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IT startup launches software to encourage physician-family conversations about epilepsy
NEWS RELEASE INDIANAPOLIS — Physicians can now be alerted to pediatric patients’ risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care visits by using software developed and commercialized by a researcher-entrepreneur at the Indiana University School of Medicine. Digital Health Solutions LLC, founded by Dr. Stephen… Read More
A RARE conversation: RARECast podcast interview with Amy Miller
Just before the holidays, our own Amy Miller was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast explores “the intersection of rare disease with business, science, and policy”. In this episode, Daniel talks with Amy about the THRIVE Initiative, collaboration, and the importance… Read More
CNF Top 8 of 2018
As this year draws to a close and we get ready for the year ahead, it’s important to look back at everything we’ve accomplished in 2018. With the support and collaboration of our community, CNF was able to roll out new resources; connect with doctors, researchers, and families; and bring… Read More
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