Peer Support
Peer Support

For children with neurologic conditions to thrive, families and caregivers must receive support. In order to help meet the needs of those walking the journey with their child, we established the Peer Support Program to deliver resources and tools that empower caregivers to live healthier lives.

Contact Us To Receive Peer Support

How can we help? Click here and tell us what you need

Please Note: We are not medical professionals and cannot review any diagnostic tests (like EEGs) or provide medical advice. We also cannot provide financial support.

Direct Support For Caregivers

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support.

Everyone’s situation is unique but being able to turn to someone who has faced similar challenges makes navigating the journey of disease diagnosis, treatment, and management less isolating.

You don’t need to walk the path alone.

Our peer support specialists are available virtually to listen to you, encourage you, and help you find the resources you need.

Fill out the form at the top of this page to get in touch with a peer support specialist

Learn More About Peer Support

What is peer support?

Peer support is emotional, relational, and practical support from someone who has had similar experiences navigating the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition.

How can peer support help me?

Peer support is a powerful opportunity to get advice and mentorship from someone who has real-life experiences similar to what you may be facing. We have a trained counselor on staff that trains our peer support specialists to help you with what you need in the moment whether you’re coming to them for advice on your next steps, looking for guidance with a specific challenge, or you’re simply needing to voice your fears and stresses to someone who understands.

Where is peer support available?

Our peer support program is virtual, we connect with caregivers initially via email and then are able to have phone or texting conversations. This gives us the ability to provide support to people all over the world. We’ve helped families from more than 70 countries around the world and all 50 states in the United States. Depending on where you are located, we may even be able to connect you to more local resources.

How much time does it take?

Peer support takes as little or as much time as you want. Our program is virtual which means you can reach out to us at any time. Our peer support specialist are generally able to respond within 24 hours and can schedule regular checkins.

What kind of questions can I ask?

There are no wrong questions. We might not always be able to give you the answer you’re looking for straight away in some cases, there may not even be a single right answer — but we’re here so you don’t have to look for the answers alone.

Please note that we can’t provide medical advice.

Do I need to pay for this service?

No, our peer support is free of charge.

How do I contact a peer support specialist?

Fill out our website submission form with some details about who you are and what you need. One of our peer support specialists will follow up via e-mail within two business days.

What happens next?

After you fill out the contact form and let us know how we can help you, a Peer Support Specialist will follow up via email within 2 business days.

Meet Our Peer Support Specialists: Kathy & Brad

CNF has peer support specialists that know what it is like to have a child with a neurologic condition and all of the things you are going through. We believe that even if parents have children with different diagnoses, they still often share very similar experiences. Check out the videos below to learn more about us!

Brad Thompson,
CNF peer support specialist and Licensed Professional Counselor – Supervisor (LPC-S)

“We know how long your to-do list is as a family and we know how frustrating and discouraging it can be to run into a bunch of dead-ends and information that is no longer useful or valuable.

So, we do everything we can to make sure that the information and the groups of people we are connecting you with are on the front-end of the battle as well.”

Kathy Leavens,
CNF peer support specialist

“In my journey as a mom of children with medical needs, I found that I was also my own researcher and educator. I had time in between seizures or treatments, and time in waiting rooms, to search for answers to the questions I was facing.

I asked myself one question over and over: ‘Where is the person who has done this before me?’

As I gained life experience, I promised myself that I would be the person to lend a hand to someone else.”

Sign Up For The Peer Support Newsletter

Sign up for the quarterly Peer Support Newsletter.

Receive stories, advice and caregiver-specific resources to your inbox.

CNF thanks our 2022 partners Genentech and Jazz Pharmaceuticals, as well as our 2021 partners Greenwich Biosciences (now Jazz Pharmaceuticals), Liva Nova, UCB and Zogenix for their support.

Start typing and press Enter to search

Shopping Cart
Skip to content