1 in 5 children will live with a neurologic condition

We are here so they never have to walk alone!

TOOLS & RESOURCES

At Child Neurology Foundation, we are committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.

Knowing the Name of a Gene Can End Your Diagnostic Odyssey

In this webinar “Knowing the Name of a Gene Can End Your Diagnostic Odyssey and Begin the Search for Treatment” we hear from two experts about the next steps you can take on your family’s journey with a rare condition.

Gay Grossman is a rare disease parent and co-founder of ADCY5.org, the non-profit foundation for ADCY5-related dyskinesia. Annapurna Poduri, MD, MPH is a Professor of Neurology at Harvard Medical School and Director of the Neurogenetics and Epilepsy Genetics Programs at Boston Children’s Hospital.

Get Neurologic Condition Information

Child Neurologic Disorder Information & Resources

If your child or someone you know has recently been diagnosed with a neurologic condition, we’re here to help you make an informed decision on their care. Search our child neurology disorder directory to learn more about treatment, prognosis and research opportunities.

One-On-One Support

Not finding what you need? Would you like to talk with someone who has gone through a similar situation as you?

Contact Peer Support

Timely Topics

Are you in search of a diagnosis?

The field of genetic testing is rapidly evolving and may be helpful in getting answers.

Struggling with bad behavior?

Discover techniques and tips to help you get your child’s behavior under control.

Are you having your doctors visits online now?

Learn how to make the most of your next virtual visit to the doctors office.

Thinking about your child’s transition to adulthood?

It is never too early to start planning and preparing for a child’s transition to adulthood.

What’s Happening Now

Child Neurologist New Visit Toolkit

November 15, 2021

News Patients & Caregivers

Child Neurologist New Visit Toolkit

We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit…

2021 CNF Diversity, Equity, and Inclusion Report

November 5, 2021

2021 CNF Diversity, Equity, and Inclusion Report

In 2020 CNF began a journey to better understand how it could play a part…

Inaugural Child Neurology Day On Oct. 29!

October 18, 2021

Inaugural Child Neurology Day On Oct. 29!

October 29, 2021 is the inaugural Child Neurology Awareness Day to increase understanding of childhood…

2021 CNF RISE Family Grants and the Harnett Grant

October 11, 2021

2021 CNF RISE Family Grants and the Harnett Grant

Applications for the 2021 CNF RISE Family Grants and the Harnett Grant are now OPEN!…

Our programming and family support services would not be possible without donations. Donate now to help us continue to provide critical support services for children and families in need.

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Corporate Advisory Board Partners