Have You Heard?

News and Updates from Child Neurology Foundation

The Arc of Illinois Stipend Funds to Attend Conferences Related to Developmental Disability Issues

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Consumer Stipend Funds The Arc of Illinois, through a grant from the Illinois Council on Developmental Disabilities, administers the Consumer Involvement Program and distributes consumer stipend funds to enable people with developmental disabilities and their family members to attend conferences of their choice that are directly related to developmental disability issues….  Read More

The First Annual Luke G Neurological Scholarship from Bella Soul

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Requirements for Scholarship: Must be a college student living with a neurological disorder. Must be enrolled as full time student. The limitations are not bound by state or university in which the individual attends. —please email proof of enrollment to Bella Soul (does not need to be a transcript; scholarship…  Read More

Ipsen Biopharmaceuticals, Inc. announces FDA approval of Dysport® (abobotulinumtoxinA) for the treatment of lower limb spasticity in pediatric patients aged two and older

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First and only FDA-approved botulinum toxin for the treatment of pediatric lower limb spasticity and studied in patients with cerebral palsy Pivotal study in cerebral palsy patients with lower limb spasticity aged 2 to 17 showed significant improvements in co-primary efficacy endpoints at Week 4 that evaluated Modified Ashworth Scale…  Read More

New Recommendations for Transitioning Youths with Brain Disorders to Adult Care

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The Child Neurology Foundation (CNF) is pleased to announce the publication of a new consensus statement endorsed by the American Academy of Neurology (AAN), Child Neurology Society (CNS), and American Academy of Pediatrics (AAP). “The Neurologist’s Role in Supporting Transition to Adult Healthcare: A consensus statement” was created by an independent…  Read More

Enroll for Epilepsy Genetics Initiative today! Two new enrollment partners added

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Enroll for Epilepsy Genetics Initiative today! Two new enrollment partners added EGI continues building upon the promise to tirelessly search for new ways of understanding the genetics of epilepsy. Bridging the gap between patients, doctors and researchers with a centralized database to house genetic data, the hope is to discover previously…  Read More

GW Pharmaceuticals Announces Positive Phase 3 Pivotal Trial Results for Epidiolex® (cannabidiol) in the Treatment of Lennox-Gastaut Syndrome

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– Primary endpoint achieved with high statistical significance (p=0.0135) showing that Epidiolex treatment reduces drop seizures compared to placebo – – Today’s LGS data follows successful Phase 3 trial in Dravet syndrome announced in March 2016- – Company to hold investor conference call today at 8:00 a.m. EDT/13:00 BST –…  Read More

FYCOMPA® (perampanel) Oral Suspension Now Available as an Option for Patients with Epilepsy Who May Have Difficulty Swallowing Tablets or Prefer Liquids

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Eisai Inc. announced today the availability of FYCOMPA® (perampanel) Oral Suspension, a new bioequivalent interchangeable alternative to the FYCOMPA tablet for patients who have difficulty swallowing tablets or prefer liquids. FYCOMPA CIII is indicated as adjunctive therapy for the treatment of partial-onset seizures (POS) with or without secondarily generalized seizures,…  Read More

ANNOUNCING New CURE Program: Post-Traumatic Epilepsy Initiative

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In collaboration with the U.S. Department of Defense, CURE is excited to launch a NEW research program to support a collaborative, milestone-driven approach to advance the understanding of epilepsy as a result of traumatic brain injury. Webinar/conference call* June 9, 2016 – 12pm ET June 22, 2016 – 4pm ET…  Read More

Partners Against Mortality in Epilepsy Conference

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DATES: Thursday June 23 – Sunday, June 26 LOCATION: The Westin Alexandria, 400 Courthouse Square, Alexandria, VA 22314 CLOSEST AIRPORT: Reagan National (4.5 miles from the PAME hotel) DETAILS: PAME is a meeting of parents and adults with epilepsy, advocates, researchers and doctors to advance dialogue and find solutions for…  Read More

Help Us Improve our Website: Parent, Caregiver, and Advocate Survey

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In preparation for the upcoming Child Neurology Foundation (CNF) Board of Directors’ strategic planning meeting, we kindly request a few minutes of your time to complete a CNF website survey. This survey is designed specifically for parents, caregivers, and advocates and is intended to provide valuable data that will assist us…  Read More

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