Tools & Resources

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Tools & Resources
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Whether you’re a patient, caregiver, advocate, researcher, clinician or industry partner, we have resources and programs to fit your needs. Below is a short summary of what we’re doing and ways we can help support you. If you don’t find what you are looking for or have questions, please contact us at info@childneurologyfoundation.org

You can also sign up for our weekly e-newsletter for regular updates about our programs, patient educational information, advocacy events, scholarships, grants, and more.

 

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Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Donate Online

Your gift improves the lives of children and families living with neurologic conditions, by supporting CNF’s vision of a world where children and their families living with neurologic conditions reach their full potential.

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Join Our Corporate Advisory Board

In addition to financial support, members provide their unique expertise and perspectives on the issues and needs facing the child neurology community.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Genetic Testing

Every year, the Child Neurology Foundation’s Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this education initiative is Shortening the Diagnostic Odyssey.  As part of the initiative, CNF developed an information sheet “Considering…

Telehealth

Check out our upcoming webinars about a variety of different topics here.

Webinars

Check out our upcoming webinars about a variety of different topics here.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Shortening the Diagnostic Odyssey

In 2020, our Education Initiative is Shortening the Diagnostic Odyssey and our board has decided to dedicate two years to this topic.

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Communities of Practice

CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our hopes, anxieties, dilemmas, and successes.

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Patient Organization Partnership Opportunities

CNF is passionate about collaboration. Here is a list of opportunities for organizations to partner with us.

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Donate Online

Your gift improves the lives of children and families living with neurologic conditions, by supporting CNF’s vision of a world where children and their families living with neurologic conditions reach their full potential.

Join Our Corporate Advisory Board

In addition to financial support, members provide their unique expertise and perspectives on the issues and needs facing the child neurology community.

Clinical Trials Directory

Where there is research for the advancement of treatments and cures, there are accompanying clinical trials. All clinical trials listed on this page are registered with clinicaltrials.gov.

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

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