Patients & Caregivers

Navigating the New Normal

The COVID-19 pandemic is an unavoidable part of life and, while that doesn’t seem to be changing any time soon, we are moving towards a…

Rise and Rising Tides Grants

To help support families and organizations during COVID-19, CNF has distributed $250,000 directly into the child neurology community in multiple rounds of grants. This includes an…

Clinical Decision Support

CHICA is a web-based clinical decision support system that works with a physician’s current Electronic Health Record System to help coordinate patient visits.

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment…

Transition of Care

Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care…

Peer Support

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer…

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Infantile Spasms Action Network

Infantile spasms are a rare, but very serious type of seizure.

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