Who We Are

Our Vision
A world in which all children affected by neurologic disorders reach their full potential.

Our Mission
To serve as a collaborative center of education and support for children and their families living with neurologic conditions.

Our Core Values
We treat others as they would want to be treated. We are collegial and respectful in our professional relationships. We are dedicated to expanding our knowledge, being innovative, and understanding the perspectives of others. We honor and respect difference and diversity in all its forms.
We strive to exhibit excellence in our work.

We are accountable for our commitments and our actions. We are committed to ensuring the interests of the children and families we serve come first. We promote honesty and transparency in our relationships with each other and our collaborators.

We work humbly, to identify and understand the urgencies and challenges facing our shared community; we know that they cannot be overcome alone. Whenever possible, we earnestly collaborate on the actions, programs, and initiatives we engage. We want to go farther, so we go together.

We are committed to being good listeners and to act in responsive service to the needs of the child neurology community. We are respectful stewards of the relationships and stories shared with us. We are empathetic, compassionate, and positive.

Every year, we put together an annual review to reflect on the past year. Thank you for being a part of the child neurology community; we hope that you’ll enjoy taking a walk through 2019 in our 2019 A Year in Review document.

If you have any thoughts on our year in review, or would like to partner on any of our initiatives moving forward, please contact us.







History: After founding the Child Neurology Society in 1972, Dr. Kenneth Swaiman, one of the nation’s first pediatric neurologists, established the Child Neurology Foundation in 2001. While the Society is the professional organization for the nation’s pediatric neurologists, the Foundation serves pediatric patients through advocacy, education, research, and support initiatives.

Kenneth F. Swaiman, MD (Founder)

Dr. Swaiman is an internationally known child neurologist and Emeritus Professor of Neurology and Pediatrics at the University of Minnesota Medical School where he was the director of the Division of Child Neurology for several decades. He also served as Interim Head of the Department of Neurology. During his tenure, he was involved in the training of almost 100 pediatric neurologists from the United States and Canada, as well as many other countries. His biography is cited in “Who’s Who in America”, “Who’s Who in the World”, “Who’s Who in Science and Engineering”, and “The Best Doctors in America”.

Dr. Swaiman was the Chairman of the organizing committee and first President of the Child Neurology Society (CNS). He received the Hower award, the highest award of that society, and the Founder’s Award at its 25th Anniversary meeting as well as The Lifetime Achievement Award for Neurologic Education by the American Academy of Neurology. As chairman of the organizing committee of the Professors of Child Neurology, he was its first President and a prime mover, and also first president of the Child Neurology Foundation. He was a member of the organizing committee of the International Child Neurology Association (ICNA), has served on many National Institutes of Health Study Sections, and has been visiting professor and lecturer at medical schools in the United States and throughout the world, including Canada, South America, Asia, Mexico, Europe, and Africa.

Dr. Swaiman has been the Editor and a primary contributor to the textbook titled Practice of Pediatric Neurology (two editions) and Pediatric Neurology: Principles and Practice (five editions). He is the Founding Editor and immediate past Editor-in-Chief of Pediatric Neurology, an international journal devoted to the basic and clinical aspects of the diagnosis of children with neurologic impairment. He has served as a member of the Editorial Boards of the Annals of Neurology, Brain and Development, Neuropediatrics, and the Chinese Journal of Pediatrics.

His investigative endeavors have included research into brain energy metabolism, the effect of malnutrition on the developing brain, and the metabolic effects of iron and other metals on brain function. He has been particularly involved in studies of Neurodegeneration with Brain Iron Accumulation (NBIA) and other childhood movement disorders.

Strategic Plan: Downloadable PDF of our 2017-2021 strategic plan summary.

Board of Directors

Pediatric neurologists make up at least 51% of our Board and join other Directors that include advocacy organization leaders and parents of children with neurologic disorders.


Scott Pomeroy, MD, PhD – President


Dr. Pomeroy is currently the Chair of the Department of Neurology and Neurologist-in-Chief of Boston Children’s Hospital – the highest ranked child neurology department in the country. He additionally serves as the Bronson Crothers Professor of Neurology at Harvard Medical School, and the Director of the Eunice K. Shriver National Institutes of Child Health and Human Development funded Intellectual and Developmental Disabilities Research Center of Boston Children’s Hospital and Harvard Medical School. Dr. Pomeroy is one of the world’s leading experts on pediatric brain cancer.  His group was first to identify genetic markers that predict treatment response of medulloblastomas, the most common malignant brain tumor in children; he was among the first to apply genomic methods to studying childhood cancer.  The results have been nothing short of revolutionary; brain tumors are now being classified by molecular features which define mechanisms of tumorigenesis and predict clinical outcome with much higher precision than clinical criteria.

Dr. Pomeroy has won numerous awards for his research and clinical care of children with embryonal brain tumors including the Sidney Carter Award and the Daniel Drake Medal, and he was the first recipient of the Compassionate Caregiver Award of the Kenneth Schwartz Center, which honors a Massachusetts caregiver who displays extraordinary compassion in caring for patients and their families. In 2017, Dr. Pomeroy was appointed to the National Academy of Medicine.

Anup Patel, MD – President Elect


Anup Patel, MD is board certified in neurology with special qualifications in child neurology.  In addition, he is board certified in epilepsy and clinical neurophysiology.  He is the section chief of neurology at Nationwide Children’s Hospital and is the director of the complex epilepsy clinic. He is an associate professor for neurology and pediatrics at Nationwide Children’s Hospital and The Ohio State University Medical Center in Columbus, Ohio.  He has journal publications and clinical research interests in the field of pediatric epilepsy, health care utilization, learning healthcare systems, and quality improvement.


Ann Tilton, MD  – Past President


Dr. Tilton is a Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center in New Orleans, Louisiana.  She is director of the Rehabilitation Center at Children’s Hospital of New Orleans and director of the Comprehensive Spasticity Program.  Special interests include neurorehabilitation, neuromuscular disorders, and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone. Dr. Tilton has served on the executive committee of the Professors of Child Neurology and has been active in the national Child Neurology Society as a councilor, Secretary/Treasurer, and served as President of the organization. She is currently a member of the Board of Directors of the Child Neurology Foundation.  She has been involved in the American Academy of Neurology Board of Directors where she served as the treasurer of the American Academy of Neurology Institute. Residency education is one of her priorities and she served as a member and Vice Chair of the ACGME Neurology Residency Review Committee (RRC). She is currently the Chair of the American Board of Psychiatry and Neurology (ABPN). Her interest in children with disabilities extends to the American Academy of Pediatrics where she served on the national Council for Children with Disabilities. Additionally, she is a certified member of the American Society of Neurorehabilitation and has been active on the executive committee. Dr. Tilton has been board certified by the American Board of Pediatrics, the American Board of Psychiatry and Neurology with Special Qualifications in Child Neurology and the American Board of Psychiatry and Neurology in Clinical Neurophysiology. She has published on numerous topics and has spoken nationally and internationally on child neurology, rehabilitation, and spasticity management.

Shaun Hussain, MD, MS – Secretary


Dr. Hussain is an Assistant Professor of Pediatrics at UCLA and he is the director of the UCLA Infantile Spasms Program. His clinical practice is dedicated to infantile spasms and other forms of epileptic encephalopathy. With the recognition that infantile spasms are under-recognized and frequently misdiagnosed—with often deleterious consequences—Dr. Hussain leads a web-based effort (www.InfantileSpasmsProject.org) to increase public understanding of infantile spasms. Although focused on infantile spasms, his research efforts are wide-ranging and include (1) the assessment of novel treatments for infantile spasms, (2) the development of quantitative EEG measures of disease burden to facilitate clinical trials, (3) the evaluation of proposed electrophysiologic and metabolic (PET) biomarkers of epileptogenesis, (4) the critical appraisal of “established” treatments for infantile spasms, and (5) an effort to quantify the magnitude and impact of diagnostic delay in the treatment of infantile spasms. Dr. Hussain received a career development award from the Epilepsy Therapy Project and holds the Elsie and Isaac Fogelman endowed chair in pediatric neurology at UCLA.

Stephen Peters – Treasurer


Stephen Peters works as a national commercial real estate broker and is the proud father of three children.  Over the past fifteen years, Stephen has worked to help children since his second daughter became a patient at the Pediatric Epilepsy Program at UCLA.  While Kyra was a patient there, Stephen co-founded and served as the Vice-President of the Board of Directors for the Pediatric Epilepsy Project, which raised monies for children impacted by neurological issues.  Additionally, he serves on the Board of Directors for PCDA, the Professional Child Development Associates, which helps children and families with Autism.

Believing community activity and engagement is crucial to creating happy people, you can find Stephen coaching Little League or YMCA basketball most seasons in South Pasadena CA, and even wagering on a golf match with his buddies when the opportunity arises.


Sandra Cushner-Weinstein
Sandra Cushner-Weinstein PT, LICSW, LCSW-C


Sandra Cushner-Weinstein has a long history of designing programs, directing health organizations, and establishing non-profit agencies to serve children with chronic health conditions, their families and the community. Sandra is the founder and director of the Brainy Camps Association, a subsidiary of Children’s National serving children with epilepsy, neurofibromatosis, Tourette syndrome, cerebral palsy, autism, down syndrome, hydrocephalus, congenital heart disorders, sickle cell disease and transitioning youth. As a practicing clinician, Sandra provides counseling for children, teens, and parents, promotes community education and conducts leadership training among teens and young adults with chronic health conditions. Her work in the field of epilepsy includes the development of clinics for the Newly Diagnosed, production of an educational DVD: “Coping with Epilepsy: From Seizures to Success” (English and Spanish), and serving on the Institute of Medicine for the Public Health Dimensions of the Epilepsies. Prior to developing Brainy Camps, Sandra was the Director of the Epilepsy Foundation for the National Capital Area, from 1991-1998. During this time, she established the first camp in the metropolitan area for children with epilepsy.  Ms. Cushner-Weinstein also served as the director of the Multiple Sclerosis Society of Santa Clara, California from 1986-1991 where she wrote grants and conducted research, and organized educational conferences, including at Stanford University. From 1981-85, she established and directed Intervention with PACT (Parents & Children Together). a center-based, non-profit organization with an interdisciplinary team of professionals in Baltimore, Maryland. to provide assessments and interventions for children, age birth to six, and their parents. She also created and established the first mainstreamed daycare in Baltimore, MD. From 1978-81, Sandra was awarded a demonstration project grant from the state of Maryland to develop the first Parent Infant Intervention Program in the Department of Pediatrics at the University of Maryland School of Medicine. Prior to this position, Sandra practiced physical therapy and became the Chief Physical Therapist for the United Cerebral Palsy Association.  Ms. Cushner-Weinstein holds licenses in Clinical Social Work and Physical Therapy in several states, where she has served on several committees and Boards. Sandra is a principle investigator with research investigating quality of life, resiliency, adaptive coping and parenting stress in chronic health populations. She has published several papers and currently holds faculty appointments in Pediatrics and Neurology at the George Washington University School of Medicine.

Julie Gilbert, MBA, CPA


John C. Hutchins


John has practiced law since 2007, working in-house and growing his professional career with the American Academy of Neurology (“AAN”) and its related organizations. The AAN is a 501c6, professional association comprised of 30,000 neurologists and neuroscience professionals, nationally and internationally. John began as a legal intern in 2006 and was hired as a Staff Attorney in 2007. John now serves as AAN’s Deputy General Counsel. In this role, John manages the legal and policy services for the AAN and its affiliate, and their Boards of Directors. John has participated in high-level strategic initiatives and built relationships with peers at other membership associations. He is currently chair of the General Counsels Component Group for the Council of Medical Specialty Societies and past chair of the Minnesota State Bar Association’s Health Law Section.  

John’s other philanthropic passion (along with CNF) is volunteering for Youth Farm, a youth development organization in the Twin Cities utilizing urban farming to educate and cultivate leadership. John is currently chair of the Board of Directors for Youth Farm.  

John’s most important roles are proud husband to Lindsey and dad to their girls, Mae and Georgie. They live in Lakeville, MN along with their 100lb Pyrenees-mix, Oliver.



Thomas Langan

Thomas J. Langan, MD


After medical school at Brown University and neurology training at Washington University, I have been at SUNY Buffalo since 1988. I am an Associate Professor of Neurology, Pediatrics, and Physiology and Biophysics. My original research used brain cell cultures to study processes related to brain injury. More recently, I have conducted research regarding leuko-dystrophies. I coordinate several research projects in my roles as Clinical Director of the Hunter James Kelly Research Institute, and as President of the New York State Krabbe Disease Consortium, both held since 2013. I have consequently been an NIH-funded principal investigator on both basic science and clinical projects.  Our current efforts include expansion of the World Wide Registry for Krabbe Disease, a database that now has clinical and genetic information for over 180 affected patients, and incorporating this registry into international data-sharing initiatives. We interact extensively with several patient advocacy groups.

To better understand phenotypes, we are conducting long-term follow-up studies of afflicted children, and also examining neuro-developmental parameters before and after therapeutic transplantation.  Our current emphasis is uncovering new biomarkers that may predict onset of symptoms, enabling targeting those pre-symptomatic children who are most likely to respond to leuko-dystrophy therapies.

And since 2008, as a Ski Patroller I have satisfied aspirations for altruism and for enjoyment of winter sports, thereby providing first aid and transportation downhill for skiers injured on Buffalo’s frigid slopes.

Jonathan W. Mink, MD, PhD


Dr. Mink is the Frederick A. Horner Endowed Professor in Pediatric neurology and Professor of Neurology, Neuroscience, and Pediatrics at the University of Rochester (NY) where he is also Chief of Child Neurology and Vice Chair of Neurology.  Dr. Mink received his BA (Biology-Psychology) and MA (Psychology) from Wesleyan University and his MD and PhD (Neuroscience) from Washington University where he worked in the lab of Thomas Thach, MD.  He completed residency training in Pediatrics and Pediatric Neurology at Washington University / St. Louis Children’s Hospital.  After completing a fellowship in Movement Disorders he joined the faculty in Neurology, Anatomy & Neurobiology, and Pediatrics at Washington University in 1994 before being recruited to the University of Rochester in 2001.

Dr. Mink has an active clinical research program focused on Batten Disease and movement disorders in children.  In addition, he has a basic and translational research program focused on understanding the control of movement and mechanisms of movement disorders. Clinically, he specializes in pediatric movement disorders with special interests in dystonia and Tourette Syndrome. He is recognized internationally for his work and clinical expertise in pediatric movement disorders, Batten Disease, and basal ganglia physiology. Dr. Mink was the recipient of the first Dr. Oliver Sacks Award from the Tourette Association of America in recognition for his many contributions to Tourette Syndrome Research, Education, and Advocacy.

He serves on several advisory committees including the National Advisory Council of NINDS, the Board of Directors of the International Child Neurology Association, and the Executive Board of the Child Neurology Society. He is President-elect of the Child Neurology Society. He serves as an Associate Editor of Neurology.

Donald Pearl


Donald has spent 28 years in the pharmaceutical industry working in positions of increasing responsibility at Allergan, IPSEN Biopharmaceuticals and Deknatel – A Division of Pfizer. His experience has spanned from selling pharmaceuticals, surgical devices and topical skincare, to leading U.S. and international sales and marketing teams, corporate account management, leading reimbursement policy and access teams, and sales operations. Donald’s has spent approximately 24 years working in Neurology and Physical Rehabilitation medicine and has served on the Corporate Advisory Councils of the Child Neurology Foundation, American Academy of Neurology and American Academy of Physical Medicine and Rehabilitation.

Donald holds a Bachelors degree from Rutgers College and a Certificate in Healthcare Management from New York University.

Donald is a retired military officer.

Donald has served on the Board of the Orange County United Way and is currently on the Foundation Board of the Children’s Specialized Hospital of New Jersey.

Phillip L. Pearl, MD


Phillip L. Pearl, M.D. is Director of Epilepsy and Clinical Neurophysiology at Boston Children’s Hospital and William G. Lennox Chair and Professor of Neurology at Harvard Medical School.  Dr. Pearl, originally from Baltimore, attended Johns Hopkins University and Peabody Conservatory of Music and University of Maryland School of Medicine.  He took his residency at Baylor College of Medicine in Houston and fellowship at Boston Children’s Hospital.  He was Division Chief of Neurology at Children’s National Medical Center and Professor of Neurology, Pediatrics, and Music at the George Washington University School of Medicine until returning to Boston in January 2014.  His major research interest is inherited metabolic epilepsies with specific focus on disorders of GABA metabolism.  Dr. Pearl is Past President of the Professors of Child Neurology and President-Elect of the Child Neurology Society.  He has authored over 170 peer-reviewed manuscripts and over 120 chapters and reviews, written or edited five books including one translated into Chinese and another into Japanese, and produced two musical CDs, the first of which had its debut at Georgetown’s famous Blues Alley and supports the care of indigent children in the capital city, Washington, D.C.

Scott Perry, MD


Dr. Perry (@TheNotoriousEEG) is the Medical Director of Neurology and the Genetic Epilepsy Clinic, as well as co-Director of the Jane and John Justin Neurosciences Center at Cook Children’s Medical Center, Fort Worth, TX. He completed his MD at the University of Mississippi School of Medicine and general pediatrics and child neurology training at Emory University. He completed a Clinical Neurophysiology fellowship at Nicklaus Children’s (formerly Miami Children’s Hospital) before joining Cook Children’s in 2009. His clinical and research interests include the use of epilepsy surgery for the treatment of intractable childhood epilepsy and the evaluation and treatment of genetic epilepsy syndromes. Outside of my clinical and research interests, I serve on a number of local, national, and international committees dedicated to improving the care of childhood onset epilepsy. My free time is often spent with my wife and two daughters- usually at one of their cheer competitions. I enjoy music of all types as well as collecting art, especially pieces related to the blues and my childhood home of the Mississippi Delta.

W. (Donald) Shields, MD – Honorary Director


Donald Shields, MD has devoted three decades to children afflicted with epilepsy. As immediate past Chief of the Division of Pediatric Neurology, David Geffen School of Medicine at the Mattel Children’s Hospital at UCLA, he is one of the world’s foremost experts on pediatric epilepsy. He currently serves as Emeritus Professor of Neurology and Pediatrics at UCLA. As a forceful advocate for the early use of surgery to treat some childhood epilepsy syndromes, his efforts have established UCLA as one of the world’s leading centers for pediatric epilepsy surgery, treatment and research. In. 1980, he championed the founding of the UCLA Pediatric Epilepsy Program to fulfill his vision of a comprehensive epilepsy treatment and research center focused on epilepsy in infants and young children.

Sue Yudovin, RN, MN, CPNP


Sue Yudovin is a pediatric nurse practitioner at UCLA Mattel Children’s Hospital, in Los Angeles. She coordinates the pediatric epilepsy surgery program as well as practices in the BrainSPORT concussion/TBI program. She sees patients in clinic with concussions and participates in educational events for youth athletes about concussion prevention and, “If in doubt, sit it out.”


Mary Zupanc, MD


Dr. Mary Zupanc is a professor in the Department of Pediatrics and Neurology at the University of California-Irvine (UCI).  She is also the Division Chief of Pediatric Neurology UCI/Children’s Hospital of Orange County, the Director of the Pediatric Comprehensive Epilepsy Program, and the Program Director for the UCI Pediatric Neurology Residency Program.  Dr. Zupanc received her undergraduate degree in Zoology from the University of Wisconsin—Madison in 1974 and her MD degree from UCLA in 1979.  She completed her pediatric residency training at the University of Washington—Seattle/ Harbor –UCLA Medical Center and her pediatric neurology training at the University of Wisconsin-Madison under the mentorship of Dr. Raymond Chun.  Subsequently, her training in epilepsy has been broad, with additional training at the University of Wisconsin, UCLA, and Stanford University.  She was instrumental in the development of comprehensive pediatric epilepsy programs at the Mayo Clinic, Columbia University, the Medical College of Wisconsin, and currently, the University of California-Irvine/Children’s Hospital of Orange County.

Dr. Zupanc is board certified in Pediatrics, Neurology with special competency in Child Neurology, Clinical Neurophysiology, and Epilepsy.  She has published many articles in peer reviewed journals on a variety of topics, including neonatal seizures, infantile spasms, outcomes of pediatric epilepsy surgery, and the efficacy of felbamate in intractable pediatric epilepsy.

Dr. Zupanc has been a member of the Child Neurology Society (CNS) and the American Epilepsy Society (AES) since the early 1980s.  She has had an active role in the CNS and has served on several committees, including Membership, Electronics, and Legislative Committees.  She has also been active in AES, serving as the co-chairperson for the Women with Epilepsy SIG.  She is currently on the Nominating Committee of the AES.  Dr. Zupanc has been a member of the Professors of Child Neurology (PCN) for many years.  In addition, Dr. Zupanc has served on the ABPN Maintenance of Certification Committee and has recently completed her tenure on the United Council of Neurological Subspecialties. Dr. Zupanc has also been a program director for pediatric neurology residency training programs at the University of Wisconsin and the University of California-Irvine.  She is passionate about education and has been given multiple awards for teaching recognition and clinical care.

Ex Officio Directors – Non-voting

Roger Larson
Executive Director, Child Neurology Society


Roger Larson graduated from the University of Minnesota with a double-major in American Studies and History. While at the U, he stumbled into a part-time job organizing anti-epileptic drug studies in the Division of Pediatric Neurology (chaired by Ken Swaiman). In time, he parleyed that position into a part-time supporting role with the Child Neurology Society, attending his first CNS Annual Meeting in Halifax in 1988. Twenty-three later, following the Society’s 40th Annual Meeting in Savannah, he accepted a promotion from Associate to Executive Director, succeeding the Society’s first ED, Mary Currey. In his five years at the helm, Roger has overseen a dynamic growth in membership and annual meeting attendance, strengthened partnerships with allied neurological organizations (including the Child Neurology Foundation), and cultivated a culture of engagement among members through newly created and enhanced communication tools including CNS Connections, two websites—a primary, public and committee and special interest group “community” website—with a third, on-line learning website in development and set to launch in late September. Roger prides himself on being able to recite the names of every past and present officer of the CNS, is humbled by the memory of having met all but five of them, and honored to be able to call a goodly number of them friends.

Amy Brin, MSN, MA, PCNS-BC
Executive Director/CEO, Child Neurology Foundation


Amy Brin has been working on behalf of children with special needs and their families for nearly two decades. Throughout her career, she has enjoyed marrying her clinical and executive experience in working to improve the lives of children and their families. Her success has been built on the strong ability to form trusted and collaborative partnerships, strategic risk-taking, and personal transparency. Brin was named Executive Director of CNF in 2015; under which, it has experienced unprecedented growth in strategic partnerships, programming, and overall operations.

Prior to joining CNF, Brin led the development of and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She has served as a national consultant regarding building systems of care for children and youth living with special healthcare needs, with specific interest in program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. She is a published author, and award-winning speaker. Brin is a Board-certified pediatric advanced practice nurse.

And if you asked Amy what she thinks are important topics to know about her, she’d most likely convey her strong belief that the bottom of a potato chip bag comes far too quickly, creating a better tomorrow for all children is a shared responsibility for this world, and her greatest treasures in this life are her  sons, Ari and Roman.

Contact Us

Child Neurology Foundation
201 Chicago Avenue #200
Minneapolis, MN 55415


Looking for a Neurologist?

If you are looking for a neurologist, our partners at the American Academy of Neurology (AAN) have a helpful “Find a Neurologist” tool that enables you to search for a neurologist by specialty, last name, city, or state. To find a neurologist who sees children and teens, select “Child Neurology” from the list under “Subspecialty.”

Financial Statements

FY2019  Child Neurology Foundation IRS 990 | FY2018 Child Neurology Foundation IRS 990 | FY2017 Child Neurology Foundation IRS 990