Introducing… Infantile Spasms Mnemonic

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  Tomorrow, December 1st, Kicks Off Infantile Spasms Awareness Week (ISAW) Identifying infantile spasms (IS) is critical for parents, caregivers, and providers. The earlier a child is diagnosed, the greater the chances that the spasms can be treated—helping to minimize the long-term harm to a child’s developing brain. CNF convenes…  Read More

Help Us Support More Families

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  “No journey is the same, but it’s nice to know other people understand.” “I came across your site and I would like for you to help me save my son’s future.” “It’s so hard to see the most precious thing you have suffering.” “This is not an easy road…  Read More

Thankful Tuesday from CNF

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It seems that every day over the next week has a special name: Black Friday, Small Business Saturday, Cyber Monday, so CNF has decided that today is Thankful Tuesday! We have compiled a list of 7 people/things for which we are thankful! Of course, the list is not all-inclusive and somewhat random… but a wonderful list,…  Read More

November 17: Join Us for a Conversation About SUDEP

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Let’s Talk About Sudden Unexpected Death in Epilepsy (SUDEP): A Conversation with Parents and Doctors Webinar  |  November 17, 2017  |  12-1:15 pm (ET)  |  Register Parents of children living with epilepsy should be informed of all risks of their child’s neurologic condition – including Sudden Unexpected Death in Epilepsy…  Read More

New Social Media Opportunity – Don’t Miss Out!

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Social Media Network for CNF Partners When we introduced our new CNF Partners email list earlier this year, we conveyed that Pathways, our monthly e-Newsletter and later, Opportunities & Announcements (O&A), our weekly single-topic e-blast, were ways for not only CNF to share patient education information, advocacy events, scholarships, grants,…  Read More

Curl up with a Good Webinar

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Webinars of Interest to the Child Neurology Community Date | Time Topic | Title Speaker(s) Sponsor(s) Register | Info October 25 11:00 am Central A diagnostic odyssey: Why early and accurate genetic testing in epilepsy is so important Brenda Porter, MD, PhD; Stanford University | Kim Nye; TESS Research Foundation CURE…  Read More

2017 Transition of Care Video Series

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  Transitions is a lifespan issue. With the new Transition of Care Video Series, CNF shows the journey of 2 patients and their families as they approach transitioning from a child neurologist to an adult neurologist. The Transition of Care Video Series also showcases perspectives and experiences of 5 national transitions…  Read More

2017 CNF Educational Initiative: SUDEP

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  Outcomes & Resources |  2017 CNF Educational Initiative: SUDEP     CNF’s Board of Directors selected Sudden Unexpected Death in Epilepsy (SUDEP) as the topic for its 2017 symposium during the Child Neurology Society (CNS) annual meeting. Due to CNF’s service as a collaborative center for the child neurology community,…  Read More

What a Difference One Week Makes…

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Our Tuesday “O&A” is typically a single topic email, but SO much has happened in the past week while CNF was at the annual Child Neurology Society, we wanted to send a brief recap.   At the CNF Board of Directors meeting, we welcomed our new president, Ann Tilton, MD…  Read More

PCORI Announcement

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CNF Approved for a $50,000 Funding Award by the Patient-Centered Outcomes Research Institute [October 6, 2017] – The Child Neurology Foundation (CNF) has been approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project on peer support for families living with pediatric neurologic conditions. CNF…  Read More