Reuben has been an adventure from the get-go! He was likely having seizures before birth, but within the first few days of his birth shortly…
Our daughter May suffered what seemed like a small fall at the age of 5 months, she was rushed to the hospital after she threw…
“When we found out Lucas received a grant from the Child Neurology Foundation, it was almost as if it was an answered prayer. Lucas finally…
Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his eyes.
Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems as well.
He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy.Â
Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and affords her a level of…
We feel so blessed to have her in our lives. The joy that pours out of her is contagious.
“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of their ability to walk, talk,…
“With schools being closed, any interaction Ethan can get is vital.”