Have You Heard?

News and Updates from Child Neurology Foundation

Rare Neurological Disease Special Report

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Neurology Reviews presents its third annual Rare Neurological Disease Special Report, a compendium of articles and information covering a wide range of rare neurologic diseases. CNF is committed to the awareness and education of these rare conditions as evidenced by its newly-convened RARE Child Neurology Workgroup – a collaborative workgroup with…  Read More

Novartis drug Votubia® receives EU approval to treat refractory partial-onset seizures in patients with TSC

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MEDIA RELEASE • COMMUNIQUE AUX MEDIAS Novartis International AG Novartis Global Communications CH-4002 Basel Switzerland http://www.novartis.com • MEDIENMITTEILUNG Novartis drug Votubia® receives EU approval to treat refractory partial-onset seizures in patients with TSC   Votubia is the first adjunctive treatment approved in the EU specifically for partial- onset seizures in…  Read More

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Creatine helps supply energy to all cells in the body. It helps increase adenosine triphosphate (ATP). Creatine is produced in the liver, which makes it out of three amino acids: arginine, glycine and methionine. Most of our body’s creatine (approximately 95%) is stored in the muscles that support the skeleton….  Read More

Novartis drug Votubia® receives EU approval to treat refractory partial-onset seizures in patients with TSC

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Basel, January 31, 2017 – Novartis today announced that the European Commission has approved Votubia® (everolimus) dispersible tablets* as an adjunctive treatment for patients aged two years and older whose refractory partial-onset seizures, with or without secondary generalization, are associated with tuberous sclerosis complex (TSC). Votubia is now the first…  Read More

Special Needs Horseback Competition Provides Fun For Participants

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The 121st Fort Worth Stock Show offers fun and entertainment for lots of fans. However for more than 200 horseback riders with special needs the real fun happened before the show officially began. These young riders are competing in the Chisholm Challenge. For participants the Chavez family, day to day life…  Read More

Carrie Fisher’s Last Advice, “As Your Bipolar Sister”

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Star Wars fans around the world were saddened to hear about the passing of Carrie Fisher. Along with being a great actress, she was also a championed awareness for those dealing with depression, bipolar disorder, and other brain disorders. In an advice column published on Nov. 30. Fisher was asked, “Have…  Read More

Special Needs Ice Competition

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Outside of Chicago a group of special needs athletes were participating in the 2017 Champions Special Needs Skating Competition. For the participants, it’s not just about the competition. It’s about sharing their love for skating with others. The Competition took place on Jan 7 at the Franklin Park Ice Arena. Over 100 athletes from…  Read More

Child With Special Needs Gets New Service Dog

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Everyone has had a Christmas wish to wake up on Christmas morning with a new pet. For Cruz Smith, that wish was for a dog. What makes this story different is that Cruz was diagnosed at birth with Fetal Alcohol Syndrome, and he was hoping for a service dog for Christmas With…  Read More