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Caring for Our Caregivers: What we heard in the 2021 Needs Assessment

Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…

We’re Here For You On #RareDiseaseDay: A Resource Roundup

Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…

Second Annual Seizure Action Plan Awareness Week: February 14-21, 2022

From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…

Supporting Careers in Child Neurology: Scholarships Now Open

We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…

What it Takes to Become a Family Support Specialist

When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…

CNF Strategic Plan 2022-2024

This document gives an overview of the goals we are setting out for the next three years, as well as the initial deliverables we will…

Child Neurologist New Visit Toolkit

We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist. Download…

2021 CNF Diversity, Equity, and Inclusion Report

In 2020 CNF began a journey to better understand how it could play a part in addressing health disparities and inequities experienced by the child neurology community.

Inaugural Child Neurology Day On Oct. 29!

October 29, 2021 is the inaugural Child Neurology Awareness Day to increase understanding of childhood neurologic conditions, highlight the spectrum of support for families, and…

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