Elliot is one of the children who received a $1,000 Rise Family Grant from CNF. Here is a message from his family. “It’s no secret…
“Of course, the isolation for COVID-19 was hard on everyone. For us, life changed drastically.”
“My daughter was chosen as one of the grant recipients in the first round. I just wanted to say thank you so much.”
In June, the Cute Syndrome Foundation received a Rising Tides Grant from the Child Neurology Foundation to lift a social and emotional support program off…
Global Genes and Child Neurology Foundation Outline “Guiding Principles of Rare Disease Care and Patient Access” in Joint Report, Urging Health System Stakeholders to Help…
On Tuesday, September 1, the National Academies of Medicine (NAM) released a draft of their proposed guidelines for the distribution of a potential COVID-19 vaccine once it becomes available. The public has been…
Here are some highlights of the book club supported by the RISING Tides grant, with details and photographs provided by the Cute Syndrome Foundation.
A selection of stories from families in our community during the pandemic.
Child Neurology Foundation CEO Amy Brin To Lead Epilepsy Leadership Council’s New Steering Committee
The Child Neurology Foundation is pleased to announce that CEO and Executive Director Amy Brin is furthering her commitment to the pediatric neurology community and…