2017 Transition of Care Video Series

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  Transitions is a lifespan issue. With the new Transition of Care Video Series, CNF shows the journey of 2 patients and their families as they approach transitioning from a child neurologist to an adult neurologist. The Transition of Care Video Series also showcases perspectives and experiences of 5 national transitions…  Read More

2017 CNF Educational Initiative: SUDEP

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  Outcomes & Resources |  2017 CNF Educational Initiative: SUDEP     CNF’s Board of Directors selected Sudden Unexpected Death in Epilepsy (SUDEP) as the topic for its 2017 symposium during the Child Neurology Society (CNS) annual meeting. Due to CNF’s service as a collaborative center for the child neurology community,…  Read More

What a Difference One Week Makes…

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Our Tuesday “O&A” is typically a single topic email, but SO much has happened in the past week while CNF was at the annual Child Neurology Society, we wanted to send a brief recap.   At the CNF Board of Directors meeting, we welcomed our new president, Ann Tilton, MD…  Read More

PCORI Announcement

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CNF Approved for a $50,000 Funding Award by the Patient-Centered Outcomes Research Institute [October 6, 2017] – The Child Neurology Foundation (CNF) has been approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project on peer support for families living with pediatric neurologic conditions. CNF…  Read More

2017 Infantile Spasms Hero & Hope Awards

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  NOMINATIONS NOW ACCEPTED FOR: IS HOPE AND IS HEROES AWARDS The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1 through 7. To recognize those who have made an outstanding contribution to families affected by infantile spasms, nominations are now being accepted for both the…  Read More

Assistance for Children with Infantile Spasms

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Applications for the 2017 Harnett Mini-Grant: Now Being Accepted In January 2014, the Harnett Mini-Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was was diagnosed with infantile spasms and passed away before his first birthday. Each year, CNF is proud…  Read More

What Do You Think CNF Should Tackle in 2018?

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CNF is looking ahead to 2018. We always give our partners a voice in where we should focus our efforts next… so please let us know what you think What is an unmet need in the child neurology community? What disease or condition really needs a champion? What do you…  Read More

Be Brave. Be Fierce. Be Mighty: Pediatric Stroke Warriors

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Child Neurology Foundation is excited to share an exceptional resource, developed for families, by our partners at Pediatric Stroke Warriors.   For some, the very thought of a child having a stroke is new. Most often we associate stroke with adults, so its usually a challenge to understand that a stroke…  Read More

Free Comic Book: Transitions & Epilepsy

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Comic Book, “Understanding Transitional Care in Epilepsy” Now Available “Understanding Transitional Care in Epilepsy” is the 6th comic book in the “Medikidz Explain Epilepsy” series. The peer-reviewed, educational comic book focuses on the transition process from pediatric to adult health care for patients living with epilepsy, and has been endorsed…  Read More

2018 Research Opportunities: Now Available (AAN)

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Scientific and medical communities have called the shortage of investigators a crisis that will impact far more than the 50 million Americans currently affected by a neurologic disease. Our partners at the American Academy of Neurology (AAN) have launched an ambitious research program, furthering their commitment to make a profound…  Read More