Insights

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Insights
Early Intervention: Project FIND-OUT’s Role in Neurological Health

The path to understanding and treating genetic neurodevelopmental disorders in children can be long and fraught with uncertainty. The Child Neurology Foundation is deeply committed…

Beyond Roadblocks: Our Fight for Jayson’s Genetic Answer

It isn’t always easy, but I think it is important for us as parents to share our stories. Our experiences can support and strengthen others.…

Two Years Later: A Swaiman Scholarship Recipient Reflects

Alyssa Edwards and Dr. Alexander Cohen Reflecting on the journey that has unfolded over the past few years, I am overwhelmed with gratitude and inspired…

From the AAN Meeting: Insights into the Future of Neurological Care

Every year, our partners at the American Academy of Neurology host a week-long conference for neurologists to gather and learn from each other at their…

Innovation in Child Neurology: Acadia’s Head of Rare Disease Shares What It Takes to Make a Breakthrough

Kathie Bishop, Ph.D., knows exactly what it takes to lead cutting-edge therapeutics for neurologic and rare diseases from research to development to changing lives for…

One Family’s Journey with Rett Syndrome

Life for the Heimburger family doesn’t look the way they imagined. But it also doesn’t look quite as different as they once thought it would.…

A Front Row Seat To A Medical Breakthrough In Pediatric Neurology: One Mother’s Journey

Maria Kefalas, mother of Cal and author of ” Harnessing Grief: One Mother’s Quest for Meaning and Miracles,” shares her family’s remarkable journey.

When Your Child Has a Chronic Medical Illness: An interview with the authors

The new book When Your Child Has a Chronic Medical Illness: A Guide for the Parenting Journey was released earlier this year. Both authors sat…

Mental Health Hub

You are not alone. Millions of people face mental health concerns every year; the latest data from the National Alliance on Mental Health shows that…

We Know It Is Difficult—But Let’s Talk Behavioral Therapy

Here is information on behavioral therapy to help you make good decisions for your child and managing difficult behaviors.

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