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Family Support Program Grows with New Hires

The Child Neurology Foundation is excited to announce the addition of two incredible women to our Family Support Program staff: Tara McKinnon as a Family…

Family Support Program

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer…

CNF-CNS Statement on Türkiye and Syria Earthquake

As the leading organizations representing the child neurology community, we stand in solidarity with our child neurology colleagues, their patients and families in Türkiye and…

Harnett Grant Recipient Shares Their Family’s Infantile Spasms Story

The Child Neurology Foundation helps families throughout the course of their journey. Thanks to the generous support of the Harnett Family, the Child Neurology Foundation…

What CNF Families Need To Know About Medicaid Unwinding

What CNF Families Need To Know About Medicaid Unwinding Although the COVID-19 public health emergency is ongoing, some protections are being removed. For our CNF…

#NeuroHero Story: Rylae-Ann’s Diagnostic Journey With a Rare Disease

  Richard Poullin and Judy Wei live in Thailand with their 4-year-old daughter Rylae-Ann. Although Judy says her pregnancy and delivery were uncomplicated, when Rylae-Ann…

#NeuroHero Hudson’s Story of Hope

During our Child Neurology Awareness Day #NeuroHero campaign in October, we had several families reach out to us to share their #NeuroHero stories. One of…

What do you want CNF to advocate for? A preview of our 2023 Policy Agenda

In early November 2022, we previewed a new initiative of becoming stronger advocates for our families and their challenges at the national level. Now, after…

Dec. 1-7 is Infantile Spasms Awareness Week

Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in…

Public Health Message: Surge of Respiratory Illnesses

Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a month away, they are already…

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