2017

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Cerebral Palsy is a Diagnosis, Not a Destiny: NEW OFFERINGS

CCPM is on the Move Children’s Cerebral Palsy Movement (CCPM) executed a successful multi-institutional, multi-disciplinary scientific pilot study, involving boys & girls with CP that…

NEW INTERACTIVE GRAPHIC: Tools for Transitioning Young Adults with Neurologic Conditions

Led by CNF, the consensus statement, The Neurologist’s Role in Supporting Transition to Adult Health Care* was published in July 2016. The statement identifies 8 Common Principles for…

RARE Child Neurology Workgroup

Children and their families who live with rare conditions often feel isolated. We want to change isolation to empowerment. The CNF/Global Genes RARE Child Neurology…

SUDEP

Every year, 1 in 150 people who have uncontrolled seizures dies from Sudden Unexpected Death in Epilepsy (SUDEP). It is the leading epilepsy-related cause of…

Grants and Scholarships

CNF offers Grants & Scholarships every year to families in our child neurology community, including the RISE Family grants to help during COVID-19.

Respite Care Notebook

Use the forms in this free Notebook to tell the respite caregivers about your child and his/her needs.

Midazolam Nasal Spray (USL261) Phase 3 Trial Meets Primary Efficacy Endpoint In Patients With Seizure Clusters

CAMBRIDGE, England, April 26, 2017 /PRNewswire/ — Proximagen Limited (Proximagen) today announced that its pivotal Phase 3 trial of intranasal midazolam (USL261) for the rescue treatment…

Exciting advancement for adolescents living with migraines!

FDA Approves Expanded Indication for Qudexy® XR (topiramate) Extended-Release Capsules to Include Prophylaxis of Migraine Headache in Adults and Adolescents Molecule Most Prescribed by Neurologists…

Rare Neurological Disease Special Report

Neurology Reviews presents its third annual Rare Neurological Disease Special Report, a compendium of articles and information covering a wide range of rare neurologic diseases. CNF…

Novartis drug Votubia® receives EU approval to treat refractory partial-onset seizures in patients with TSC

MEDIA RELEASE • COMMUNIQUE AUX MEDIAS Novartis International AG Novartis Global Communications CH-4002 Basel Switzerland https://www.novartis.com • MEDIENMITTEILUNG Novartis drug Votubia® receives EU approval to…

Creatine helps supply energy to all cells in the body. It helps increase adenosine triphosphate (ATP). Creatine is produced in the liver, which makes it…

February 1 is CCDS (Cerebral Creatine Deficiency Syndromes) Awareness Day

Learn important facts about creatine deficiencies by watching this video produced by the Association for Creatine Deficiencies (ACD, creatineinfo.org).  

Novartis drug Votubia® receives EU approval to treat refractory partial-onset seizures in patients with TSC

Basel, January 31, 2017 – Novartis today announced that the European Commission has approved Votubia® (everolimus) dispersible tablets* as an adjunctive treatment for patients aged…

Special Needs Horseback Competition Provides Fun For Participants

The 121st Fort Worth Stock Show offers fun and entertainment for lots of fans. However for more than 200 horseback riders with special needs the…

Carrie Fisher’s Last Advice, “As Your Bipolar Sister”

Star Wars fans around the world were saddened to hear about the passing of Carrie Fisher. Along with being a great actress, she was also a…

Special Needs Ice Competition

Outside of Chicago a group of special needs athletes were participating in the 2017 Champions Special Needs Skating Competition. For the participants, it’s not just about…

Child With Special Needs Gets New Service Dog

Everyone has had a Christmas wish to wake up on Christmas morning with a new pet. For Cruz Smith, that wish was for a dog.…

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