We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist.
Download the form, print it out and bring it to the visit with you. Keep an electronic or paper copy for yourself, as well. It will be a valuable resource to track your child’s journey and ensure the best quality of care.
This toolkit was made possible thanks to the generous support of Neurogene, BioMarin Pharmaceutical, Genome Medical, Greenwich Biosciences, Illumina, Mallinckrodt Pharmaceuticals, PTC Therapeutics, Stoke Therapeutics, Taysha Gene Therapies, REGENXBIO, UCB, Ultragenyx Pharmaceutical, Zogenix, TSC Alliance, SynGap Research Fund, and NeurAbilities Healthcare.