As COVID-19 vaccines are authorized and then recommended for use in the United States, information is changing rapidly. Here are…
From our family at the Child Neurology Foundation to yours, we wish you a happy, healthy holiday season filled with good…
Congratulations to the 2020 PERF grants and NDD scholarship recipients! Every year, the Child Neurology Foundation — along with the…
Update Oct. 26, 2020: The Child Neurology Foundation is pleased to announce that our facilitator Paul Cooper, CPF, alongside CEO…
We regret to announce the death of Kenneth Swaiman, MD, the founder and first president of the Child Neurology Society,…
Global Genes and Child Neurology Foundation Outline “Guiding Principles of Rare Disease Care and Patient Access” in Joint Report, Urging…
On Tuesday, September 1, the National Academies of Medicine (NAM) released a draft of their proposed guidelines for the distribution of a potential COVID-19 vaccine once it…
Child Neurology Foundation CEO Amy Brin To Lead Epilepsy Leadership Council’s New Steering Committee
The Child Neurology Foundation is pleased to announce that CEO and Executive Director Amy Brin is furthering her commitment to…
We’d like to welcome Loren Wood to the CNF Team. To help you get to know him, Loren answered a…
Late in 2020, CNF was lucky enough to have two new members join our Board of Directors. One of those…
In late 2020, two new members joined the CNF Board of Directors. One of those members is Dr. Bruce Cohen,…
Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few…
We’d like to welcome Nicky Young to the CNF Team. To help you get to know her, Nicky answered a…
Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to…
“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was…
Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his…
Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems…
He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy.
Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and…
We feel so blessed to have her in our lives. The joy that pours out of her is contagious.
“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of…
“With schools being closed, any interaction Ethan can get is vital.”
“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”
Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many…