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News and Updates from Child Neurology Foundation

Enroll for Epilepsy Genetics Initiative today! Two new enrollment partners added

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Enroll for Epilepsy Genetics Initiative today! Two new enrollment partners added EGI continues building upon the promise to tirelessly search for new ways of understanding the genetics of epilepsy. Bridging the gap between patients, doctors and researchers with a centralized database to house genetic data, the hope is to discover previously…  Read More

GW Pharmaceuticals Announces Positive Phase 3 Pivotal Trial Results for Epidiolex® (cannabidiol) in the Treatment of Lennox-Gastaut Syndrome

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– Primary endpoint achieved with high statistical significance (p=0.0135) showing that Epidiolex treatment reduces drop seizures compared to placebo – – Today’s LGS data follows successful Phase 3 trial in Dravet syndrome announced in March 2016- – Company to hold investor conference call today at 8:00 a.m. EDT/13:00 BST –…  Read More

FYCOMPA® (perampanel) Oral Suspension Now Available as an Option for Patients with Epilepsy Who May Have Difficulty Swallowing Tablets or Prefer Liquids

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Eisai Inc. announced today the availability of FYCOMPA® (perampanel) Oral Suspension, a new bioequivalent interchangeable alternative to the FYCOMPA tablet for patients who have difficulty swallowing tablets or prefer liquids. FYCOMPA CIII is indicated as adjunctive therapy for the treatment of partial-onset seizures (POS) with or without secondarily generalized seizures,…  Read More

ANNOUNCING New CURE Program: Post-Traumatic Epilepsy Initiative

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In collaboration with the U.S. Department of Defense, CURE is excited to launch a NEW research program to support a collaborative, milestone-driven approach to advance the understanding of epilepsy as a result of traumatic brain injury. Webinar/conference call* June 9, 2016 – 12pm ET June 22, 2016 – 4pm ET…  Read More

Partners Against Mortality in Epilepsy Conference

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DATES: Thursday June 23 – Sunday, June 26 LOCATION: The Westin Alexandria, 400 Courthouse Square, Alexandria, VA 22314 CLOSEST AIRPORT: Reagan National (4.5 miles from the PAME hotel) DETAILS: PAME is a meeting of parents and adults with epilepsy, advocates, researchers and doctors to advance dialogue and find solutions for…  Read More

Help Us Improve our Website: Parent, Caregiver, and Advocate Survey

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In preparation for the upcoming Child Neurology Foundation (CNF) Board of Directors’ strategic planning meeting, we kindly request a few minutes of your time to complete a CNF website survey. This survey is designed specifically for parents, caregivers, and advocates and is intended to provide valuable data that will assist us…  Read More

The Epilepsy Foundation: Knowledge about Epilepsy and Risk Factors Survey

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The Epilepsy Foundation is constantly enhancing epilepsy.com. To help, they are asking users for a better understanding of what they know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures. They welcome participation from…  Read More

The Epilepsy Foundation SUDEP Institute will be awarding more than $1 million to address Sudden Unexpected Death in Epilepsy (SUDEP)

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The Epilepsy Foundation SUDEP Institute will be awarding more than $1 million for a series of four prize challenge competitions working to address Sudden Unexpected Death in Epilepsy (SUDEP). These challenges allow us to take advantage of interdisciplinary approaches and alternative perspectives. Through combining and contrasting ideas, the best and…  Read More

UMDF Great Lakes Regional Mitochondrial Medicine Symposium

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Clinical/Medical Sessions (CME) Friday, May 20, 2016 Patient/Family Sessions (non CME) Saturday, May 21, 2016 To view schedule and speakers – visit www.umdf.org/GreatLakesClinicalAgenda. Complete symposium details, including the family agenda, course description, faculty disclosures, and registration are available at www.umdf.org/symposium/greatlakes. CME CREDIT This activity has been planned and implemented in…  Read More

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