At Child Neurology Foundation, we are committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.
Knowing the Name of a Gene Can End Your Diagnostic Odyssey
In this webinar “Knowing the Name of a Gene Can End Your Diagnostic Odyssey and Begin the Search for Treatment” we hear from two experts about the next steps you can take on your family’s journey with a rare condition.
Gay Grossman is a rare disease parent and co-founder of ADCY5.org, the non-profit foundation for ADCY5-related dyskinesia. Annapurna Poduri, MD, MPH is a Professor of Neurology at Harvard Medical School and Director of the Neurogenetics and Epilepsy Genetics Programs at Boston Children’s Hospital.
Get Neurologic Condition Information
Child Neurologic Disorder Information & Resources
If your child or someone you know has recently been diagnosed with a neurologic condition, we’re here to help you make an informed decision on their care. Search our child neurology disorder directory to learn more about treatment, prognosis and research opportunities.
Are you in search of a diagnosis?
The field of genetic testing is rapidly evolving and may be helpful in getting answers.
Struggling with bad behavior?
Discover techniques and tips to help you get your child’s behavior under control.
Are you having your doctors visits online now?
Learn how to make the most of your next virtual visit to the doctors office.