Patients & Caregivers

Disorder Directory

A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.

COVID-19 Resources

Navigating the New Normal – Resources, educational content, stories and grants for coping with COVID-19

Back To School

All parents have questions and concerns about sending their children back to school during the current pandemic, but the child neurology community faces additional challenges.

Shortening the Diagnostic Odyssey

It is critical to get to a diagnosis sooner so that parents, caregivers, and physicians can begin the process of finding possible treatments and make…

Navigating the New Normal

The COVID-19 pandemic is an unavoidable part of life and, while that doesn’t seem to be changing any time soon, we are moving towards a…

Rise and Rising Tides Grants

To help support families and organizations during COVID-19, CNF has distributed $250,000 directly into the child neurology community in multiple rounds of grants. This includes an…

Clinical Decision Support (CHICA-CN)

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment…

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care…

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer…

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