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Harnett Grant Recipient Shares Their Family’s Infantile Spasms Story

The Child Neurology Foundation helps families throughout the course of their journey. Thanks to the generous support of the Harnett Family, the Child Neurology Foundation…

What CNF Families Need To Know About Medicaid Unwinding

What CNF Families Need To Know About Medicaid Unwinding Although the COVID-19 public health emergency is ongoing, some protections are being removed. For our CNF…

#NeuroHero Hudson’s Story of Hope

During our Child Neurology Awareness Day #NeuroHero campaign in October, we had several families reach out to us to share their #NeuroHero stories. One of…

What do you want CNF to advocate for? A preview of our 2023 Policy Agenda

In early November 2022, we previewed a new initiative of becoming stronger advocates for our families and their challenges at the national level. Now, after…

Dec. 1-7 is Infantile Spasms Awareness Week

Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in…

Public Health Message: Surge of Respiratory Illnesses

Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a month away, they are already…

Amy Brin on the Value of Nonprofit Collaboration

CNF Executive Director and CEO Amy Brin was recently featured on the Successful Nonprofits podcast to talk about CNF’s unique ability to be a convening…

Welcome Three New Members to the Board!

Welcome! This month CNF welcomed three new members to the board: Madeline Chadehumbe, MD Peter Kang, MD Monique Terrell Madeline Chadehumbe, MD Dr. Chadehumbe is…

The Value of Family Support When Living with Dravet Syndrome

Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in 2006 when she was nearly…

Taking Our Mission to D.C.: Why and How We Advocate For #NeuroHeros

Did you know 1 in 5 children in the US live with a neurologic condition, many of which require life-long management of physical, cognitive, emotional,…

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