Free Comic Book: Transitions & Epilepsy

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Comic Book, “Understanding Transitional Care in Epilepsy” Now Available “Understanding Transitional Care in Epilepsy” is the 6th comic book in the “Medikidz Explain Epilepsy” series. The peer-reviewed, educational comic book focuses on the transition process from pediatric to adult health care for patients living with epilepsy, and has been endorsed…  Read More

2018 Research Opportunities: Now Available (AAN)

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Scientific and medical communities have called the shortage of investigators a crisis that will impact far more than the 50 million Americans currently affected by a neurologic disease. Our partners at the American Academy of Neurology (AAN) have launched an ambitious research program, furthering their commitment to make a profound…  Read More

CNF Transition of Care Video Production

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Transition of Care is the most diverse and comprehensive program at Child Neurology Foundation.  In late July, CNF worked with a director and film crew to shoot videos that would illuminate the complexity of transition of care for young adults living with neurologic conditions, their families, and the health care providers…  Read More

Help Improve Communication Around Epilepsy

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Child Neurology Foundation is conducting a survey concerning knowledge and communication about epilepsy between medical professionals and families.  Results will be used to improve conversations about epilepsy.  Caregivers of people with epilepsy can complete the brief survey at: https://www.surveymonkey.com/r/CNF-2017  Read More

FDA Approves Eisai’s FYCOMPA® (perampanel) for Use as Monotherapy for the Treatment of Partial-Onset Seizures

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   First antiepileptic drug (AED) to apply FDA’s regulatory pathway of extrapolation for monotherapy use; FDA proposed using this pathway to get monotherapy options to patients sooner    FYCOMPA has now treated more than 100,000 patients worldwide across different indications and formulations    Once-a-day FYCOMPA is the first and only…  Read More

Do You Know a Junior Leader?

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Our partners at the Tuberous Sclerosis Alliance are now offering their 3rd annual TS Alliance Junior Leader Program. If you are a young adult affected by TSC, consider applying for the Junior Leader Program. Applications are due AUGUST 1, 2017. The Junior Leader Program includes a trip to Washington, DC to…  Read More

CNF 2017 Annual Educational Initiative: SUDEP

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Each year, CNF selects a topic to be the focus of its child neurology community educational initiative. For 2017, CNF selected Sudden Unexplained Death in Epilepsy (SUDEP) in children. SUDEP is when a seemingly healthy person with epilepsy dies unexpectedly and no clear reason for the death can be determined. The risk…  Read More

Cerebral Palsy is a Diagnosis, Not a Destiny: NEW OFFERINGS

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CCPM is on the Move Children’s Cerebral Palsy Movement (CCPM) executed a successful multi-institutional, multi-disciplinary scientific pilot study, involving boys & girls with CP that demonstrated improvements in both cognitive and physical function. As CCPM has gotten to meet and know more families impacted by CP, they have come to…  Read More

NEW INTERACTIVE GRAPHIC: Tools for Transitioning Young Adults with Neurologic Conditions

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Led by CNF, the consensus statement, The Neurologist’s Role in Supporting Transition to Adult Health Care* was published in July 2016. The statement identifies 8 Common Principles for the neurology team to adapt and employ-supporting the medical transition of your with neurologic conditions. To move policy into practice-ideally resulting in successful transitions-the CNF…  Read More

Midazolam Nasal Spray (USL261) Phase 3 Trial Meets Primary Efficacy Endpoint In Patients With Seizure Clusters

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CAMBRIDGE, England, April 26, 2017 /PRNewswire/ — Proximagen Limited (Proximagen) today announced that its pivotal Phase 3 trial of intranasal midazolam (USL261) for the rescue treatment of seizure clusters, met its primary efficacy endpoint in a top-level analysis of the data. Based on these findings, Proximagen will approach the U.S. Food…  Read More