News & Stories

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News & Stories

Click on the news tab to read the latest updates about the Child Neurology Foundation and what’s happening in our community. Click on stories to learn more about the lives of children, families, partners, advocates and others in our community. If you would like to submit a story, please email info@childneurologyfoundation.org.

New Mission, New Board, Same Goal at Child Neurology Foundation

Future efforts expanded to support medical professionals, helping children and families living with a neurologic condition get the best quality…

New CNF Board of Directors Brings Incredible Professional Expertise and Lived Experiences

It is with great excitement that we announce the Child Neurology Foundation’s 2021-2022 Board of Directors.

Updated CNF Mission Elevates Support for Medical Professionals  

Our 20th anniversary this year brings an exciting update to our mission and an added focus on supporting medical professionals as we seek to help children and families get the best quality of care possible.  

Getting to Know the CNF Team – Lindsey Taveren

We’d like to welcome Lindsey Taveren to the CNF Team! To help you get to know her, Lindsey answered a…

Congratulations to our 2021 NDD Summer Research Scholarship Recipient!

Congratulations to Cole Deisseroth, recipient of CNF’s 2021 Neurodevelopmental Disabilities (NDD) Summer Research Scholarship!

Getting to know the CNF team – Loren Brigham

We’d like to welcome Loren Brigham to the CNF Team. To help you get to know her, Loren answered a…

New Guide: Education Transition For Youth With Neurological Conditions

The Brain Recovery Project: Childhood Epilepsy Surgery Foundation has just launched a new step-by-step guide and an accompanying self-paced training…

Join Us In Our Next 20

This Year, We’re Celebrating Our 20th Anniversary And we’ve accomplished a lot with the help of you, our child neurology…

Finding Your Community, Your Source of Support

We hear from a father whose child was diagnosed with a rare disorder that had little research. This is his family’s…

Audrey

Audrey goes to weekly therapy appointments and now we are doing full remote schooling for her. It hasn’t been easy…

June Jessee Memorial Foundation – Virtual Programming

The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief and support to help children with devastating…

Reuben

Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few…

May

May

Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to…

Lucas

“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was…

Luke

Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his…

Mia

Mia

Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems…

Lucas

He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy. 

Gracie

Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and…

Evelyn

We feel so blessed to have her in our lives. The joy that pours out of her is contagious.

KIF1A.ORG: research and therapeutic development

“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of…

Ethan

“With schools being closed, any interaction Ethan can get is vital.”

Quincy

“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”

Wishes For Elliott – Webinars

Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many…

Elliot

Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from…

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