Coming from the Leukemia & Lymphoma Society, and before that the Chordoma Foundation, Breanna has established herself as a leader in the rare disease nonprofit fundraising…
CNF partners are invited to participate in the pilot program – to learn more about the Neurology Social Services Network, watch our video. LEXINGTON, KY…
While it might feel like a relief to finally have a referral for a child neurologist after what could have been a months-, or years-long,…
      CNF – CNS Joint Statement on the Invasion of Ukraine The Child Neurology Foundation envisions a world in which…
Your story matters. In 2022, CNF will convene its first-ever Patient Experience Bureau (PEB) consisting of parents, caregivers, and young adults to raise our shared…
Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…
Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…
From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…
Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…
We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…
When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…
This document gives an overview of the goals we are setting out for the next three years, as well as the initial deliverables we will…
We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist. Download…
In 2020 CNF began a journey to better understand how it could play a part in addressing health disparities and inequities experienced by the child neurology community.
October 29, 2021 is the inaugural Child Neurology Awareness Day to increase understanding of childhood neurologic conditions, highlight the spectrum of support for families, and…
Applications for the 2021 CNF RISE Family Grants and the Harnett Grant are now OPEN! We have eleven $1,000 grants to help families cover food,…
Initially educated and trained in India, Dr. Agarwal trained in child neurology at Baylor College of Medicine/Texas Children’s Hospital. Dr. Agarwal is currently an Assistant…
Dr. Schultz is a nurse scientist and pediatric nurse practitioner with over 30 years’ experience providing family-centered care to children with neurological conditions. She is…
Amaris Sánchez-Larragoity, PsyD is a licensed psychologist, specialized in counseling psychology, and oriented towards positive and goal-directed therapeutic approaches. For the last 16 years she…
Dr. Carol Macmillan is a graduate of McMaster University Medical School and completed her residencies in Pediatrics and Pediatric Neurology at the Montreal Children’s Hospital…