienced unprecedented growth in strategic partnerships, programming, and operations.  Brin is a Board-certified pediatric advanced practice nurse.

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Amy Brin has been working on behalf of children with special needs and their families for nearly two decades. Throughout her career, she has enjoyed marrying her clinical and executive experience in working to improve the lives of children and their families. Her success has been built on the strong ability to form trusted and collaborative partnerships, strategic risk-taking, and personal transparency. Brin was named Executive Director of CNF in 2015; under which, it has experienced unprecedented growth in strategic partnerships, programming, and overall operations.

Prior to joining CNF, Brin led the development of and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She has served as a national consultant regarding building systems of care for children and youth living with special healthcare needs, with specific interest in program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. She is a published author, and award-winning speaker. Brin is a Board-certified pediatric advanced practice nurse.

And if you asked Amy what she thinks are important topics to know about her, she’d most likely convey her strong belief that the bottom of a potato chip bag comes far too quickly, creating a better tomorrow for all children is a shared responsibility for this world, and her greatest treasures in this life are her  sons, Ari and Roman.

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Bruce Cohen, MD, FAAN
President-Elect,
Child Neurology Society

Dr. Cohen has been in practice since 1989. He is the director of the NeuroDevelopmental Science Center at Akron Children’s Hospital and is the interim vice president and medical director for the Rebecca D. Considine Research Institute at Akron Children’s. After receiving his medical degree from Albert Einstein College of Medicine, he completed a residency in neurology/child neurology at Columbia-Presbyterian Medical Center, as well as a residency in pediatrics and a fellowship in neuro-oncology at Children’s Hospital of Philadelphia.

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Dr. Cohen has been in practice since 1989. He is the director of the NeuroDevelopmental Science Center at Akron Children’s Hospital and is the interim vice president and medical director for the Rebecca D. Considine Research Institute at Akron Children’s. After receiving his medical degree from Albert Einstein College of Medicine, he completed a residency in neurology/child neurology at Columbia-Presbyterian Medical Center, as well as a residency in pediatrics and a fellowship in neuro-oncology at Children’s Hospital of Philadelphia. Today, he specializes in child neurology, mitochondrial disease, brain tumors, neurofibromatosis, clinical trials and current procedural terminology. Dr. Cohen is board certified in psychiatry and neurology and is a member of multiple professional organizations including Sigma Xi North American Scientific Society, the American Academy of Neurology and the United Mitochondrial Disease Foundation. He has published research and been a featured expert in the media for his extensive work in neurology and mitochondrial disease. Additionally, he is a professor of pediatrics and integrative medical sciences at Northeast Ohio Medical University

In his work to uncover treatments for patients with mitochondrial diseases, Dr. Cohen has become one of the world’s leading experts. Although there are no cures for mitochondrial diseases, Dr. Cohen looks for one every day. As a result of his work and our hospital’s commitment to helping him build an infrastructure for conducting mitochondrial clinical trials, Akron Children’s is one of the country’s leading institutions researching treatments.

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Roger Larson
Executive Director,
Child Neurology Society

Roger Larson graduated from the University of Minnesota with a double-major in American Studies and History. While at the U, he stumbled into a part-time job organizing anti-epileptic drug studies in the Division of Pediatric Neurology (chaired by Ken Swaiman). In time, he parleyed that position into a part-time supporting role with the Child Neurology Society, attending his first CNS Annual Meeting in Halifax in 1988. Twenty-three later, following the Society’s 40th Annual Meeting in Savannah, he accepted a promotion from Associate to Executive Director.

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Roger Larson graduated from the University of Minnesota with a double-major in American Studies and History. While at the U, he stumbled into a part-time job organizing anti-epileptic drug studies in the Division of Pediatric Neurology (chaired by Ken Swaiman). In time, he parleyed that position into a part-time supporting role with the Child Neurology Society, attending his first CNS Annual Meeting in Halifax in 1988. Twenty-three later, following the Society’s 40th Annual Meeting in Savannah, he accepted a promotion from Associate to Executive Director, succeeding the Society’s first ED, Mary Currey. In his five years at the helm, Roger has overseen a dynamic growth in membership and annual meeting attendance, strengthened partnerships with allied neurological organizations (including the Child Neurology Foundation), and cultivated a culture of engagement among members through newly created and enhanced communication tools including CNS Connections, two websites—a primary, public and committee and special interest group “community” website—with a third, on-line learning website in development and set to launch in late September. Roger prides himself on being able to recite the names of every past and present officer of the CNS, is humbled by the memory of having met all but five of them, and honored to be able to call a goodly number of them friends.

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Phillip L. Pearl, MD,
Past President
Child Neurology Society

Phillip L. Pearl, M.D. is Director of Epilepsy and Clinical Neurophysiology at Boston Children’s Hospital and William G. Lennox Chair and Professor of Neurology at Harvard Medical School. Dr. Pearl, originally from Baltimore, attended Johns Hopkins University and Peabody Conservatory of Music and University of Maryland School of Medicine. He took his residency at Baylor College of Medicine in Houston and fellowship at Boston Children’s Hospital. His major research interest is inherited metabolic epilepsies with specific focus on disorders of GABA metabolism.

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Phillip L. Pearl, M.D. is Director of Epilepsy and Clinical Neurophysiology at Boston Children’s Hospital and William G. Lennox Chair and Professor of Neurology at Harvard Medical School.  Dr. Pearl, originally from Baltimore, attended Johns Hopkins University and Peabody Conservatory of Music and University of Maryland School of Medicine.  He took his residency at Baylor College of Medicine in Houston and fellowship at Boston Children’s Hospital.  He was Division Chief of Neurology at Children’s National Medical Center and Professor of Neurology, Pediatrics, and Music at the George Washington University School of Medicine until returning to Boston in January 2014.  His major research interest is inherited metabolic epilepsies with specific focus on disorders of GABA metabolism.  Dr. Pearl is Past President of the Professors of Child Neurology and Past President-Elect of the Child Neurology Society.  He has authored over 170 peer-reviewed manuscripts and over 120 chapters and reviews, written or edited five books including one translated into Chinese and another into Japanese, and produced two musical CDs, the first of which had its debut at Georgetown’s famous Blues Alley and supports the care of indigent children in the capital city, Washington, D.C.

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