CHICA’s Next Steps

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In a recent blog post, we talked about the importance of having conversations about SUDEP, and shared some resources to help facilitate this conversation. In 2018, CNF worked with Digital Health Solutions LLC and Greenwich Biosciences Inc. to create a SUDEP module for the Child Health Improvement through Computer Automation (CHICA)…  Read More

Raising SUDEP Awareness – AES Position Statement

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In 2019, we saw an increase in conversations about SUDEP (Sudden Unexpected Death in Epilepsy) on mainstream media channels. Unfortunately, much of this attention was in response to the tragic death of Cameron Boyce, star of Disney Channel shows “Descendants” and “Jessie”. SUDEP, or Sudden Unexpected Death in Epilepsy, takes…  Read More

Welcome to the Board – Donald Pearl

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In late 2019, two new members joined the CNF Board of Directors. One of those members is Donald Pearl. This membership marks a momentous occasion, as Mr. Pearl is the first CNF BOD member from industry. CNF has always believed that convening a multi-stakeholder perspective can only make us stronger,…  Read More

Welcome to the Board – Dr. Scott Perry

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Late in 2019, CNF was lucky enough to have two new members join our Board of Directors. You may know him from twitter, as @TheNotoriousEEG, but we know him as Dr. Scott Perry. To give you a little more insight into Dr. Perry’s career, and what inspired him to join…  Read More

Getting to Know the CNF Team – Anup Patel, MD

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Welcome back to our weekly interview series! Each week, we share an interview with a member of the CNF community. Today, we’re highlighting the work of Anup Patel, a physician who sits on our Board of Directors. Tell us what you do in your day job  I am the section…  Read More

Getting to know the CNF team – Paul Cooper

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Each week, we’re sharing profiles on the amazing people who make our mission in action possible. This week, we’re highlighting Paul Cooper, CNF’s facilitator. What’s your role at CNF?  I build engaging agendas for our outward–facing events that encourage dialogue and participation, and I facilitate meetings, trainings, and other gatherings. And I support internal…  Read More

Getting to know the CNF team – Sue Yudovin

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Every week, we’re profiling members of the CNF community so you can get to know the people behind our organization’s mission. Meet Sue Yudovin, a former pediatric nurse who sits on our Board of Directors. Tell us what you do in your day job? I am a retired certified pediatric…  Read More

2019 Scholarship Winners

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Part of CNF’s mission to build relationships and support community members who are dedicated to improving the lives of children living with neurological conditions, is supporting the next generation of child neurologists. Every year, the Child Neurology Foundation awards the Pediatric Epilepsy Research Foundation’s Shields (PERF) Shields and PERF Elterman Research Grants,…  Read More

Getting to know the CNF team – Altaira Northe

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Every week, we’re sharing an interview with someone from the CNF team. This week, get to know Altaira Northe, CNF’s Director of Communications and Storytelling. What’s your role at CNF? I’m the Contract Director of Communications and Storytelling. One of my main goals here at CNF is to enable members…  Read More

Getting to know the CNF team – Cyndi Wright

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Each week, we’re sharing a profile from a member of the CNF team. This week, meet Cyndi Wright, who manages CNF’s Strategic Operations.   What’s your role at CNF?  I work as a Contractor on CNF Strategic Operations.  Currently, I’m managing the annual education initiative, which for 2019 is managing Disruptive…  Read More