News







  • 2014 Shields Research Grant Recipient: Joana Osorio, MD

      University of Rochester “Cell-based therapy for Pelizaeus-Merzbacher disease” This research project aims to develop a cell-based treatment strategy for Pelizaeus-Merzbacher disease (PMD), a severe pediatric disorder of myelin caused by mutations in the proteolipid protein gene (PLP1). By transplanting genetically corrected cells from affected patients in a murine model of PMD, we will test [...]

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  • 2014 CNF PERF Scientific Research Grant Recipient: Kristin Guilliams, MD

    Washington University in St. Louis, School of Medicine, Neurology and Pediatrics “Brain Oxygen Metabolism in Sickle Cell Disease” This award from the Child Neurology Foundation will give a critical foundation to my research career. With this generous funding, I can complete the groundwork for a larger multicenter trial to reduce strokes in children.The Child Neurology [...]

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  • CNF Mini Grant program awards 30 families dealing with Infantile Spasms

    MINNEAPOLIS, Sept. 4, 2014 — Exemplifying their primary mission, the Child Neurology Foundation, (CNF) announced the recipients of thirty mini-grants of $1000 awarded to families dealing with Infantile Spasms (I.S.), an ultra-rare childhood neurologic condition. The genesis of this program (and the recipient-selections) came directly from families dealing with I.S. CNF President, Dr. Don Shields [...]

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  • Autism Legislation Reauthorized

    With little fanfare, President Barack Obama signed a reauthorization of the nation’s primary autism legislation that includes more than a billion dollars in federal funding for the developmental disorder. Signed on Friday, the law calls for $260 million annually through 2019 for autism research, prevalence tracking, screening, professional training and other initiatives. The measure known [...]

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  • Autism Advocate, Vickie Nettles, Dies

    Lafayette, LA Vickie Nettles, a voice of hope for the autism community, died from complications of surgery this morning, according to the Autism Society of Acadiana Board President Robyn Blackwell. “I got the call from one of our board members after she was called by Vickie’s daughter around 6:45 this morning,” she said. After Nettles’ [...]

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  • Child Neuro Channel Adds New Affiliate, Living Well With Epilepsy

    Child Neuro Channel Adds New Affiliate, Living Well With Epilepsy Living Well With Epilepsy, founded in 2009, has become a leading provider of news, personal stories, commentary, interviews, guest posts and awareness events for the global epilepsy community.  The site features a leading epilepsy blog that offers insightful coverage addressing the full spectrum of issues faced [...]

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  • Congressional News July 2014

    Senate Releases Draft Labor-HHS-Education Appropriations Bill for FY2015 The Senate Appropriations Committee released the draft fiscal year (FY) 2015 Labor, Health and Human Services, and Education appropriations bill text and subcommittee report on July 24; more than a month after the Senate Appropriations Subcommittee approved the measure by a voice vote. The National Institutes of [...]

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  • Congressional News June 2014

    House Convenes Hearing on 21st Century Cures On June 11, the House Energy and Commerce Subcommittee on Health held a hearing, entitled, “Examining the Role of Incentives in Advancing Treatments and Cures for Patients,” to ascertain whether current economic and regulatory incentives are sufficient to encourage robust investment in the research and development of innovative [...]

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  • Philanthropist Steve Tisch has pledged $10 million to UCLA’s Dr Giza for TBI Research

    As announcedby President Obama last week,  this single largest gift from an individual to a medical center for a concussion-related initiative will enable Dr Christopher Giza’s BrainSPORT Program at UCLA to establish the world’s most sophisticated research, prevention, diagnosis and treatment program for concussions and brain injuries, with a particular emphasis on young athletes. Philanthropist Steve [...]

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  • College-Bound Student Overcomes Traumatic Brain Injury, Receives Scholarship

    The Terrill Foundation announced that Kayla Meyer of New Prague, Minnesota, has been awarded the 2014 Terrill Scholarship for community leadership, academic persistence, and commitment to pursue her education and career goals. Kayla, a senior at New Prague High School, plans to attend Minnesota State University to study education and communications. As a 7th grader, she [...]

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  • CNF Announces 2014 winners of the Swaiman Scholarship Awards

    The Swaiman Medical Scholarship Award is awarded to up-to-ten 1st- and 2nd-year medical students who receive $3,500 for clinical research in child neurology with the sponsorship of a child neurologist who oversees their work during the summer. Candidates for the award are asked to submit a two page application accompanied by a letter from a [...]

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  • CNF introduces made-for-parents website

    Minneapolis, MN May 5, 2014 – The Child Neurology Foundation (CNF) unveils a new, made-for-parents website with information, success stories, an event calendar, and even a Childrens’ Corner with games and apps. Called the ChildNeuroChannel, the site features ‘Experts Explain’ articles that deliver need-to-know information for caregivers for many of the most common and serious [...]

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  • Research Award Near Endowment

    March 20, 2014 (Minneapolis, MN) The Philip R. Dodge Young Investigator Award is nearing endowment status with a generous $175,000 contribution from Questcor Pharmaceuticals, Inc. The Dodge Award, named after Dr. Philip Rogers Dodge, one of the modern founders of the specialty of pediatric neurology, recognizes a promising young investigator annually with a $20,000 research [...]

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  • Concussion risk not just for football players

    When most people think of sports that pose concussion risks, they probably think of football, hockey or even snowboarding and skateboarding — not basketball. But in 2010, a study in Pediatrics showed that 375,000 youths are sent to the emergency room each year due to basketball-related injuries. more (CBS report)

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  • Deadline Extended to April 25, 2014 for CNF Award Submissions

    The deadline for submitting for any of the 2014 CNF awards has been extended from the end of March to Friday, April 25th, 2014. This includes: The PERF Scientific Award (Pediatric Epilepsy Research Foundation) The Shields Scientific Award Our Swaiman Medical Scholarships

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  • Public Comment Sought on State Children’s Health Insurance Program

    The Centers for Medicare & Medicaid Services (CMS) announced that it is seeking public comment on the State Children’s Health Insurance Program and supporting regulations. Information provided by the states will be used by states to assess their own performance and by patients, advocates, researchers, the government, and health care entities to enhance plan performance, [...]

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  • 2013 CNF Swaiman Medical Scholarship Award-winners Announced

    The Swaiman Medical Scholarship Award is awarded to ten 1st- and 2nd-year medical students who receive $3,500 for clinical research in child neurology with the sponsorship of a child neurologist who oversees their work during the summer. Candidates for the award are asked to submit a two page application accompanied by a letter from a [...]

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  • CNF announces 2013 Advocacy Awards

    As an overarching organization for all all neurologic parent support groups, the Child Neurology Foundation (CNF) takes time each year to highlight the essential work of two such organizations. This year, CNF is proud to recognize The Lennox-Gastaut Syndrome (LGS) Foundation and the Myasthenia Gravis Foundation of America (MGFA).   Nominated by Nancy L. Kuntz [...]

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  • 2013 Infantile Spasms Awareness & LGS Week Starts December 6

    Infantile Spasms (I.S.) is a neurologic emergency that typically begins in the first 4 to 8 months of life and is characterized by bending and jerking of the infant’s torso, neck, arms and legs. An episode can range from a subtle head jerk to spasms that lasts for a few seconds. Most often, these spasms [...]

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  • 2013 CNF Michael SanInocencio LGS Award: Maura RZ Madou, MD

    Child Neurology Fellow, UCSF Benioff Children’s Hospital Dr. Madou is a first year Child Neurology Fellow at UCS. She is enrolled in the competitive flexible residency training program (R25) that selects proposals from a highly qualified group of trainees. Her research will determine genotype-phenotype correlations of LGS using whole exome sequencing and pathway analysis in [...]

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  • 2013 CNF Infantile Spasms Award: Heather Olson, MD

    Attending Neurologist Boston Children’s Hospital The goal of our research is to discover novel genes for infantile spasms and better understand the spectrum of clinical presentations for each gene (genotype-phenotype correlations).  We will study idiopathic infantile spasms and Ohtahara syndrome (infantile spasms and a burst suppression pattern on EEG).  Through gene discover, we hope to [...]

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  • Pearl Meister Greengard Prize awarded to a Child Neurologist

    Huda Y. Zoghbi, M.D., a child neurologist who studies the genetic underpinnings of neurologic diseases has been selected to receive the tenth annual Pearl Meister Greengard Prize — one of the world’s preeminent honors recognizing outstanding achievements by women in science. read more here

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  • Affiliate CHADD seeks Scientist Award Nominations

    CHADD (Children and Adults with Attention Deficit Disorder) is now taking applications for its Young Scientist Research Fund Awards, a program to recognize new researchers making contributions to the understanding of ADHD.  CHADD will support two ADHD researchers with: ~ an unrestricted cash award of $5,000 each; ~ recognition at CHADD’s Annual International Conference on ADHD [...]

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  • 2012 CNF Award recipients announced

    Each year the Child Neurology Foundation presents various awards to promote research, entrance into the field of child neurology, and recognizing successful advocacy organizations. This year we are proud to award: Infantile Spasms Heroes Award to Dr Ali Mostajelean Scientific Research Award to Carolyn Pizoli, MD/PhD Shields Award to Mai revi Mazumdar, MD MPH Logan [...]

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  • Eagles Host Child Neurology Foundation at Training Camp

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    From WBOC16 | Delmarva’s News Leader The Philadelphia Eagles today announced they will be collaborating with the Child Neurology Foundation (CNF) to sponsor a program for first and second-year students from the six regional medical schools in the Delaware Valley. The program promotes the neurological specialty, which cares for the one-in-four children who face problems [...]

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  • 21 year old M.D. wants to be child neurologist

    A 21-year-old Chicago man who began college at age 9 and completed medical school three years later is about to become the youngest student ever awarded an M.D. by the University of Chicago.  more from the NY Daily News

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  • About Questcor Pharmaceuticals

    Questcor is a biopharmaceutical company whose products help patients with serious, difficult-to-treat medical conditions. Questcor’s specific areas of focus are in the fields of neurology and nephrology and the company is currently supporting research efforts in a variety of conditions having significant unmet medical need. For more information, please visit www.questcor.com.

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  • Infantile Spasms

    Infantile Spasms is a severe, ultra-rare form of epilepsy that affects infants, with onset typically occurring during the first year of life in about 90 percent of cases. IS incidence is estimated at approximately 2,000 new cases in the U.S. per year, which can be classified as an ultra-orphan disease. For comparison, orphan disease designation [...]

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  • Photos from 2012 Mardi Gras Available

    Thanks to all who attended CNF’s 3rd Annual Twin Cities Mardi Gras Gala.  Our Facebook page highlights some of the fun had by all.

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  • Child Neurology Foundation Names QUESTCOR PHARMACEUTICALS as First Recipient of Corporate Citizenship Award

    February 21, 2012 (Minneapolis, MN) – The Child Neurology Foundation (CNF) announced today that it has named Questcor Pharmaceuticals, Inc. as the recipient of its first-ever Corporate Citizenship Award.  The Award honors Questcor’s long-term commitment to support the child neurology community as well as the company’s efforts to fund education and research of infantile spasms [...]

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  • Photos from 2012 Mardi Gras Available

    Thanks to all who attended CNF’s 3rd Annual Twin Cities Mardi Gras Gala.  Our Facebook page highlights some of the fun had by all.

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  • Child Neurology Foundation names Questcor Pharmaceuticals as first recipient of Corporate Citizenship Award

    February 21, 2012 (Minneapolis, MN) – The Child Neurology Foundation (CNF) announced today that it has named Questcor Pharmaceuticals, Inc. as the recipient of its first-ever Corporate Citizenship Award.  The Award honors Questcor’s long-term commitment to support the child neurology community as well as the company’s efforts to fund education and research of infantile spasms [...]

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  • ADHD Awareness Week

    October 14-20, 2012 This year’s theme: “ADHD, Get the Facts.” To build awareness of the science, treatments, and consequences of untreated ADHD. More, including details of their video contest at www.adhdawarenessweek.org

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  • ISAW – Infantile Spasms & LGS Awareness Week (October 23-29, 2011)

    A long term goal of CNF is to raise awareness of the urgent need to correctly identify Infantile Spasms before it’s too late.  With early diagnosis and treatment affected children may live a quality life without cognitive disabilities.  To achieve this goal CNF has designated the week of October 23-29, 2011 as Infantile Spasms & [...]

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  • Article: What are Infantile Spasms?

    From: The National Institute of Neurological Disorders…link to page What are Infantile Spasms? An infantile spasm (IS) is a specific type of seizure seen in an epilepsy syndrome of infancy and childhood known as West Syndrome. West Syndrome is characterized by infantile spasms, developmental regression, and a specific pattern on electroencephalography (EEG) testing called hypsarrhythmia [...]

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