“When we have community, hope prevails.”

What drew you to the Child Neurology Foundation and its mission? How do you see yourself contributing to the foundation’s ability to provide support for…

Desiree Magee: Traveling with a medically complex kid

Hi there!  I would like to introduce myself, my name is Desiree, I am a wife, mother of two girls, Adelaide 15 and Daphne 8,…

Brad Thompson on ‘The Personal Side of Things’

“One thing we know – when we spend our days surviving, it’s hard if not impossible to dream.” -Brad Thompson How has the Child Neurology…

From the AAN Meeting: Insights into the Future of Neurological Care

Every year, our partners at the American Academy of Neurology host a week-long conference for neurologists to gather and learn from each other at their…

Making an Impact: The Child Neurology Foundation’s Digital Access Program

The Child Neurology Foundation’s Digital Access Program provides children and families affected by neurological disorders with access to telehealth services and a community of support…

Innovation in Child Neurology: Acadia’s Head of Rare Disease Shares What It Takes to Make a Breakthrough

Kathie Bishop, Ph.D., knows exactly what it takes to lead cutting-edge therapeutics for neurologic and rare diseases from research to development to changing lives for…

One Family’s Journey with Rett Syndrome

Life for the Heimburger family doesn’t look the way they imagined. But it also doesn’t look quite as different as they once thought it would.…

Finding Your Community, Your Source of Support

We hear from a father whose child was diagnosed with a rare disorder that had little research. This is his family’s journey finding support.   


Audrey goes to weekly therapy appointments and now we are doing full remote schooling for her. It hasn’t been easy being out of routine.

June Jessee Memorial Foundation – Virtual Programming

The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief and support to help children with devastating medically complex, neurological conditions and…

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