News & Stories

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News & Stories

Click on the news tab to read the latest updates about the Child Neurology Foundation and what’s happening in our community. Click on stories to learn more about the lives of children, families, partners, advocates and others in our community. If you would like to submit a story, please email info@childneurologyfoundation.org.

Epilepsy Education Hub

Although epilepsy cannot be cured, many people control seizures with medication, lifestyle changes, devices, and/or surgery. It is important to…

Better Together for Kids

The Child Neurology Foundation is launching a new project Better Together for Kids that kicks off this March,  exploring how…

Getting to know the CNF team – Anne Frederick

We’d like to welcome Anne Frederick to the CNF Team. To help you get to know her, Anne answered a…

Research Shows Computerized Decision Support Increases Patient Communication About SUDEP

A new study, funded by Digital Health Solutions, LLC, through a grant provided by the Child Neurology Foundation, shows that…

Apply Now: 2021 Research Grants Open To Applicants

The 2021 application window for research grants and awards from the Child Neurology Foundation and the Child Neurology Society is…

First annual Seizure Action Plan Awareness Week launches

This week (Feb. 8 -14) is the inaugural Seizure Action Plan Awareness Week, which is held annually starting on the…

New Research Examines Why Child Neurologists Do, Or Do Not, Talk About SUDEP With Their Patients

Newly published research, funded in part by the Child Neurology Foundation, offers key insights about how and why child neurologists…

Free Whole Genome Sequencing (WGS) in 2021

The application portal is now closed and submissions are under review.  Selected sites will be notified by Feb. 24, 2021. …

Finding Your Community, Your Source of Support

We hear from a father whose child was diagnosed with a rare disorder that had little research. This is his family’s…

Audrey

Audrey goes to weekly therapy appointments and now we are doing full remote schooling for her. It hasn’t been easy…

June Jessee Memorial Foundation – Virtual Programming

The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief and support to help children with devastating…

Reuben

Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few…

May

May

Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to…

Lucas

“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was…

Luke

Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his…

Mia

Mia

Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems…

Lucas

He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy. 

Gracie

Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and…

Evelyn

We feel so blessed to have her in our lives. The joy that pours out of her is contagious.

KIF1A.ORG: research and therapeutic development

“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of…

Ethan

“With schools being closed, any interaction Ethan can get is vital.”

Quincy

“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”

Wishes For Elliott – Webinars

Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many…

Elliot

Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from…

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