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“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”

Wishes For Elliott – Webinars

Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many others in the works.


Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from his family. “It’s no secret…


“Of course, the isolation for COVID-19 was hard on everyone. For us, life changed drastically.”


“My daughter was chosen as one of the grant recipients in the first round. I just wanted to say thank you so much.”

The Cute Syndrome Foundation – Food Clubs

In June, the Cute Syndrome Foundation received a Rising Tides Grant from the Child Neurology Foundation to lift a social and emotional support program off…

The Cute Syndrome Foundation – Book Club

Here are some highlights of the book club supported by the RISING Tides grant, with details and photographs provided by the Cute Syndrome Foundation.

COVID-19 Stories

A selection of stories from families in our community during the pandemic.

On Transitioning Into Adult Care

Building new relationships can be as challenging as it is rewarding. Many families face uncertainty when connecting with a new neurologist that will help their…

A RARE conversation: RARECast podcast interview with Amy Brin

Just before the holidays, our own Amy Brin was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast…

CNF Transition of Care Video Production

In late July, CNF worked with a director and film crew to shoot videos that would illuminate the complexity of transition of care for young…

Carrie Fisher’s Last Advice, “As Your Bipolar Sister”

Star Wars fans around the world were saddened to hear about the passing of Carrie Fisher. Along with being a great actress, she was also a…

Special Needs Ice Competition

Outside of Chicago a group of special needs athletes were participating in the 2017 Champions Special Needs Skating Competition. For the participants, it’s not just about…

Child With Special Needs Gets New Service Dog

Everyone has had a Christmas wish to wake up on Christmas morning with a new pet. For Cruz Smith, that wish was for a dog.…

Teacher Uses Puppetry and Filmmaking to Engage Students With Neurological Differences

Felt. Googly eyes. Socks. Pipe cleaners. Imagination. Sound familiar yet? Puppets! Patrick Waters, a teacher of special needs students, found that using these fun little…

CNN Announces Hero of The Year

Nobody’s perfect. We all have things about ourselves we wish we could change. For activist Jeison Aristizábal, having cerebral palsy, made life more challenging but he…

Life Happens at 3am

As soon as you become a mom life is no longer lived before bedtime. Pregnancy is the preparation for sleepless nights. That growing baby and…

Special Needs Athletes Have a Blast Playing With University Of Denver Lacrosse Team

When you think of being part of a team, what do you think of? Hard work? Effort? Commitment? Andrew Goodspeed joined a lacrosse team in…

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