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FSEP Bootcamp

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Is your organization actively working to provide peer support to your community? Are you interested in learning best practices, key elements, and effective techniques to providing peer support that is both helpful and healthy? Or in meeting and sharing experiences with colleagues who are providing peer support?

If so, we have an opportunity for you!

On Tuesday, October 2, 2018, in partnership with the Global Genes, CNF will offer a 1-day Peer Support Bootcamp. The Bootcamp will be held the day prior to the RARE Patient Advocacy Summit, in Irvine, CA.

The Peer Support Bootcamp is convened by the CNF Family Support & Empowerment Program (FSEP). FSEP’s Peer Support Specialists will facilitate the discussion and share their real-life experiences, not only as leaders in the peer support space but also, and more importantly, as parents of children with neurologic conditions.

At the end of the Bootcamp, attendees will have actively participated in:

  • Discussing research that underscores the value, impact, and health benefits of peer support to families

  • Learning best practices, key elements, and effective techniques to providing peer support that is both helpful and healthy

  • Meeting and sharing experiences with colleagues who are providing peer support

  • Exploring a common vision and commitment to work together, as providers of peer support, to ensure that families and caregivers have access to someone who will listen and walk with them on their journey

  • Building a network of peer supporters, with the goal of enriching and diversifying assistance opportunities for the families we serve

Please note, this Bootcamp is limited to 28 people, one representative per organization, and is first come first served. There is no fee to participate in the Bootcamp; however, individuals selected to participate in the Bootcamp must register to attend the Global Genes Patient Advocacy Summit.

If you are interested in participating, please apply now. Confirmation emails for accepted participants will be sent from Stephanie Mucha, CNF Director, Collaborative Programs & Initiatives (smucha@childneurologyfoundation.org).

CNF thanks our 2018 partners – Greenwich Biosciences, Horizon Pharma, Lundbeck and Mallinckrodt Pharmaceuticals – for their support of FSEP.

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