In May of 2019, CNF staff attended the 71st American Academy of Neurology Annual Meeting (AANAM), which was held in Philadelphia. This is the biggest neurology conference that we attend every year, and it’s a great opportunity for our team to connect with the larger neurology community. The 2019 Meeting… Read More
If you’re subscribed to CNF’s newsletter, then you already know that in early 2019 we expanded the CNF team. In January, we were pleased to add five incredible team members to work on CNF’s programs, funding, and communications. We’re excited to announce that at the end of April, we’ll also… Read More
With great power comes great responsibility. Right? Or at least some clearly defined terms for how you work. As CNF grows, it’s been important to put more structure in place to guide our work, and to make these structures official, so that we can be accountable to the people and… Read More
If you’ve visited CNF’s About Us page before, you’ve probably read our Mission and Vision Statements. Our Vision: A world in which all children affected by neurologic disorders reach their full potential. Our Mission: To serve as a collaborative center of education and support for caregivers and their children with neurologic conditions. These… Read More
CNF staff is busy getting ready for the upcoming American Academy of Neurology Annual Meeting held May 4th to 11th in Philadelphia. CNF is in full swing at this year’s conference, where we’ll be presenting two academic posters, hosting one networking event, and manning a full day exhibit at the… Read More
2019 Call for Artists This fall, CNF and the Child Neurology Society are partnering with the Hidden Truths Project for 1:26 the Art of Epilepsy exhibits on September 21 in Newport Beach, California and in Minneapolis, Minnesota on October 12. According to the Hidden Truths Project: “The focus of these… Read More
NEWS RELEASE INDIANAPOLIS — Physicians can now be alerted to pediatric patients’ risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care visits by using software developed and commercialized by a researcher-entrepreneur at the Indiana University School of Medicine. Digital Health Solutions LLC, founded by Dr. Stephen… Read More
Just before the holidays, our own Amy Brin was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast explores “the intersection of rare disease with business, science, and policy”. In this episode, Daniel talks with Amy about the THRIVE Initiative, collaboration, and the importance… Read More
As this year draws to a close and we get ready for the year ahead, it’s important to look back at everything we’ve accomplished in 2018. With the support and collaboration of our community, CNF was able to roll out new resources; connect with doctors, researchers, and families; and bring… Read More
October 23, 2018 Dear CNF Partners, In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms and passed away before his first birthday. The Child Neurology Foundation gratefully partners with the Harnett family again… Read More
