Transitions are a lifespan issue. With this video series, CNF shows the journeys of 2 patients and families as they approach transition in their teenage years. The series showcases perspectives and experiences of national transitions experts–child and adult providers who care for individuals with neurologic conditions–through in-depth interviews. The series underscores the importance of partnership, communication, and a defined process to ensure successful transition of care.
Patient & Family Journeys: Kobe. Kobe is an 18-year-old young man who lives with epilepsy. This is Kobe’s story of preparing to transition from a child to adult neurologist, with insights from Kobe’s mother, his child neurologist, and Kobe, himself. Kobe relays his message to other children and young adults who are going through the same journey.
Patient & Family Journeys: Katie. Katie is a 23-year-old young woman who lives with cerebral palsy, epilepsy, and other health issues. This is Katie’s story–one of hope and inspiration–as told by her mother, of Katie’s journey transitioning from a child to adult neurologist, with eyes towards Katie’s future.
This work would be impossible without the generous support of CNF’s 2022 partners in Transitions of Care: Acadia, Eisai, Genentech, Jazz Pharmaceuticals, Ultragenyx, and Zogenix (now a part of UCB).