What Does a Portrait of a Rare Caregiver Look Like? The National Alliance for Caregiving, in partnership with Global Genes, recently released Rare Disease Caregiving in America, a…
We want to change isolation to empowerment! The CNF/Global Genes Rare Child Neurology Workgroup wants to understand the needs of children living with rare genetic conditions that…
New Pilot Project Improving communication between pediatric neurologists and the families of children living with epilepsy “A majority of families wanted to discuss their child’s risk…
Parents/caregivers of 12 to 30-year olds living with a complex neurologic condition, let’s talk! CNF’s new Caregiver Perspectives on Transitions Project is interested in your experiences with different…
Please visit the January 30, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Please visit the January 23, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Please visit the January 18, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Happy New Year from Child Neurology Foundation! Like many of you, we are jumping right into the new year — a time of excitement, new…
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