2017 Infantile Spasms Hero & Hope Awards
2017 Infantile Spasms Hero & Hope Awards


The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1 through 7. To recognize those who have made an outstanding contribution to families affected by infantile spasms, nominations are now being accepted for both the IS Hope Award and IS Heroes Award.

The IS Hope Award will honor a family who has not only demonstrated courage in the face of their child’s diagnosis of infantile spasms, but also has used their experience and shared their story to help generate awareness of IS and educate other parents facing this devastating form of seizures. Please click here to learn more and nominate a family. Nominations for the IS Hope Award are due by October 20, 2017.

The IS Heroes Award recognizes a health care professional and his or her institution for making a positive difference in the life of a child with infantile spasms. Nominations are accepted from parents and caregivers who wish to acknowledge a provider who has embodied the heroic spirit of compassionate and efficacious care during diagnosis or treatment of IS. Click here for more information and to make a nomination, Nominations for the IS Heroes Award are also due by October 20, 2017.

Recipients for the 2017 IS Hope and Hero Awards will be announced November 7.

The goal of Infantile Spasms Awareness Week (ISAW) is to increase awareness and understanding of infantile spasms through developing and distributing educational materials to providers, caregivers, and the public; announcing new and useful research and support initiatives; recognizing exemplary contributions to care; and inviting families living with IS to be part of a larger community—many stories with one voice.


2017 Members of the Infantile Spasms Action Network  
American Academy of Neurology | American Academy of Pediatrics | American College of Emergency Physicians | American Epilepsy Society | Association of Child Neurology Nurses | Bcureful | Belgium TSC | Child Neurology Foundation | Child Neurology Society | CURE Epilepsy | Danny Did Foundation | Dup15q Alliance | Epilepsy Foundation of America | Global Genes | Greenwich Biosciences | Lennox Gastaut Syndrome Foundation | Mallinckrodt Pharmaceuticals | Mickie’s Miracles | National Organization for Rare Disorders (NORD) | RARE Science | Seizure Tracker | Tuberous Sclerosis Alliance | Upsher-Smith Laboratories

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