Practical Tools To Address Sleep Problems
Disturbances during sleep and sleep disorders have broad impacts on many aspect of your child’s health. It can be difficult getting a handle on sleep; but there are practical tools and tips that can help.
Betsy Pilon is the Executive Director of Hope for HIE, a nonprofit dedicated to improving the quality of life for children and families impacted by neonatal and pediatric-acquired hypoxic ischemic encephalopathy, and mother of a child with HIE. She will be joined by Dr. Brittney Pryor Craig, a child neurologist and sleep medicine physician at Cook Children’s in Prosper, Texas.
In this webinar recorded on June 14, 2021, get insights into how to manage your child’s sleep and get questions answered such as:
- What is a sleep study and when should it be considered?
- When is a sleep aid really needed?
- Is CBD something I should use for my child?
Age-Appropriate Behavior Management: Strategies to Address Difficult Behaviors in Children with Neurologic Conditions
We know that children with neurologic conditions have a greater incidence of challenging behaviors and that age matters when handling it. We know that traditional behavior management strategies, with consequences and rewards, often don’t work and can sometimes make the behavior worse. We know that caregivers need tools to address both the physical, emotional and intellectual age of their child.
And, we also know that there are a lot of books and theories out there about how to manage difficult behavior, but most focus on young, neuro-typical children.
In this webinar, recorded live on Feb. 10, 2021, we discuss:
- Age-appropriate strategies for managing difficult behavior
- New tools and techniques for better understanding your child’s behavior
- Approaches to help stop difficult behavior before it starts
Big thank you to our two speakers:
Eileen Devine, LCSW
Eileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome.
Karin Kelley
Karin Kelley is a single mother of three amazing children – a neurotypical son, age 11, and identical twin daughters, age 8, who have autism and ADHD. In addition to being a mom, Karin has an M.A. in Counseling Psychology and is the Executive Director of Teen Success, Inc.
Telehealth Best Practices for Children with Behavior Challenges: Tips and Tricks to Make Visits More Successful
Specifically, we discussed:
The Role of Genetic Testing to Shorten the Diagnostic Odyssey – Recorded on Nov. 18, 2020
Learn about the different types of genetic tests available for children with neurologic conditions, the benefits and possible disadvantages of genetic testing and the role of a genetic counselor. We also provide information on the cost of testing and discuss ways to cover that cost through insurance and other programs.
Communication Strategies to Improve and Prevent Challenging Behaviors for Minimally Verbal Children – Recorded on Oct. 6, 2020
In the assessments we conducted last year, we discovered just how much behavior impacted families. We also learned that one of the greatest challenges caregivers dealt with was harmful and disruptive behavior brought on, by what they believed, was their child’s difficulty with communication.
In the webinar, recorded live on Oct. 6, Dr. Kristina Gerencser, PhD, BCBA-D, shares her expertise and helps caregivers expand their toolbox to deal with these challenging behaviors and replace them with more appropriate communication skills. She is an Assistant Professor of Pediatrics at Emory University School of Medicine and a board-certified behavior analyst doctorate (BCBA-D) and Program Manager for the Language and Learning Program at Marcus Autism Center.
Download a copy of the slides from this presentation here.
Let’s talk about Sudden Unexpected Death in Epilepsy (SUDEP): A Conversation with Parents and Doctors – Recorded on November 17, 2017
Each year, we host several educational webinars that address disease-specific issues from the provider, caregiver, and advocate perspectives to provide the child neurology community with a forum for bringing partners’ perspectives together. Pediatric neurologists provide clinical considerations related to the disease-specific issue, caregivers share their experiences and advice, and organizational advocates highlight current resources available to help support both clinicians and families. Join experts from the child neurology community for a 75-minute webinar, Let’s talk about Sudden Unexpected Death in Epilepsy (SUDEP): A Conversation with Parents and Doctors.
This webinar provides participants with:
- An introduction to SUDEP, including the known causes, risk for children, how to reduce risk
- Current SUDEP research initiatives
- Strategies families can use when talking with medical providers about a child’s health risks
- The parent perspective of how to best use information about the risk for SUDEP when managing a child’s medical care
- Resources for families as they address the risk for SUDEP
Medical Cannabis in Epilepsy – Recorded on December 13, 2016
- What we know and do not know from the current available evidence on medical cannabis in the treatment of epilepsy
- What role does this evidence and its gaps play in a physician’s behavior and attitude toward cannabis
- What physicians would like caregivers to consider regarding epilepsy treatment with cannabis
- Lessons parents have learned through the use of cannabis as part of their child’s regimen
- Misconceptions about medicinal preparations
- Role of advocacy groups and how caregivers can best engage with these groups to navigate this evolving conversation
- Resources available for education and self-advocacy
Transitioning to Adulthood: Recorded on October 7, 2016
Transitioning from the pediatric to the adult health care system should be expected for all adolescents living with a neurologic condition. While it will vary amongst adolescents as to how that transition will look, when the transition will happen, or who the transition will involve, the central goal of starting the transition planning discussions early (before age 14 years) is to ensure the youth attains his/her level of optimal independence should guide all transition planning processes.
Join experts from the child neurology community for a 75-minute webinar, Child Neurology Community Conversations from the Voices of the Provider, the Caregiver, and the Advocate: Transition into Adulthood, that will outline the 8 common principles for the neurologist’s role in transitioning youth to the adult healthcare system and how youth, caregivers, and advocates act as equal partners in care to ensure a successful medical transition (as published in Neurology® ).
In this webinar you will learn:
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- Why transition and transition planning are important for youth/ families
- The 8 common principles that define the neurologist’s role in transition
- What child neurologists want youth and caregivers to know about transitions
- Examples of successful transitions to emulate
- Readiness tools used by providers and how these tools benefit youth, caregivers, and the child neurology team
- How youth and caregivers can use the 8 common principles to set expectations, and other helpful resources
- What youth and caregivers want providers to know as they approach transition planning
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