Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are…
Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a…
CNF Executive Director and CEO Amy Brin was recently featured on the Successful Nonprofits podcast to talk about CNF’s unique…
Welcome! This month CNF welcomed three new members to the board: Madeline Chadehumbe, MD Peter Kang, MD Monique Terrell Madeline…
Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in…
Did you know 1 in 5 children in the US live with a neurologic condition, many of which require life-long…
Since 2001, the Child Neurology Foundation has awarded over $4.1 million dollars in research funding and scholarships to young investigators…
In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community.…
Kathie Bishop, Ph.D., knows exactly what it takes to lead cutting-edge therapeutics for neurologic and rare diseases from research to…
Life for the Heimburger family doesn’t look the way they imagined. But it also doesn’t look quite as different as…
We hear from a father whose child was diagnosed with a rare disorder that had little research. This is his family’s…
Audrey goes to weekly therapy appointments and now we are doing full remote schooling for her. It hasn’t been easy…
The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief and support to help children with devastating…
Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few…
Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to…
“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was…
Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his…
Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems…
He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy.Â
Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and…
We feel so blessed to have her in our lives. The joy that pours out of her is contagious.
“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of…
“With schools being closed, any interaction Ethan can get is vital.”
“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”