Tools & Resources

Tools & Resources

Whether you’re a patient, caregiver, advocate, researcher, clinician or industry partner, we have resources and programs to fit your needs. Below is a short summary of what we’re doing and ways we can help support you. If you don’t find what you are looking for or have questions, please contact us at [email protected]

You can also sign up for our weekly e-newsletter for regular updates about our programs, patient educational information, advocacy events, scholarships, grants, and more.

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment available for their children.

Care Coordination

CNF believes that care coordination and integration are essential for families to be able to access the care they need for their child with a neurologic condition.

Child Neurologist New Visit Toolkit

We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist. Download the form, print it out and bring it to the…

Clinical Decision Support (CHICA-CN)

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Clinical Trials

An educational hub with helpful and reliable information that addresses these needs for families and clinicians.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

Dr. Kenneth F. Swaiman Medical Student Scholarship

Annually, a $6000 Dr. Kenneth F. Swaiman Medical Student Scholarship is awarded to each of four (4) U.S. or Canadian medical students who have an interest in exploring a career in child neurology.

Epilepsy Education Hub

Although epilepsy cannot be cured, many people control seizures with medication, lifestyle changes, devices, and/or surgery. It is important to control seizures as much as possible to reduce the risk of injury, health complications and,…

Family Support Program

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Genetic Testing

Each year, we identify an important education initiative that impacts the entire child neurology community. In 2020, our focus was on Shortening the Diagnostic Odyssey, which included genetic testing and the role it can play in helping…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Mental Health Hub

You are not alone. Millions of people face mental health concerns every year; the latest data from the National Alliance on Mental Health shows that one in five U.S. adults experience mental illness and 17…

Research Grant Opportunities

CNF offers Grants & Scholarships every year to health care providers and researchers in our child neurology community.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Shortening the Diagnostic Odyssey

It is critical to get to a diagnosis sooner so that parents, caregivers, and physicians can begin the process of finding possible treatments and make more informed decisions about next steps in the care of…


Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of death.


At CNF, we recognize the power of telehealth to improve access for so many children experiencing neurologic conditions and their families, and it provides another way to stay safe as we navigate our new normal.

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care systems.

Upcoming Webinars

Check out our upcoming webinars about a variety of different topics here.

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