Stories

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Lucas

He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy. 

Gracie

Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and affords her a level of…

Evelyn

We feel so blessed to have her in our lives. The joy that pours out of her is contagious.

KIF1A.ORG: research and therapeutic development

“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of their ability to walk, talk,…

Ethan

“With schools being closed, any interaction Ethan can get is vital.”

Quincy

“Through lots of therapies and hard work, he is a poster child for neuroplasticity.”

Wishes For Elliott – Webinars

Since the CNF Rising Tides grant was funded, Wishes For Elliott has produced seven webinars for the community with many others in the works.

Elliot

Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from his family. “It’s no secret…

Luke

“Of course, the isolation for COVID-19 was hard on everyone. For us, life changed drastically.”

Quinn

“My daughter was chosen as one of the grant recipients in the first round. I just wanted to say thank you so much.”

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