In addition to offering support and guidance to our community in the time of COVID-19, we also want to share an update of how CNF is approaching COVID-19 as a team. In an average year, CNF staff are busy attending conferences, meeting with partners and funders, and planning face-to-face events… Read More
In recent months, SARS2-CoV-2, a new form of a class of viruses referred to as Coronavirus has caused an illness known as COVID-19. COVID-19 has made headlines around the world and its presence in the US is escalating rapidly. The Centers for Disease Control (CDC) is providing updates daily. We… Read More
Every year, the Child Neurology Foundation’s (CNF) Board of Directors identifies an important Education Initiative that impacts the entire child neurology community. In 2020, this Education Initiative is Shortening the Diagnostic Odyssey. There are many reasons why Shortening the Diagnostic Odyssey was chosen as our 2020 Education Initiative. Here are… Read More
In a recent blog post, we talked about the importance of having conversations about SUDEP, and shared some resources to help facilitate this conversation. In 2018, CNF worked with Digital Health Solutions LLC and Greenwich Biosciences Inc. to create a SUDEP module for the Child Health Improvement through Computer Automation (CHICA)… Read More
In 2019, we saw an increase in conversations about SUDEP (Sudden Unexpected Death in Epilepsy) on mainstream media channels. Unfortunately, much of this attention was in response to the tragic death of Cameron Boyce, star of Disney Channel shows “Descendants” and “Jessie”. SUDEP, or Sudden Unexpected Death in Epilepsy, takes… Read More
In late 2019, two new members joined the CNF Board of Directors. One of those members is Donald Pearl. This membership marks a momentous occasion, as Mr. Pearl is the first CNF BOD member from industry. CNF has always believed that convening a multi-stakeholder perspective can only make us stronger,… Read More
Late in 2019, CNF was lucky enough to have two new members join our Board of Directors. You may know him from twitter, as @TheNotoriousEEG, but we know him as Dr. Scott Perry. To give you a little more insight into Dr. Perry’s career, and what inspired him to join… Read More
Welcome back to our weekly interview series! Each week, we share an interview with a member of the CNF community. Today, we’re highlighting the work of Anup Patel, a physician who sits on our Board of Directors. Tell us what you do in your day job I am the section… Read More
Each week, we’re sharing profiles on the amazing people who make our mission in action possible. This week, we’re highlighting Paul Cooper, CNF’s facilitator. What’s your role at CNF? I build engaging agendas for our outward–facing events that encourage dialogue and participation, and I facilitate meetings, trainings, and other gatherings. And I support internal… Read More
Every week, we’re profiling members of the CNF community so you can get to know the people behind our organization’s mission. Meet Sue Yudovin, a former pediatric nurse who sits on our Board of Directors. Tell us what you do in your day job? I am a retired certified pediatric… Read More
