Brendan Michael Harnett Infantile Spasms Mini-Grant Application

Meet Brendan Harnett

BABYHans Christian Anderson said that, “A human life is a story told by God.”

Brendan’s story was one of courage, determination, dignity, grace, and love.

Brendan fought to conquer his neurological spasms for nine months before God called him home.  During his life he had a profound impact on his family, his medical team, and the countless number of people who knew his story and who prayed for him.  Brendan briefly made the news on CNN during Hurricane Sandy when he was evacuated, along with his nurses, to another hospital from NYU. The spasms, medication, and time spent in multiple hospitals took its toll on his body when he passed away unexpectedly at an infant’s rehab hospital in New York.  While Brendan may have had his “fifteen seconds of fame” on CNN, his real moment of fame came after his passing.  Brendan’s heart valve was generously donated by his parents to save the life of another child.  Today, that child’s family rejoices in the same way that Brendan’s family rejoiced when he was born.

Although Brendan’s life on earth was brief, the impact he had and the love he shared continues to grow.  In keeping with the selfless generosity of his life and the example set by Brendan’s parents, this fund is being created to help other families whose children have similar neurological difficulties where insurance coverage is not available to cover medical expenses.  We believe our lives have purpose on many levels and one purpose of Brendan’s life was to raise awareness and assistance for children with neurological issues. It is always true that one rare and exceptional deed is worth a thousand commonplace ones; please consider a donation to Child Neurology Foundation in Brendan’s memory to help families with similar challenges

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MINI-GRANT APPLICATION FORM OVERVIEW

The 2016 application window is now closed.  Applications are reviewed in November with recipients announced during ISAW 2016, December 1-7. One $1000 mini-grant will be awarded.

As part of Infantile Spasms Awareness Week (ISAW), the Child Neurology Foundation (CNF) is proud to partner with the Harnett family to offer one $1000 mini-grant to assist a family with a child diagnosed with infantile spasms. This mini-grant may pay for eligible expenses not covered by insurance, including certain therapies, assistive devices, assessments, and home modifications. Please review the form below for a list of approved purchases. There are “OTHER” fields to list additional proposed expenses.

A committee of volunteer parents, providers, and advocates will review the applications and choose the recipient. The determinations is final and takes into consideration qualification of expenses as well as need. Families are limited to one mini-grant.

Recipients will be contacted the first week of December. ALL applicants will be informed by email of the committee’s determination.

DISBURSEMENT
For tax purposes, payment will be made via check to the recipient when all required paperwork is received, including a mini-grant recipient form and a W9.

Recipients may be contacted to assess the value of the program and the value of the items or services provided by the program. Additionally, recipients may be invited to participate in future committees to review subsequent awards..

Please contact Stacia Grace, Director of Operations at sgrace@childneurologyfoundation.org or 952.846.7942.

PLEASE COMPLETE FORM AND CLICK SUBMIT