Tools & Resources

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Tools & Resources
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Whether you’re a patient, caregiver, advocate, researcher, clinician or industry partner, we have resources and programs to fit your needs. Below is a short summary of what we’re doing and ways we can help support you. If you don’t find what you are looking for or have questions, please contact us at [email protected]

You can also sign up for our weekly e-newsletter for regular updates about our programs, patient educational information, advocacy events, scholarships, grants, and more.


Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Better Together for Kids

The Child Neurology Foundation is launching a new project Better Together for Kids that kicks off this March,  exploring how we can support better collaboration and connection between advocacy and industry in our sector.

Child Neurologist New Visit Toolkit

We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist. Download the form, print it out and bring it to the…

Clinical Decision Support (CHICA-CN)

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Digital Access Program: Bridging The Divide By Getting Families Online

We’re launching a pilot project to provide digital access to 100 families in our child neuro community who don’t have internet at home. The goal? Help them get online and access to the resources and…

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Dr. Kenneth F. Swaiman Medical Student Scholarship

Administered annually beginning in May 2022, the $5,000 summer research scholarship will be given to each of three (3) U.S. or Canadian medical students who have an interest in exploring a career in child neurology

Epilepsy Education Hub

Although epilepsy cannot be cured, many people control seizures with medication, lifestyle changes, devices, and/or surgery. It is important to control seizures as much as possible to reduce the risk of injury, health complications and,…

Family Support Program

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Free Whole Genome Sequencing (WGS) in 2021

The application portal is now closed and selected sites will be notified.  As part of our effort to elevate the importance of genetic testing, and the role it can play in shortening the diagnostic journey…

Genetic Testing

Each year, we identify an important education initiative that impacts the entire child neurology community. In 2020, our focus was on Shortening the Diagnostic Odyssey, which included genetic testing and the role it can play in helping…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Mental Health Hub

You are not alone. Millions of people face mental health concerns every year; the latest data from the National Alliance on Mental Health shows that one in five U.S. adults experience mental illness and 17…

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Shortening the Diagnostic Odyssey

It is critical to get to a diagnosis sooner so that parents, caregivers, and physicians can begin the process of finding possible treatments and make more informed decisions about next steps in the care of…

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Telehealth

At CNF, we recognize the power of telehealth to improve access for so many children experiencing neurologic conditions and their families, and it provides another way to stay safe as we navigate our new normal.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Transitions of Care Hub

Welcome to the Transitions of Care Patient Advocacy Hub and thank you for registering to join us at our inaugural summit June 15th-24th!

Upcoming Webinars

Check out our upcoming webinars about a variety of different topics here.

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