March

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March
Rare Neuro Disease: Collection of Reports

Last month, CNF noted our commitment to children living with rare genetic conditions that have a neurologic component and introduced the RareChildNeuro 75% Fact... of…

Collaborative Peer Support Workgroup

Humans are more effective and happier when they have... someone to talk to about personal matters... someone who cares about them ... someone who can…

Help Build New Resource for Rare/Severe Epilepsy

CNF is happy to share this opportunity from our Corporate Advisory Board Partner, Greenwich Bioscience Greenwich Biosciences is launching TakeOnEpilepsy.com to provide expert advice for…

Rare Disease Caregiving Impacts Heart + Finances – See Why

What Does a Portrait of a Rare Caregiver Look Like? The National Alliance for Caregiving, in partnership with Global Genes, recently released Rare Disease Caregiving in America, a…

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