Your story matters. In 2022, CNF will convene its first-ever Patient Experience Bureau (PEB) consisting of parents, caregivers, and young adults to raise our shared…
Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…
Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…
From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…
Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…
We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…
When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…