Board of Directors

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Board of Directors

Board of Directors

Pediatric neurologists make up at least 51% of our Board and join other Directors that include advocacy organization leaders and parents of children with neurologic disorders.

Officers


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Scott Pomeroy, MD, PhD – President

Dr. Pomeroy is currently the Chair of the Department of Neurology and Neurologist-in-Chief of Boston Children’s Hospital – the highest ranked child neurology department in the country. He additionally serves as the Bronson Crothers Professor of Neurology at Harvard Medical School, and the Director of the Eunice K. Shriver National Institutes of Child Health and Human Development funded Intellectual and Developmental Disabilities Research Center of Boston Children’s Hospital and Harvard Medical School. Dr. Pomeroy is one of the world’s leading experts on pediatric brain cancer.  His group was first to identify genetic markers that predict treatment response of medulloblastomas, the most common malignant brain tumor in children; he was among the first to apply genomic methods to studying childhood cancer.  The results have been nothing short of revolutionary; brain tumors are now being classified by molecular features which define mechanisms of tumorigenesis and predict clinical outcome with much higher precision than clinical criteria.

Dr. Pomeroy has won numerous awards for his research and clinical care of children with embryonal brain tumors including the Sidney Carter Award and the Daniel Drake Medal, and he was the first recipient of the Compassionate Caregiver Award of the Kenneth Schwartz Center, which honors a Massachusetts caregiver who displays extraordinary compassion in caring for patients and their families. In 2017, Dr. Pomeroy was appointed to the National Academy of Medicine.

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Anup Patel, MD – President Elect

Anup Patel, MD is board certified in neurology with special qualifications in child neurology.  In addition, he is board certified in epilepsy and clinical neurophysiology.  He is the section chief of neurology at Nationwide Children’s Hospital and is the director of the complex epilepsy clinic. He is an associate professor for neurology and pediatrics at Nationwide Children’s Hospital and The Ohio State University Medical Center in Columbus, Ohio.  He has journal publications and clinical research interests in the field of pediatric epilepsy, health care utilization, learning healthcare systems, and quality improvement.

Ann Tilton

Ann Tilton, MD  – Past President

Dr. Tilton is a Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center in New Orleans, Louisiana.  She is director of the Rehabilitation Center at Children’s Hospital of New Orleans and director of the Comprehensive Spasticity Program.  Special interests include neurorehabilitation, neuromuscular disorders, and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone. Dr. Tilton has served on the executive committee of the Professors of Child Neurology and has been active in the national Child Neurology Society as a councilor, Secretary/Treasurer, and served as President of the organization. She is currently a member of the Board of Directors of the Child Neurology Foundation.  She has been involved in the American Academy of Neurology Board of Directors where she served as the treasurer of the American Academy of Neurology Institute. Residency education is one of her priorities and she served as a member and Vice Chair of the ACGME Neurology Residency Review Committee (RRC). She is currently the Chair of the American Board of Psychiatry and Neurology (ABPN). Her interest in children with disabilities extends to the American Academy of Pediatrics where she served on the national Council for Children with Disabilities. Additionally, she is a certified member of the American Society of Neurorehabilitation and has been active on the executive committee. Dr. Tilton has been board certified by the American Board of Pediatrics, the American Board of Psychiatry and Neurology with Special Qualifications in Child Neurology and the American Board of Psychiatry and Neurology in Clinical Neurophysiology. She has published on numerous topics and has spoken nationally and internationally on child neurology, rehabilitation, and spasticity management.

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Shaun Hussain, MD, MS – Secretary

Dr. Hussain is an Assistant Professor of Pediatrics at UCLA and he is the director of the UCLA Infantile Spasms Program. His clinical practice is dedicated to infantile spasms and other forms of epileptic encephalopathy. With the recognition that infantile spasms are under-recognized and frequently misdiagnosed—with often deleterious consequences—Dr. Hussain leads a web-based effort (www.InfantileSpasmsProject.org) to increase public understanding of infantile spasms. Although focused on infantile spasms, his research efforts are wide-ranging and include (1) the assessment of novel treatments for infantile spasms, (2) the development of quantitative EEG measures of disease burden to facilitate clinical trials, (3) the evaluation of proposed electrophysiologic and metabolic (PET) biomarkers of epileptogenesis, (4) the critical appraisal of “established” treatments for infantile spasms, and (5) an effort to quantify the magnitude and impact of diagnostic delay in the treatment of infantile spasms. Dr. Hussain received a career development award from the Epilepsy Therapy Project and holds the Elsie and Isaac Fogelman endowed chair in pediatric neurology at UCLA.

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Stephen Peters – Treasurer

Stephen Peters works as a national commercial real estate broker and is the proud father of three children.  Over the past fifteen years, Stephen has worked to help children since his second daughter became a patient at the Pediatric Epilepsy Program at UCLA.  While Kyra was a patient there, Stephen co-founded and served as the Vice-President of the Board of Directors for the Pediatric Epilepsy Project, which raised monies for children impacted by neurological issues.  Additionally, he serves on the Board of Directors for PCDA, the Professional Child Development Associates, which helps children and families with Autism.

Believing community activity and engagement is crucial to creating happy people, you can find Stephen coaching Little League or YMCA basketball most seasons in South Pasadena CA, and even wagering on a golf match with his buddies when the opportunity arises.

Directors


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Sandra Cushner-Weinstein PT, LICSW, LCSW-C

Sandra Cushner-Weinstein has a long history of designing programs, directing health organizations, and establishing non-profit agencies to serve children with chronic health conditions, their families and the community. Sandra is the founder and director of the Brainy Camps Association, a subsidiary of Children’s National serving children with epilepsy, neurofibromatosis, Tourette syndrome, cerebral palsy, autism, down syndrome, hydrocephalus, congenital heart disorders, sickle cell disease and transitioning youth. As a practicing clinician, Sandra provides counseling for children, teens, and parents, promotes community education and conducts leadership training among teens and young adults with chronic health conditions. Her work in the field of epilepsy includes the development of clinics for the Newly Diagnosed, production of an educational DVD: “Coping with Epilepsy: From Seizures to Success” (English and Spanish), and serving on the Institute of Medicine for the Public Health Dimensions of the Epilepsies. Prior to developing Brainy Camps, Sandra was the Director of the Epilepsy Foundation for the National Capital Area, from 1991-1998. During this time, she established the first camp in the metropolitan area for children with epilepsy.  Ms. Cushner-Weinstein also served as the director of the Multiple Sclerosis Society of Santa Clara, California from 1986-1991 where she wrote grants and conducted research, and organized educational conferences, including at Stanford University. From 1981-85, she established and directed Intervention with PACT (Parents & Children Together). a center-based, non-profit organization with an interdisciplinary team of professionals in Baltimore, Maryland. to provide assessments and interventions for children, age birth to six, and their parents. She also created and established the first mainstreamed daycare in Baltimore, MD. From 1978-81, Sandra was awarded a demonstration project grant from the state of Maryland to develop the first Parent Infant Intervention Program in the Department of Pediatrics at the University of Maryland School of Medicine. Prior to this position, Sandra practiced physical therapy and became the Chief Physical Therapist for the United Cerebral Palsy Association.  Ms. Cushner-Weinstein holds licenses in Clinical Social Work and Physical Therapy in several states, where she has served on several committees and Boards. Sandra is a principle investigator with research investigating quality of life, resiliency, adaptive coping and parenting stress in chronic health populations. She has published several papers and currently holds faculty appointments in Pediatrics and Neurology at the George Washington University School of Medicine.pes.

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Timothy Engel, CPA

Timothy has been a leader in financial management of non-profits over the last 35 years. Since 2016, Tim was the CFO for the American Academy of Neurology (AAN) managing a $60 million dollar budget and lead the planning and development of AAN’s corporate office in Minneapolis.   Also, during this period he was the CFO of American Brain Foundation, United Council of Neurologic Subspecialties and provided financial management services to CNF. Prior to joining AAN he was the CFO for Public Radio International assisting in the development of various public radio programs including Market Place and The World.  He earned B.A. in accounting from the University of St. Thomas.  Tim retired in 2020 from his active role in managing nonprofits and his position at AAN. He is now residing in northern Minnesota with his spouse and best friend Lori.

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Julie Gilbert, MBA, CPA

Julie Gilbert is the visionary creator of eight highly successful digital and retail businesses and board director. She is the founder and CEO of PreciouStatus, an award-winning global technology digital mobile communication and marketing company. Julie also founded and leads Wolf Means Business which is recognized globally as the “proven global innovation platform standard” for Fortune 500 companies. She has engaged consumers in 53 countries innovating new products and services and enabled cultural change management. Formerly, Julie was a senior vice president of enterprise growth and innovation at Best Buy, a Fortune 50 company, where she created, built, and scaled seven companies. Prior to this, Julie was senior manager at Deloitte & Touche, where she developed and implemented nationally two new national businesses as well as led and served many accounts for the firm. Julie serves on the board of Alerus Financial and St. Thomas Richard Schulze School of Entrepreneurship. She has served as a board member of Acupera, the Harvard Kennedy School Women’s Leadership Board, The White House Project, and others. In 2009, she served as a US Ambassador to Egypt for the Susan G. Komen Organization in its historic first entrance into Egypt. Julie’s leadership has been documented in a five year case study by IMD University (Lausanne, Switzerland) and she has been profiled in many media including Harvard Business Review, TIME Magazine, Business Week, Oprah Magazine, and many others. She has received a long list of awards, including: PINK’s “Top 15 Women in Business”; The White House Project’s “Circle of 10 Award”; the Minneapolis/St. Paul Business Journal’s “Minnesota’s Women to Watch” award; the Association for Corporate Growth’s BOLD Entrepreneur award; and the Huffington Post’s “Entrepreneur of the Year” award. Julie earned a B.S. in accounting with high honors and an MBA in strategic management and marketing from the University of Minnesota. Julie is a 2015 Henry Crown Fellow of the Aspen Institute and a member of the Aspen Global Leadership Network.

Photos of Faculty and Staf an the Hunter James Kelly Research Institute in the COE

Photograph: Douglas Levere

Thomas J. Langan, MD

After medical school at Brown University and neurology training at Washington University, I have been at SUNY Buffalo since 1988. I am an Associate Professor of Neurology, Pediatrics, and Physiology and Biophysics. My original research used brain cell cultures to study processes related to brain injury. More recently, I have conducted research regarding leuko-dystrophies. I coordinate several research projects in my roles as Clinical Director of the Hunter James Kelly Research Institute, and as President of the New York State Krabbe Disease Consortium, both held since 2013. I have consequently been an NIH-funded principal investigator on both basic science and clinical projects.  Our current efforts include expansion of the World Wide Registry for Krabbe Disease, a database that now has clinical and genetic information for over 180 affected patients, and incorporating this registry into international data-sharing initiatives. We interact extensively with several patient advocacy groups.

To better understand phenotypes, we are conducting long-term follow-up studies of afflicted children, and also examining neuro-developmental parameters before and after therapeutic transplantation.  Our current emphasis is uncovering new biomarkers that may predict onset of symptoms, enabling targeting those pre-symptomatic children who are most likely to respond to leuko-dystrophy therapies.

And since 2008, as a Ski Patroller I have satisfied aspirations for altruism and for enjoyment of winter sports, thereby providing first aid and transportation downhill for skiers injured on Buffalo’s frigid slopes.

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Donald Pearl

Donald has spent 28 years in the pharmaceutical industry working in positions of increasing responsibility at Allergan, IPSEN Biopharmaceuticals and Deknatel – A Division of Pfizer. His experience has spanned from selling pharmaceuticals, surgical devices and topical skincare, to leading U.S. and international sales and marketing teams, corporate account management, leading reimbursement policy and access teams, and sales operations. Donald’s has spent approximately 24 years working in Neurology and Physical Rehabilitation medicine and has served on the Corporate Advisory Councils of the Child Neurology Foundation, American Academy of Neurology and American Academy of Physical Medicine and Rehabilitation.

Donald holds a Bachelors degree from Rutgers College and a Certificate in Healthcare Management from New York University.

Donald is a retired military officer.

Donald has served on the Board of the Orange County United Way and is currently on the Foundation Board of the Children’s Specialized Hospital of New Jersey.

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Phillip L. Pearl, MD

Phillip L. Pearl, M.D. is Director of Epilepsy and Clinical Neurophysiology at Boston Children’s Hospital and William G. Lennox Chair and Professor of Neurology at Harvard Medical School.  Dr. Pearl, originally from Baltimore, attended Johns Hopkins University and Peabody Conservatory of Music and University of Maryland School of Medicine.  He took his residency at Baylor College of Medicine in Houston and fellowship at Boston Children’s Hospital.  He was Division Chief of Neurology at Children’s National Medical Center and Professor of Neurology, Pediatrics, and Music at the George Washington University School of Medicine until returning to Boston in January 2014.  His major research interest is inherited metabolic epilepsies with specific focus on disorders of GABA metabolism.  Dr. Pearl is Past President of the Professors of Child Neurology and Past President-Elect of the Child Neurology Society.  He has authored over 170 peer-reviewed manuscripts and over 120 chapters and reviews, written or edited five books including one translated into Chinese and another into Japanese, and produced two musical CDs, the first of which had its debut at Georgetown’s famous Blues Alley and supports the care of indigent children in the capital city, Washington, D.C.

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Scott Perry, MD

Dr. Perry (@TheNotoriousEEG) is the Medical Director of Neurology and the Genetic Epilepsy Clinic, as well as co-Director of the Jane and John Justin Neurosciences Center at Cook Children’s Medical Center, Fort Worth, TX. He completed his MD at the University of Mississippi School of Medicine and general pediatrics and child neurology training at Emory University. He completed a Clinical Neurophysiology fellowship at Nicklaus Children’s (formerly Miami Children’s Hospital) before joining Cook Children’s in 2009. His clinical and research interests include the use of epilepsy surgery for the treatment of intractable childhood epilepsy and the evaluation and treatment of genetic epilepsy syndromes. Outside of my clinical and research interests, I serve on a number of local, national, and international committees dedicated to improving the care of childhood onset epilepsy. My free time is often spent with my wife and two daughters- usually at one of their cheer competitions. I enjoy music of all types as well as collecting art, especially pieces related to the blues and my childhood home of the Mississippi Delta.

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W. (Donald) Shields, MD – Honorary Director

Donald Shields, MD has devoted three decades to children afflicted with epilepsy. As immediate past Chief of the Division of Pediatric Neurology, David Geffen School of Medicine at the Mattel Children’s Hospital at UCLA, he is one of the world’s foremost experts on pediatric epilepsy. He currently serves as Emeritus Professor of Neurology and Pediatrics at UCLA. As a forceful advocate for the early use of surgery to treat some childhood epilepsy syndromes, his efforts have established UCLA as one of the world’s leading centers for pediatric epilepsy surgery, treatment and research. In. 1980, he championed the founding of the UCLA Pediatric Epilepsy Program to fulfill his vision of a comprehensive epilepsy treatment and research center focused on epilepsy in infants and young children.

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Sue Yudovin, RN, MN, CPNP

Sue Yudovin is a pediatric nurse practitioner at UCLA Mattel Children’s Hospital, in Los Angeles. She coordinates the pediatric epilepsy surgery program as well as practices in the BrainSPORT concussion/TBI program. She sees patients in clinic with concussions and participates in educational events for youth athletes about concussion prevention and, “If in doubt, sit it out.”

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Mary Zupanc, MD

Dr. Mary Zupanc is a professor in the Department of Pediatrics and Neurology at the University of California-Irvine (UCI).  She is also the Division Chief of Pediatric Neurology UCI/Children’s Hospital of Orange County, the Director of the Pediatric Comprehensive Epilepsy Program, and the Program Director for the UCI Pediatric Neurology Residency Program.  Dr. Zupanc received her undergraduate degree in Zoology from the University of Wisconsin—Madison in 1974 and her MD degree from UCLA in 1979.  She completed her pediatric residency training at the University of Washington—Seattle/ Harbor –UCLA Medical Center and her pediatric neurology training at the University of Wisconsin-Madison under the mentorship of Dr. Raymond Chun.  Subsequently, her training in epilepsy has been broad, with additional training at the University of Wisconsin, UCLA, and Stanford University.  She was instrumental in the development of comprehensive pediatric epilepsy programs at the Mayo Clinic, Columbia University, the Medical College of Wisconsin, and currently, the University of California-Irvine/Children’s Hospital of Orange County.

Dr. Zupanc is board certified in Pediatrics, Neurology with special competency in Child Neurology, Clinical Neurophysiology, and Epilepsy.  She has published many articles in peer reviewed journals on a variety of topics, including neonatal seizures, infantile spasms, outcomes of pediatric epilepsy surgery, and the efficacy of felbamate in intractable pediatric epilepsy.

Dr. Zupanc has been a member of the Child Neurology Society (CNS) and the American Epilepsy Society (AES) since the early 1980s.  She has had an active role in the CNS and has served on several committees, including Membership, Electronics, and Legislative Committees.  She has also been active in AES, serving as the co-chairperson for the Women with Epilepsy SIG.  She is currently on the Nominating Committee of the AES.  Dr. Zupanc has been a member of the Professors of Child Neurology (PCN) for many years.  In addition, Dr. Zupanc has served on the ABPN Maintenance of Certification Committee and has recently completed her tenure on the United Council of Neurological Subspecialties. Dr. Zupanc has also been a program director for pediatric neurology residency training programs at the University of Wisconsin and the University of California-Irvine.  She is passionate about education and has been given multiple awards for teaching recognition and clinical care.

Ex Officio Director –Voting


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Bruce Cohen, MD, FAAN
President-Elect, Child Neurology Society

Dr. Cohen has been in practice since 1989. He is the director of the NeuroDevelopmental Science Center at Akron Children’s Hospital and is the interim vice president and medical director for the Rebecca D. Considine Research Institute at Akron Children’s. After receiving his medical degree from Albert Einstein College of Medicine, he completed a residency in neurology/child neurology at Columbia-Presbyterian Medical Center, as well as a residency in pediatrics and a fellowship in neuro-oncology at Children’s Hospital of Philadelphia. Today, he specializes in child neurology, mitochondrial disease, brain tumors, neurofibromatosis, clinical trials and current procedural terminology. Dr. Cohen is board certified in psychiatry and neurology and is a member of multiple professional organizations including Sigma Xi North American Scientific Society, the American Academy of Neurology and the United Mitochondrial Disease Foundation. He has published research and been a featured expert in the media for his extensive work in neurology and mitochondrial disease. Additionally, he is a professor of pediatrics and integrative medical sciences at Northeast Ohio Medical University

In his work to uncover treatments for patients with mitochondrial diseases, Dr. Cohen has become one of the world’s leading experts. Although there are no cures for mitochondrial diseases, Dr. Cohen looks for one every day. As a result of his work and our hospital’s commitment to helping him build an infrastructure for conducting mitochondrial clinical trials, Akron Children’s is one of the country’s leading institutions researching treatments.

Ex Officio Directors – Non-voting


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Roger Larson
Executive Director, Child Neurology Society

Roger Larson graduated from the University of Minnesota with a double-major in American Studies and History. While at the U, he stumbled into a part-time job organizing anti-epileptic drug studies in the Division of Pediatric Neurology (chaired by Ken Swaiman). In time, he parleyed that position into a part-time supporting role with the Child Neurology Society, attending his first CNS Annual Meeting in Halifax in 1988. Twenty-three later, following the Society’s 40th Annual Meeting in Savannah, he accepted a promotion from Associate to Executive Director, succeeding the Society’s first ED, Mary Currey. In his five years at the helm, Roger has overseen a dynamic growth in membership and annual meeting attendance, strengthened partnerships with allied neurological organizations (including the Child Neurology Foundation), and cultivated a culture of engagement among members through newly created and enhanced communication tools including CNS Connections, two websites—a primary, public and committee and special interest group “community” website—with a third, on-line learning website in development and set to launch in late September. Roger prides himself on being able to recite the names of every past and present officer of the CNS, is humbled by the memory of having met all but five of them, and honored to be able to call a goodly number of them friends.

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Amy Brin, MSN, MA, PCNS-BC
Executive Director/CEO, Child Neurology Foundation

Amy Brin has been working on behalf of children with special needs and their families for nearly two decades. Throughout her career, she has enjoyed marrying her clinical and executive experience in working to improve the lives of children and their families. Her success has been built on the strong ability to form trusted and collaborative partnerships, strategic risk-taking, and personal transparency. Brin was named Executive Director of CNF in 2015; under which, it has experienced unprecedented growth in strategic partnerships, programming, and overall operations.

Prior to joining CNF, Brin led the development of and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She has served as a national consultant regarding building systems of care for children and youth living with special healthcare needs, with specific interest in program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. She is a published author, and award-winning speaker. Brin is a Board-certified pediatric advanced practice nurse.

And if you asked Amy what she thinks are important topics to know about her, she’d most likely convey her strong belief that the bottom of a potato chip bag comes far too quickly, creating a better tomorrow for all children is a shared responsibility for this world, and her greatest treasures in this life are her  sons, Ari and Roman.

Financial Statements

FY2019  Child Neurology Foundation IRS 990 | FY2018 Child Neurology Foundation IRS 990 | FY2017 Child Neurology Foundation IRS 990

Commitment to Communication

Connecting with our child neurology community is a top priority for CNF. We have enhanced our visibility on our social media platforms  and developed the CNF Partners e-mail list. All are invited to join the CNF Partners List (sign up) to receive Opportunities and Announcements for CNF Partners – a weekly single-topic email with a child neurology focus (see What’s Hot). If you have information you’d like to share via the CNF communication network, please email us.


Contact Us

Child Neurology Foundation
201 Chicago Avenue #200
Minneapolis, MN 55415
info@childneurologyfoundation.org
612.928.6325

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