Audrey goes to weekly therapy appointments and now we are doing full remote schooling for her. It hasn’t been easy being out of routine.
The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief and support to help children with devastating medically complex, neurological conditions and…
Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few days of his birth shortly…
Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to the hospital after she threw…
“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was an answered prayer. Lucas finally…
Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his eyes.
Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems as well.
He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy.
Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and affords her a level of…
We feel so blessed to have her in our lives. The joy that pours out of her is contagious.
“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of their ability to walk, talk,…
“With schools being closed, any interaction Ethan can get is vital.”
“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”
Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many others in the works.
Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from his family. “It’s no secret…
“Of course, the isolation for COVID-19 was hard on everyone. For us, life changed drastically.”
“My daughter was chosen as one of the grant recipients in the first round. I just wanted to say thank you so much.”
In June, the Cute Syndrome Foundation received a Rising Tides Grant from the Child Neurology Foundation to lift a social and emotional support program off…
Here are some highlights of the book club supported by the RISING Tides grant, with details and photographs provided by the Cute Syndrome Foundation.