Current Spotlight
CNF thanks our lead industry partners – BioMarin, PTC Therapeutics and UCB – for their support.
Upcoming webinar: The Role of Genetic Testing to Shorten the Diagnostic Odyssey
Are you or someone you know searching for a diagnosis for child with a neurologic condition? Are you searching for the cause of symptoms, such as seizures, because you aren’t confident the current treatment is the best option for the child? You are not alone. Earlier this year, we sent out a survey to our community and heard from over 1,000 families about their diagnostic journey.
In this one-hour webinar, you will learn about the different types of genetic tests available for children with neurologic conditions, the benefits and possible disadvantages of genetic testing and the role of a genetic counselor. We will also provide information on the cost of testing and discuss ways to cover that cost through insurance and other programs.
Date: Nov 18, 2020, 3 p.m. ET
What’s Happening Now
Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few…
We would like to announce the exciting news that Paul Cooper, CPF, is receiving a 2020 Facilitation Impact Award…
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