Rare Access to Critical Therapies (ACT) Stakeholder Summit

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CNF is proud to be co-convening the first of-its-kind All Stakeholder Access to Critical Therapies Summit with Global Genes on October 5, 2018 in Irvine, CA. The issue of access has huge implications for every health system stakeholder – patients, providers, payers, government, industry and investors – from ‘downstream’ at the point…  Read More

FDA Approves Epidiolex®

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The Child Neurology Foundation is pleased with the Federal Food & Drug Administration’s (FDA) approval Epidiolex ®, first prescription pharmaceutical formulation of highly-purified cannabidiol (CBD) and the first in its class of anti-epileptic drugs. It has been approved for the treatment of Lennox-Gastaut Syndrome and Dravet Syndrome – rare forms…  Read More