Nathan Jones

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Nathan Jones
Introducing Lindsey Taveren: Leading CNF Into a New Chapter

Dear CNF Community, As someone diagnosed later in life with autism spectrum disorder, I understand how frustrating and debilitating the barriers can be to living…

Embracing Uncertainty: A Mother’s Journey Through Pediatric Stroke

Introduction: The Unforeseen Journey In January 2018, my 7-month-old baby experienced a major ischemic stroke. We have no known medical cause. Brain injury, disability, and…

How CNF’s Transition of Care Workshops Are Shaping the Future for Medically Complex Youths

Understanding the Challenges of Transitioning from Pediatric to Adult Neurology Care We’ve heard through many channels over the years that transitioning their medically complex youths…

Building Bridges to Help Families

I'm Haley, a dedicated social worker at Hope for HIE, where my journey uniquely intertwines professional expertise with my personal experience as a parent. This…

Early Intervention: Project FIND-OUT’s Role in Neurological Health

The path to understanding and treating genetic neurodevelopmental disorders in children can be long and fraught with uncertainty. The Child Neurology Foundation is deeply committed…

Beyond Roadblocks: Our Fight for Jayson’s Genetic Answer

It isn’t always easy, but I think it is important for us as parents to share our stories. Our experiences can support and strengthen others.…

Two Years Later: A Swaiman Scholarship Recipient Reflects

Alyssa Edwards and Dr. Alexander Cohen Reflecting on the journey that has unfolded over the past few years, I am overwhelmed with gratitude and inspired…

Championing the Next Wave of Innovators in Child Neurology: Insights from Our Scholars

The Child Neurology Foundation (CNF) prides itself on empowering aspiring medical professionals through the Dr. Kenneth F. Swaiman Medical Student Scholarship and the Neurodevelopmental Disabilities…

Child Neurology Foundation Welcomes New Members to its Board of Directors 

The Child Neurology Foundation (CNF) is proud to announce the addition of two distinguished professionals to its Board of Directors: Dr. Geetanjali Rathore and Mr.…

Empowering Epilepsy Transitions: Child Neurology Foundation Grants Propel Innovative Clinics at UPMC and Norton Children’s

UPMC Children’s Hospital of Pittsburgh Principal Investigator (PI): Dr. Laura Kirkpatrick  UPMC Children’s Hospital of PittsburghDr. Kirkpatrick is an Assistant Professor of Pediatrics with a…

Norton Children’s Medical Group in Louisville, Kentucky receives $25,000 Grant for Care Coordination

At the end of 2023, CNF awarded three $25,000 to institutions taking on quality improvement projects aimed at improving health outcomes for children with neurologic…

Cristina Vargus is on a mission. Her 6-year-old son Julius, who she lovingly refers to as Juju, has a smile that lights up a room…

Empowering Smooth Transitions of Care: Insights from CNF’s Latest Access Child Neurology Episodes

Earlier this week, I got to preview CNF’s newest Access Child Neurology episodes about the transition of care. Featuring my colleagues from CNF’s Transition Expert…

“When we have community, hope prevails.”

What drew you to the Child Neurology Foundation and its mission? How do you see yourself contributing to the foundation’s ability to provide support for…

Desiree Magee: Traveling with a medically complex kid

Hi there!  I would like to introduce myself, my name is Desiree, I am a wife, mother of two girls, Adelaide 15 and Daphne 8,…

Brad Thompson on ‘The Personal Side of Things’

“One thing we know – when we spend our days surviving, it’s hard if not impossible to dream.” -Brad Thompson How has the Child Neurology…

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