Collaboration is at the core of our mission. While the Child Neurology Foundation is in a unique position to serve the overarching needs of all members of the child neurology community and seeks to fill the unmet needs not addressed by disease-specific advocacy and support groups, we recognize that collaborative initiatives generate steadier progress and stronger outcomes and, ultimately, provide greater value for the children we serve.
Toward that end, we welcome the opportunity to speak to you about your role in the child neurology community, your passions and purpose, and how a handshake acknowledging support of one another’s missions opens the door for future collaborative opportunities.
Child Neurology Foundation does not have an official advocacy membership program at this time. We simply want to continue to strengthen connections between all members of the child neurology community by staying apprised of the many initiatives that will lead to the realization of our vision: A world in which all children affected by neurologic disorders reach their full potential.
If you are interested in partnering on a specific project or simply want to connect and formalize a partnership, please contact Stacia Grace, Director of Operations, at 952.846.7942 or email@example.com.
Visit our Corporate Advisory Board page to learn more about the exclusive benefits we offer our CAB members, explore membership levels, and learn about our current CAB members.
The American Academy of Neurology’s mission is to promote the highest quality patient-centered neurologic care and enhance member career satisfaction.
The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases.
The Association of Child Neurology Nurses (ACNN) is an international nonprofit organization of nurses and other health care professionals caring for children with neurologic conditions. ACNN’s mission is to promote excellence in child neurology nursing practice through the development and support of nurses caring for children with neurologic conditions. They aim to advance standards of care, provide educational opportunities, foster research and facilitate regional and international multidisciplinary collaboration.
Batten Disease Support and Research Association (BDSRA) is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action.
Brendon’s Smile was officially founded in 2009 as a 501(c) (3) not-for-profit organization to raise awareness of pediatric stroke. Their mission is to increase awareness and knowledge among both the general public and medical professionals about strokes and cerebrovascular disease in the unborn, newborns, and children up to 18 years of age. In 2015 they expanded their mission to support research that involves those impacted by pediatric strokes.
BVVL International is a project of the Thisbe and Noah Scott Foundation. Created in June 2008, it is the first web-based resource tool for physicians, researchers, and families interested in learning more about Brown-Vialetto-Van Laere syndrome.
The Child Neurology Society is the preeminent non-profit professional association of pediatric neurologists in the United States, Canada, and worldwide devoted to fostering the discipline of child neurology and promoting the optimal care and welfare of children with neurological and neuro developmental disorders. These disorders include epilepsy, cerebral palsy, mental retardation, learning disabilities, complex metabolic diseases, nerve and muscle diseases and a host of other highly challenging conditions.
The International Alliance for Pediatric Stroke (IAPS) was established to facilitate collaboration among the many worldwide pediatric stroke communities.
The LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and support for individuals living with LGS and their families.
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
The Pediatric Epilepsy Research Foundation (PERF) was established in 2004 as a not-for-profit foundation to support research in pediatric epilepsy and other pediatric neurologic conditions. PERF’s mission is to enhance the quality of life of children with epilepsy and/or other neurologic disorders. To accomplish this mission, the Foundation, in particular seeks to support: Efforts to improve treatment options for infants, children and adolescents with epilepsy; Meritorious clinical and basic science research related to epileptic conditions in children; The encouragement of the recruitment and education of young physicians in the field of child neurology.
It is the mission of the Thisbe and Noah Scott Foundation, Inc. to save lives by promoting research, awareness and support for children and families affected by pediatric neuromuscular diseases.
Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.