Upcoming Webinars
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Upcoming Webinars

Register For Our Upcoming Webinar:

Join us on November 10 at 12 p.m. ET for the CNF webinar “Knowing the Name of a Gene Can End Your Diagnostic Odyssey and Begin the Search for Treatment

As genetic testing advances and more children are able to get a diagnosis, many families face a difficult situation: a child living with a rare condition with no available treatment options. Join us on November 10th at 12pm ET for an opportunity to learn about the potential next steps you can take on your journey with a rare condition. We’ll be joined by a parent who is on this journey and a medical provider who is passionate about finding treatment options for these children.

In this webinar you will learn:
– Why a genetic diagnosis matters
– What you can do when there currently is no treatment for your child’s diagnosis
– Where you can get information about current research and new treatments for your child’s condition
– What questions you can ask your child’s neurologist when considering new treatments
– And how to weigh the risks and benefits of new treatments

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